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When I was first diagnosed there was no internet, there was only library book information, and what my doctors a said. It never dawned on me at that time to try to find others with the same condition. I just wondered where they all were since the incidence of the most common karyotype that can lead to KS was so high?
I'm amazed these days when I see new people arrive on the internet who know nothing of KS, of course, becasue they're newly diagnosed, and they often set out to form some kind of support group, or 'social media' group.
They seem to be very keen on teaching people about KS, even though they don't really know anything, except what their doctors have told them and what they've gleaned from library books.
Library books, they should be better written! By the time something gets printed and put in the library, it's out of date!
I was diagnosed for 18 years before I set about finding other XXY guys. I guess I'm, just slow.
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