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I'm 32 and was diagnosed last week. I was in hospital 2 weeks ago being put under to have a bronchoscopy but they couldn't intubate me so the procedure was abandoned and I saw and 2 ENT's who suspected WG. At an ENT clinic last week It was confirmed. As I have Rheumatoid arthritis they has mistakenly thought this was the issue with me lung. Now it turns out its WG and the reason they couldn't intubate me was my windpipe just below my vocal cords is only open 30%. The ENT siad last week that dillation couldn't be used as this would speed up the disease and if it gets to the point where I can't breath I'll have tp have a permanent tracheotomy. I'm based in Ireland. I think I might need a second opinion. Has anyone ecer heard that dillation would speed it up? I'Or has anyone any advice? Lastly, how quickly were people starting with treatment after diagnoses?
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