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I was diagnosed with Wegeners but never confirmed due to Nasal only issues in 2015. I went through some challenges and had some hearing loss and started Rituxan 2016. After Rituxan, i was on methotrexate and Prednisone and Prednisone was tapered off till April 2017. In June of 2017, i started my have nasal bleeds and my CRP and ESR went up.
July i also had a lot of ear pressure during flying and went to ENT and he relieved the pressure through Tubes. ENT also ordered a Mastoid CT to check and found nothing. Lots of drainage at this time from ear.
I saw my RHMU and he said flare is happening. My ESR kept going up. CRP was in the 12 range.
Started another Rituxan treament September 11th and on September 15th went to ER for Pleurisy and ER doctor did a CT scan of lungs. He found lesions, but doesn't know if there is infection or is this wegeners.
Has anyone had this before where Lesions are there? Has anyone gone through Rituxan treatment with Lesions in Chest.
I am seeing a Pulmanologist this week and he will check if i have an infection.
Thoughts and prayers for everyone to get better.
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