Educational Program for the Multidisciplinary Support of Patients With Endometriosis
This study explores how a new education programme could help women living with endometriosis. Endometriosis is a common condition where tissue similar to the womb lining grows elsewhere in the body, causing chronic pain and affecting many aspects of a woman's life. Standard treatments don't always work for everyone, and many women try to manage their symptoms alone. This research aims to see if a programme involving workshops led by different health experts, combined with regular phone calls from a nurse, can improve the quality of life for women with endometriosis. The goal is to provide ongoing support and help women access services, with the hope that this approach could be used more widely in the future.
At a glance
What is this study about?
Endometriosis is a condition where tissue similar to the lining of the womb grows in other parts of the body, like the ovaries or fallopian tubes. It's quite common, affecting many women of reproductive age and a large number of those who experience long-term pelvic pain. This condition can significantly impact different areas of a woman's life, including their emotional well-being, relationships, and even their ability to work or study. Current treatments often focus on reducing pain or helping with fertility, but they don't always provide full relief and can sometimes have side effects, leading women to stop using them.
Because endometriosis is complex, affecting women in so many ways, experts believe that a wider approach, involving different types of healthcare professionals, is really important. This study is testing an educational programme designed to empower women with endometriosis. This programme will bring together various healthcare experts to offer workshops and learning sessions. The idea is that by understanding more about their condition and how to manage it, women can feel more in control and improve their daily lives.
Alongside the workshops, nurses will provide regular support through phone calls. This continuous support aims to ensure women have a point of contact, can get their questions answered, and are guided to other helpful services if needed. The main goal of this study is to find out if this combined approach significantly improves the quality of life for women with endometriosis. If successful, this programme could potentially be introduced for more women across the UK.
Key takeaways
- Targets women with confirmed endometriosis and ongoing pain.
- Focuses on an education program and nurse phone support.
- Aims to improve quality of life for participants.
- Could lead to wider availability of similar support programs.
- Participation involves workshops and regular check-in calls.
Who may be eligible?
To join this study, you need to be at least 18 years old and have a confirmed diagnosis of endometriosis, usually through scans like a pelvic ultrasound or MRI. You should have been experiencing ongoing pelvic pain for at least three months. It's also important that you can read and understand French, as the study materials will be in that language, and that you are registered with a social security system or similar.
You cannot take part if you've already been in a similar educational programme or received care from at least three different healthcare professionals at the same time in the last year. Also, if you're in an emergency situation, under legal protection that stops you from giving your consent, or if personal reasons like where you live, social circumstances, or psychological factors would make it difficult for you to attend the study's follow-up appointments, you wouldn't be able to join.
Only women are being recruited for this study.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you 18 years old or older?
- Do you have a diagnosis of endometriosis confirmed by a scan?
- Have you had ongoing pelvic pain for at least 3 months?
- Can you read and understand French?
- Have you not been part of a similar education programme or multidisciplinary care in the last year?
What does participation involve?
If you decide to take part in this study, you would first need to sign a consent form to show that you understand and agree to participate. The main part of the study involves attending a series of workshops. These workshops will be led by different types of healthcare professionals, such as doctors, nurses, and other specialists, and will provide you with information and guidance on managing endometriosis.
In addition to the workshops, nurses will regularly check in with you through phone calls. These calls are designed to offer ongoing support, discuss any changing needs you might have, and help you connect with other support services, especially those within regional endometriosis networks. The total duration of your participation would involve attending these workshops and receiving the regular nurse-led phone follow-ups, though the exact number of workshops and calls would be detailed by the study team.
Potential risks and benefits
Locations (2)
- Clinique AxiumVerified postcodeAix-en-Provence, France· Recruiting
- Centre Hospitalier Emile RouxVerified postcodeLe Puy-en-Velay, France· Not yet recruiting
Common questions
What is endometriosis?
Endometriosis is a condition where tissue similar to the lining of the womb grows outside of it, often causing pain and other symptoms.
What will I actually do in the study?
You'll attend workshops led by healthcare professionals and receive regular phone calls from a nurse for support.
Who is running this study?
This study is being run by researchers looking into better ways to support women with endometriosis.
Will I get medication in this study?
This study focuses on education and support, not on giving new medicines or surgical treatments.
Can I leave the study if I change my mind?
Yes, you are free to leave the study at any time without needing to give a reason and without affecting your usual medical care.
How to find out more
Emilie Gadéa, PhD
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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