What we want from speech and language therapy services
This study is gathering views from autistic children (aged 9-17) and speech and language therapists (SLTs) in the UK. Many autistic children find it hard to communicate, and SLT services are key to helping them. However, current services may not always meet everyone's needs, especially with changes in how autism is understood. Some existing therapies might even encourage autistic children to hide who they are, which can be unhelpful. This research wants to hear directly from autistic children and SLTs about what works well and what could be better. By understanding their experiences and preferences, the study hopes to suggest improvements so that future therapy truly helps autistic children thrive and feel accepted.
At a glance
What is this study about?
This study is all about making speech and language therapy (SLT) better for autistic children.
You might already know that many autistic children can find it challenging to communicate. Speech and language therapists play a really important role in helping with these difficulties. However, the way we understand and support autistic people is changing. For example, more children without learning disabilities, and more girls, are now being diagnosed with autism, and they might have different needs. Also, some autistic adults have shared concerns that traditional therapies sometimes try to change autistic people rather than helping them to be themselves. This study wants to understand how SLT can best support autistic children to communicate effectively and feel good about themselves, by focusing on a positive approach that celebrates who they are.
The researchers want to ask autistic children (aged 9-17) and the speech and language therapists who work with them what they think. They want to hear about what helps, what doesn't, and what changes could make things better. By listening to these different viewpoints, especially from the children themselves, the study hopes to create new ideas and guidelines for SLT services. This way, future support can be designed to truly meet the needs and preferences of autistic children, helping them to communicate in ways that work best for them.
Key takeaways
- Help improve speech and language therapy for autistic children.
- Share your experiences and ideas directly.
- Interviews can be adapted for your communication style.
- Compensation for your time with vouchers.
- Study runs from June 2025 to March 2027.
Who may be eligible?
This study is looking for two main groups of people to take part:
Firstly, autistic children aged between 9 and 17 years old. They need to speak English at home and be able to share their thoughts and feelings. This could be by talking, writing, or using other ways of communicating. It’s important that any physical or sensory difficulties they have (like problems with movement or hearing) are already managed, and don't stop them from communicating their views clearly.
Secondly, qualified Speech and Language Therapists (SLTs) who are based in the UK and have experience working with autistic children are also invited to join. If you are an SLT and have previously worked with autistic children, your insights are also valuable.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you an autistic child aged 9-17 years old?
- Do you speak English at home?
- Are you able to share your thoughts, perhaps by talking, writing, or using other communication methods?
- Are you a qualified Speech and Language Therapist?
- Are you based in the UK and have you worked with autistic children before?
What does participation involve?
If you decide to take part, the study will involve different activities depending on who you are. Autistic children will be asked to have a chat (an interview) with one of the research team. Some children will take part in a spoken interview, while others will have an interview that uses more visual support to help them share their thoughts. This is a one-off talk designed to understand your experiences and ideas.
Speech and Language Therapists will first be asked to fill out a survey. A smaller number of therapists will then be invited to take part in a chat (an interview) as well, to share more detailed thoughts. Both the interviews and surveys are designed to understand current services and ideas for improvement. The study will run from June 2025 to March 2027.
Potential risks and benefits
Locations (1)
- Manchester Royal InfirmaryApproximateManchester, England
Common questions
What is speech and language therapy?
It's a type of support that helps people of all ages with communication difficulties, including talking, understanding others, and using other ways to communicate.
What does 'autism-affirming' mean?
It means supporting autistic people by embracing their unique strengths and ways of thinking, rather than trying to make them act 'non-autistic'.
Will I have to talk a lot if I don't want to?
No, the interviews for children can be adapted to use pictures or other visual aids, so you don't have to solely rely on talking if that's not comfortable for you.
Who is funding this research?
The study is funded by the National Institute for Health and Care Research (NIHR), which is a major UK-based health research funder.
Where is the study taking place?
The research is being run from Manchester University NHS Foundation Trust and The University of Manchester in the UK.
How to find out more
Carla Rohde
Always speak to your GP or specialist before deciding to take part in a study.
Discussion
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