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Why Papworth rather than Addenbrooks?

Posted , 2 users are following.

sharonamy1965
sharonamy1965

Hello everyone. I am a 50 year old female being tested for WG. Currently awaiting biopsy at Papworth hospital. I've heard there's a good vasculitis team at Addenbrooks so I'm wondering why I've not been referred there?

0 likes, 5 replies

5 Replies

  • dave170448
    dave170448 sharonamy1965

    Posted

    Hi

    You can get referred to Addenbrookes Vasculitus Centre of Excellence by asking your GP.

    The top two Vasculitus experts in the world are Peter Merkel based in USA and David Jayne based at .....Addenbrookes

    I have WG and would not go anywhere else, they have over 1,000 patients.

    A good contact is Stella Burns who works with David Jayne

    Good luck!

    • sharonamy1965
      sharonamy1965 dave170448

      Posted

      Thank you Dave. I only know respiratory hospital doctor suspects WG as he has run the ANCA test after finding large white nodules in both lungs on CT scan. Could be other thing but this seems to fit. Considering a private consultation with David Jayne to speed things up. Still waiting for biopsy appointment.
    • dave170448
      dave170448 sharonamy1965

      Posted

      Good luck

      I got in at Addenbrookes very quickly after learning of them ( I joined Vasculitus UK - the support group and other members said that I HAD to get treated at Addenbrookes) If you do have WG then your GP is likely to have never experienced it before. Stella Burns's direct line is 01223 217259 - she is very nice and helpful

      Let me know how it goes

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