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I think Im just feeling sorry for myself. Ive been on Prednisolone plus other medication for 2 years and I stopped taking the steroid 5 weeks ago after reducing my dose down. The Dr wanted to know the 'reality' of where my chest is at and generally how I am. She did say to me dont be a hero, any symptoms go straight back on them. Im not being a hero, but I thought I needed to be off them for sometime so my body can adjust, just as it does when the withdrawl kicks in when the dose is lowered. Ive noticed I wheeze and cough more, and Im breathless more. On the upside, im losing weight and its obvious, the lumps on my back are decreasing, my brain fog has gone and i feel less drugged up.
This weekend I've over done it doing jobs and going places. I had a huge hot sweat session yesterday in the middle of town. so much so I had to go and buy another thinner top to wear. Soaked hair, soaked skin. It started raining so i didnt look such an idiot. I got home and had a freezing cold episode to top it off.
I'm seeing the consultant on friday and Im worried that they will put me back on steroids.Im also worried that its flared up again.
In the cold light of day I will have a word with myself and know that its a setback, and to be expected. I'm hoping that its like this when someone is weaned off steroids for a number of weeks and it will improve as the body adjusts. I just dont want to go back to steroids,
Sorry I just needed to get that off my chest - no pun intended.
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