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  3. Granulomatosis with Polyangiitis

WG

Posted , 3 users are following.

dona43005
dona43005

I was diagnosed 2013 with WG shocking rash all over my kidneys bleeding out fatigued couldn't breath nasal issues I was fit walking 4 km everyday and now I can hardly do housework had to leave my job as a pathologist. As I have no immune system I so depressed :-(

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  • jennifer25546
    jennifer25546 dona43005

    Posted

    I was diagnosis in 2011 started having no immume system breathing and fevers and tired all the swollen spleen, colonitisis, just crazy things. Now i still have flare ups joint pain fatigue and been having some kidney pain and bladder infection abd uti lately. I also have horeness and had vocal chords trimmed inflamation. My dr just acts like no big deal. I feel as if he dont care or dont know enough i did a treatment of ruxtiumb in 2013. He will say i am better and i aint still go to er about every 2-3 months. I know i have never been sick i hate how i feel. Good luck and find a dr.that knows or wants to know.
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