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Hi Everybody, I haven't been diagnosed yet as the medical guys are still running tests on me. At the beginning of this year I started feeling numbness in my toes and fingers. Since I am type 2 diabetic my GP said it may be related and will send me to a neurologist if it worsens. He was surprised as my hba1c and glucose levels are well under control with diet.
4 months later I went back to my GP and said I think they are getting worse. Not painful, just a disconcerting numbness. He had no hesitation referring me to a neurologist. The neurologist was booked up and I had to wait a month to see him. He ordered a lot of blood tests and made an appointment to see him one month later for a nerve conduction study and go over the blood test results.
The nerve conduction study didn't show any major damage and probably only confined to the tiny nerve ends. He too thought also that diabetes may be the reason. He explained that although the sugar is well controlled the damage may have begun prior to diagnosis. He asked me to come and see him again in November and wanted a follow up blood test. He was concerned that my kidney function test was a bit elevated. I informed him that I've been taking Voltaren every day for my sore knee. He told me to stop as this may be the cause of the kidney reading.
I waited two weeks and got the follow up tests done. He phoned me and told me that kidney function has returned to normal and that all other tests look ok except for maybe one odd reading with an antibody.
He called me the next day and said that he wanted me to see an immunologist for an opinion on my c-anca and PR3 readings. These were 20 and 5.1 respectively. I asked him what were they looking for and he told me he just wants to test for possible GPA or sclerosing cholangitis.
I can't get into to see the immunologist until end of november. I looked up the two diseases and naturally by bum cheeks clenched up a bit. I would just like to ask anyone here if the think that these two readings are high, low, borderline or even if it is possible to have the antibodies and have nothing wrong with me. The waiting is doing my head in.
Thank you and I wish everyone here good luck with what looks to be an awful thing to manage.
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