wengers since 2011

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I have been having alot of uti infection and bladder and kidney inflamation and i dont know if this could be related to wengers of course i go to er cause cant see dr until appt and i dont think the er drs care about me having wengers. They just give meds send mevhone and in anither 2 months i go back samething. I think i need a dr. I can see when i need him. I could write a book of things that happen to me over the years now just happens like fever no reason, breathing issues copd now i have had swollen spleen crazy bloodwork colonitisis fatigue all time joint pain , in wrist ankles elbows at times.i have had polys on throat removed vocal chords were inflammed and i get hoarse at times voice change. I never was sick until 2011. My dr will tell me since i did ruitoxumb i am better well then how come i have flareups. I feel like i know more than him cause i am concerend about it.

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  • Posted

    Hey jen I hear your pain I was diagnosed in 2013

    I had to do the rituximab also, and I still on cortisone. I still suffer pain in my lung and shocking night sweats and just all round fatigued not all the time though same as u I have my good and bad days. Sometimes we just feel alone. All the best jen u can chat to me anytime :-)

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    • Posted

      Thanks i just feel like my dr doesnt care and if i show him pic. Of my joints swollen or about my polps that was removed cause i was horse and the ent dr hadcto scrap my vocal chords cause they were inflamed he says i am healed from wengers after rixuim teatment but i read i will always have flare ups he thinks not now i have had two uti bladder and kidney immfamtion i think it is flare up should i see another dr ?
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    • Posted

      Hey jen, yes go get it checked out sweetheart I know what you are saying about the doctor's they don't want to take the time to really look into it I just had sinus issues and tharangits in my throat couldn't talk and my throat has voice changes all the time one minute I sound fine and the next I sound like I have a head cold. It gets really husky but I don't have a sore throat. My joints hurt too sweety and the fatigue is shocking. Don't lose hope jen I know what you are going through never give up keep on the doctor's back until u make some progress if we don't do that they certainly want pursue it. Chat to me anytime. Xx

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