Implementing Dementia Care Management Into Routine Care in the Region Siegen-Wittgenstein
This study in the Siegen-Wittgenstein area of Germany is exploring how to bring a proven programme called "Dementia Care Management" (DeCM) into regular healthcare. DeCM is a type of support system for people with memory problems like dementia or mild cognitive impairment, and their carers. In Germany, it has been shown to work well and be good value for money, but it hasn't become a standard part of care yet. The study will involve 60 people who have memory problems and/or their carers. They will receive six months of support from specially trained dementia care managers. Researchers will check on participants before the care starts, immediately after the six months, and again later, to see how the care has helped them and what factors influenced the results.
At a glance
What is this study about?
This important study in Germany is all about making sure people with memory problems, such as dementia or mild cognitive impairment, and their families get the best possible care. There's a particular type of support called "Dementia Care Management" (often shortened to DeCM) that has been very successful there. It's been shown to help people and their families, and it's also a cost-effective way to provide care. However, even though it works well, it hasn't yet become a regular part of how people receive care in Germany.
The main goal of this study is to take this effective DeCM programme and figure out how to weave it into the normal healthcare services in a specific area of Germany, called Siegen-Wittgenstein. They want to understand the best way to introduce it and make it available to everyone who needs it. At the same time, they'll be carefully watching to see what kind of positive impact DeCM has on the people participating in the study.
To do this, about 60 people who are living with memory problems or their family carers will be taking part. They will receive six months of support from specially trained professionals called dementia care managers. Researchers will collect information at different times – before the care starts, right after the six months of care, and again sometime later. This will help them understand if the care improved the participants' health and wellbeing, and what made the greatest difference.
Key takeaways
- The study explores how to bring helpful dementia support into regular healthcare.
- It focuses on a proven programme called Dementia Care Management.
- Participants will receive six months of care from trained professionals.
- The study aims to understand the benefits of this care for individuals and families.
- It's taking place in the Siegen-Wittgenstein region of Germany.
- No new medications are involved in this study.
Who may be eligible?
To join this study, you need to be an adult over 18 years old. You must be living at home, not in a care home or hospital, and reside in the Siegen-Wittgenstein region of Germany. You also need to have some form of memory problem, such as mild cognitive impairment or dementia.
It's important that you are able to understand information about the study and give your written consent to participate. This means you should be able to communicate effectively.
You would not be able to join the study if you are already living in a care home or if you have difficulty understanding and communicating information.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you 18 years old or older?
- Do you live at home (not in a care home) in Siegen-Wittgenstein, Germany?
- Do you have a memory problem like dementia or mild cognitive impairment?
- Are you able to understand information and give your written consent?
- Can you communicate effectively?
What does participation involve?
If you take part in this study, you or your family member will receive Dementia Care Management from a specially trained care manager for six months. This care will be provided within the usual healthcare services you access. You won't be given any new medications as part of the study; it focuses on the care management approach itself.
The research team will collect information about you at three different points: once before you start the six months of care, immediately after the six months have finished, and then again at a later date. This will help them understand the benefits of the care and how it's helped you over time. The total duration of your involvement in the study will extend beyond the six months of care, as there will be a follow-up assessment.
Potential risks and benefits
Locations (6)
- Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE)Verified postcodeGreifswald, Germany
- University of SiegenVerified postcodeSiegen, Germany
- Caritasverband Siegen-Wittgenstein eVVerified postcodeSiegen, Germany
- Alzheimer Gesellschaft Siegen-Wittgenstein eVVerified postcodeSiegen, Germany
- Kreisklinikum Siegen, Kliniken für Neurologie und PsychiatrieVerified postcodeSiegen, Germany
- Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE)Verified postcodeWitten, Germany
Common questions
What is 'Dementia Care Management'?
It's a special support system for people with memory problems and their families, helping them manage their care and daily life effectively.
Does this study involve new medicines?
No, this study does not involve any new medicines. It focuses on how care and support services are organised and provided.
Who are dementia care managers?
They are professionals specially trained to provide support, guidance, and coordination for people with dementia and their carers.
How long will I be involved if I join?
You will receive care for six months, and there will be assessments before, immediately after this period, and at a later follow-up date.
Can I leave the study if I change my mind?
Yes, you are free to withdraw from the study at any time without giving a reason, and it will not affect your usual medical care.
How to find out more
Always speak to your GP or specialist before deciding to take part in a study.
Discussion
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