Tina Street

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I was diagnosed with ipf 6 years ago and I want to know if anyone can enlighten me to the symptoms of the end stages im on no medication and have been through numerous chest infections fatigue depression the whole works really but of late cant seem to shake infections off and coughing has fractured my ribs and burst blood vessels in my eye. The last few weeks ive had a horrific pain in my left and right side coming around to my front underneath my ribs its so bad I scream in the night when i try to turn over i take morphine but doesn't help much so any advise would be very welcome. Xxxc

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5 Replies

  • Posted

    I suggest you go to the emergency room . You might have a collapsed lung or worse, you should seek immediate medical attention.
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  • Posted

    Hi Tina, rich1mac1 is right about seeking medical attention.  What you're describing doesn't sound normal and if you're having pain come through that bad over morphine you need to get help.  Bless you.

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  • Posted

    Thanks have been the doctors had a x-ray ive got pleurisy and a touch of phenomia. Xx

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  • Posted

    Thank you for the update Tina, really hope you recover soon and feel relief from the pain.
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  • Posted

    Send toRev Pneumol Clin.1985;41(2):91-100.[Respiratory function and alveolar biological changes under the effect of CDP-choline in pulmonary interstitial pathology: pulmonary fibrosis and sarcoidosis].[Article in French]

    Pacheco Y, Douss T, Pujol B, Revol A, Vergnon JM, Biot N, Brune J, Perrin-Fayolle M.Abstract

    Various anomalies of pulmonary surfactant have been described in relation to acute respiratory distress syndromes, hypersensitivity lung disease and pulmonary sarcoidosis. Phosphatidylcholine (PC) is the essential phospholipid component of pulmonary surfactant. Cytidine diphosphocholine (CDP-choline) is an essential intermediary in the biosynthesis of PC. The authors studied two groups of patients: one group consisted of diffuse interstitial pulmonary fibrosis and the other consisted of pulmonary sarcoidosis with parenchymal involvement. They observed quantitative and qualitative abnormalities of the phospholipid fractions of surfactant and more particularly of PC. The finding of a marked decrease in this phospholipid, especially in the cases of pulmonary fibrosis, justified the study of the therapeutic effects of CDP-choline. After one month of treatment with this substance, at a dose of 1 g I.M. per day, the PC fraction had returned to normal and, at the same time, there was an improvement in the PaO2 at rest and after exercise. Long term administration of CDP-choline appears to be valuable in the maintenance of the phospholipid equilibrium of pulmonary surfactant and in the improvement of the quality of alveolar gas exchange.

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