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I have had flank pain on the right side and doctors still don't know what is wrong
It all started in august when I woke up with
an excruciati pain on the right side. I had kidney stones throuhout my teenage years and I recognised the pain straight away ! I ended up at the A&E at 6am and went through urine and blood tests, and also had a CT scan. All results came back negative, no infection but 2 unobstructive kidney stones on the left side. Ironic though because they were completely pain free. I came back home with painkillers. Within the following days, the pain persisted but I didn't get worried because when I had kidney stones in the past, I always got this residual pain for a few days. So I carried on with life
however, after a week or so, I kept having sharp pain on my right front abdomen and sensation of compression around my right kidney. I went to my GP, he called the hospital I was discharged of to have further details about my CT scan. He found out that my appendice was normal and that I had a cyst on my right ovary. Back to the hospital, admitted in acute gynaecology where I had more blood and urine tests and an ultrasound (internal, external, the full pack !!). They did confirm the ovarian cyst but they were not the cause of my pain. My symptoms and the location of my pains pointed more towards the kidney and urinary tract. The day after, I had a KUB ultrasound which showed nothing. Everything was normal and still no sight of a kidney stone !! Frustration started...
I then went back to my GP to get an urology referral. I saw the urologist a few weeks later. In th emeantime, the pains were still there, as well as a loss of appetite, occasional vomiting and diarrhoea, fatigue, reduced mobility as I was in agony whenever I moved. I also nearly fainted once and had what seems to be a very bad apnic attack (shaking for nearly 3h !!!).
When I saw the urologist, he prescribed more bllod and urine tests, a CT scan with contrasts and an MRI of my spine (to rule out a neuropathic problem). Everithing went back normal !!! More frustrations...! So he made a referral for a pain management consultant. At this point I was taking Diclofenac (anti inflammatory), buscopan (anti spasmodic) and codeine (painkiller). On top of that the consultant added pregabalin (for nerve pain). The mix seemed to work for a couple of weeks or so, so I was seeing things more positively. However, at some points, when I started feeling better, I gradually reduced the medication as advised by the doctors, one drug at a time. It started well for the first few weeks, and then it went all wrong. After I stopped the last drug,the anti inflammatory, the apin came back within 4 days, full on ! So I started to take the anti inflammatory.
Since then, I cope with it and codeine occasionally. It is very strange because I can have a good week with little pain and suddenly it just comes back out of the blue, or after some activities (walking fast, standing up for more than 1h, running...). I still can't bear to lay on my right side.
I can identify some patterns in the frequency and the kind of pain: more sore on the front right flank in the morning, dull ache around my kidney at mid day til the evening when the pain seems to spread on my flank and across my back, like a burning sensation.
However, lately, I started to have occasional stabbing pain on the kidney area. This is extremely painful and worrying.
i will see the urologist in afew weeks and I am hoping he will do a more thorough investigation. So far, as the scans and tests show nothing, his strategy is to try different medications to ease the pain.
I am so frustrated and confused by this mystery illness. It has been more than 3 months and has impacted on my professional and personal life. I can't keep going like this !
I am desperate for answers either from professionals or patients having similar symptoms.
Please HELP !!!!!
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