I'm very sorry to hear about your illness. I can only imagine what you must be going through. As a Christian, I believe in prayer, but I believe that God put things in our reach that will help us, such as doctors, natural remedies (that doctors disagree with most of the time). Here in Gulfport, Ms, USA, we have a place called Dr.'S Nutrition, that deals strictly with vitamins and natural remedies.
I have something sort of similar called "neuropathy", which is inflammation to the nerves in extremities due to damage to the nerves in the in the back. However, when I began to perform research, I found that it can also be due to a lack of some very important B vitamins, such as B-12, B-6 and B-1. So, I decided to go to Dr. Nutrition, who gave me a B-Complex and an additional B-12 Foliate to take (2 per day of each for at least 3 weeks before coming back). I ended up going to the emergency room that night, because after 4 days of suffering, I couldn't take it anymore, and he gave me something for the pain, but he also gave me a prescription for "neurontin" twice a day.
Now, I've had these symptoms before, but no one seemed to know what it was. It's been three weeks, and I am still having some slight symptoms, such as soarness of muscles, and nerve sensativity (if I stub my toe, it feels 10 times worse than it really is), but the symptoms have improved greatly.
One thing I did not include is I have excessive insomnia, which means I don't sleep for days. I have noticed an improvement in that as well. I still have insomnia, but it doesn't last for 4 or 5 days. I may have it for a couple of days, and then I'll finally sleep for at least 4 or 5 hours, sometimes longer. I can't remember the last time that happened. It's improving more and more as tie goes on.
I don't know where you are, but if you don't have access to the B vitamins, maybe I can help you with that. Let me know. In the meantime, I'll remember you in my prayers.
Christ died and shed His blood for our sins. Believe, receive and repent to God, asking for forgiveness gets you saved and safe.