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I have potential Wegeners. Don't know if it can be confirmed. I started having nasal inflammation and after allergic test and a few blood work, doctor diagnosed with Wegeners. No biopsy due to only Nose getting affected. Doctor advised starting methotrexate, but didn't. Started with PRednisone and my nasal inflammation got better and was able to breathe. In December 2015, had a viral and lost hearing in right ear. Didn't pay that much attention and then contacted my doctor and said this is a sign of Wegeners. Went to ENT and he asked me to take Prednisone 60 MG. Took it since i had senoneual loss. Now doctor has advised to start Rituxan Therapy. I wanted to know if anyone has gone through the same thing and what was their experience with Rituxan. I am 39 year old male and no other problems. But just wanted to know side effects you have had. They have told me that i will be on Rituxan infusion once a week for four weeks and then methotrexate.
Any insight would be helpful. Looking for other Wegener's patients to chime in.
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