Was diagnosed with Sarcoidosis this month 8/15

Posted , 5 users are following.

Only by accident that I was told I had sarcoidosis. I recently had an MRI for shoulder and it showed up with spots on my lungs. I've passed the pulmonary lung test... I do have lots of spots on lungs my doctor said I'm not at the first category... (Stage) no need for meds at this time. Follow up ever three months.. Prior to finding out about sarcoid I would sometimes have shortness of breath and would call my doctor... I always thought it was allergies. It's crazy the sarcoid is found by accident.

Thanks for listening! How's everbody doing?

0 likes, 6 replies

Report / Delete

6 Replies

  • Posted

    Hello,

    It's great you've been diagnosed so early as it can take some time.  It now means you are in a good position to deal with the Sarcoidosis if there is any deterioration which may mean medication etc.  Have you thought about your diet to reduce the inflammation in your lungs? You will see on other posts here and the web there are certain anti-inflammatory foods which may help ie: kelp, spinach, pineapple, cucumber, mint, dark leafy vegetables, tumeric, ginger, extra virgin oil, blueberries, brochilli, green tea and to avoid processed foods, sugar, fats, dairy, soft  drinks etc.  Hope that helps.

    Report / Delete Reply
    • Posted

      Hi Maria!... Pleasure to meet you!

      Thanks for the much needed information very thoughtful of you. I'm 43 and I'm very active person..... I was wondering about foods that would help and that list is great! I do eat lots of salads and always eating blueberries I do splurge with diet Pepsi thinking time to stop drinking it...., how long have you had sarcoid? And does the diet work for you? Thanks again!

      Report / Delete Reply
  • Posted

    Hi Mack,

    Good to hear, that you were diagnosed with Sarcoid. I am Nitin from India. My mother recently got clarification that she is suffering from the Big illness. It lungs sarcoid. Just need favour about the procedure , medications and food that you took to get rid of this problem. Please provide your usefull inputs.

    Thanks in advance.

    Report / Delete Reply
    • Posted

      Hi there

      I'm sorry to hear about your mom but it's good news that she has a diagnosis. I've only recently been diagnosed and at this point I don't require any treatment so I don't know if I can be all that helpful.

      In term of procedure, I was referred to a lung specialist who ordered a cat scat and a pulmonary function test. The pulmonary function test results were very good so my doctor will simply monitor me and I will repeat the pulmonary tests every three months to make sure the illness is not worsening.

      Report / Delete Reply
  • Posted

    I just found out i have the type of sarcoids that affects the eys instead of lungs hope all goes well for u
    Report / Delete Reply
  • Posted

    Hello Mack,

    Sorry for the delay in replying.  

    I was finally diagnosed in May (after suffering with breathing problems for two year which had really deteriorated over this winter) after blood tests, a lung function test, x-rays, a CT scan, and bronchoscopy to take samples of my lungs.  I've therfore been on a high dosage on steroids (luckily without too many side effects) to a point that my Consultant can see a reduction in the inflammation in my lungs, so I am now at the point where I'm reducing the steroids, but this is tricky and has to be done slowly.  

    Regarding the foods to improve the condition, my life is rather hectic so I do try to incorporate the foods when and where I can.  However, with your diagonisis being found so early and not using medication, I think using the food direction would be a real asset.  I've also read some people have homemade detox drinks ie: water with lemon, cucumber, mint and ginger kept in a jug in the fridge which they find is helpful too.  It is probably worth your while researching the web to see if there are any other alternatives to medication to assist with your condition.

    Maria

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up