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So im wondering what your experiences of coming of predisolone?
Abit of background. Diagnosedd with sarcoid in september 16 been on predisolone since then
40mg untill 2 months ago. Then specialist told me to goto 10mg maintenance dose as i was struggling with predisolone side effects.
Cut down to 10mg decided (against doctors orders) to come off the predisolone and try low dose naltrexone. So after several attempts ive finally been of them for 4 days now but having a few side effects just wondering if anyone has tue Same.
I was feeling funny in my head.
Achey ankle joints and hip joints
Other then that it hasnt been to bad as of yet and i feel ldn has helped me coming off the predisolone as ive not managed to come off them before. So im sure feeling unwell is normal. But im feeling better then i have neen on pred.
Sorry for the essay just interested in everyones experiences and how long it took you to feel normal again? And omg the achey joints# x
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