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this horrible disease

Posted , 5 users are following.

rita09697
rita09697

This is a horrible, debilitating, excruciating illness to have to go through.  I watched a loved one suffer and eventually end life because there is no cure or no hope...everything that they do is only temporary.........there are so many complications with this disease that it is really unbearable............the person was diagnosed 10 years ago...for 1 or 1 1/2 years they needed oxygen...then for some reason it went into remission...then it appeared after 10 years...the person was 90 years old; but other than that in fairly good health...it started first with oxygen, then they became weaker and weaker....getting off the bed was too much...going down for a meal was impossible...then came vertigo, nausea, extreme fatigue and an accompanying cough that would let up...laboured breathing.............eventually the person became bedridden although they had 99% of their faculties operating normally then it was downhill from there; watching this play out in front of your eyes is excruciating...no cure...no solution...horrible

 

0 likes, 3 replies

3 Replies

  • rich1mac1
    rich1mac1 rita09697

    Posted

    I am sorry to hear of your loss. But there are many different forms of this disease. I believe there are over 200 different forms and each one has it's own characteristic's. Also it responds differently in each person. SOme of the forms do have treatment, others do not. But it all is starting to be researched better today. Like any disease research is not started until more is learned about the disease. I am sorry that it was not in time for the one you spoke of, but maybe down the road others may be cured. Just as in the 1950's my uncle passed away from Kidney Failure, and shortly after they developed  Dialysis. Some will survive for a while on it, others will not, they depend on a transplant. I have a rare form of the disease called PPFE, no treatment ,no cure. You just deal with the disease and live as best you can. Sooner or later we all die, it's not how you die that matters but what you can do to help other's. It's how you live that will matter. Your person who died from this lived to be 90, I am 60. I am not bitter about it, there are younger people dealing with this disease who might not live to see 30. My heart goes to them as they are only just starting to live.

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