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It's been awhile since i first posted so I thought it time to update. First i would like to thank everyone who previously replied , your replies and thoughtfulness have proven to have been extremely helpful. Having relapsed in Feb. of 2017 i was started on rituxan in May 2017 and have been relapse free since. My doctor filled out some paperwork for disability and i started receiving it and medicare in Jan. of 2019. The billing for the rituxan has been problematic at first. Coding was always the issue. Paying for my private insurance is taking all I can manage to come up with with the help of disability, and even with medicare I have been afraid to get rid of it, ( the rituxan treatments are 52k each 4 times a year) The manufacture of rituxan also chips in generously. I am doing fairly well, however I still must take the pred. and now BP meds. Wishing all of you well and hope you are receiving the care you need. Please do not hesitate to ask any question of me , I am eager to help anyone that i can. Thanks again!

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  • Posted

    hi there,

    I just wondered if you had any tips on how to deal with the pain. I can't just keep taking painkillers. I'm using voltarol on my painful bones, hands and fingers, feet etc, which takes the edge off enough for me to fall asleep but it doesn't last long.

    thank you for your time

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    • Posted

      I have always been very pain tolerant , however the constant pain is tiresome. i dislike all the pain meds prescribed to me, and have refused them. i do use cannibus from time to time when needed and it works for me. best wishes and good luck

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  • Posted

    My newest update, 10 months since my last rituxiun infusion . My MD has put me on methotrexate (once a week) with folic acid daily, along with continuing 5mg of prednisone, just started this today so will keep everyone informed . Have read about all i can about this treatment, so if anyone has anymore insight it would be much appreciated! Thanks

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