Hospital Based Registry of Childhood Cancer in Pediatric Oncology Units in French Speaking Africa
This study is creating a special list, or 'registry,' of children with cancer who are being treated in hospitals across French-speaking Africa. The main goal is to collect detailed and accurate information about these children. This includes details like their age, where they live, what type of cancer they have, how they are treated, and how well they recover. By gathering this vital information, health authorities will be better able to plan and provide effective cancer care for children in these regions. It will help them understand the full picture of childhood cancer, where care is most needed, and how to make sure children get the best possible treatment.
At a glance
What is this study about?
Imagine a big, organised list that helps hospitals understand more about children with cancer in French-speaking African countries. That's exactly what this study is – it's creating a special list, known as a 'registry'. When a child comes into one of the hospitals taking part for cancer treatment, their important health information will be added to this list. This doesn't involve any new treatments or medicines; it's simply about carefully noting down details about their condition and care.
The main reason for doing this is to understand the bigger picture of childhood cancer in these areas. For example, it will help doctors and health planners know how many children are diagnosed, what types of cancer are most common, and how successful different treatments are. They will also look at whether children complete their treatment or are lost to follow-up.
All this information is collected to help improve future care. By understanding what's working well and where improvements are needed, health services can make better plans. This means that, in time, even more children with cancer in these countries can get the best possible treatment and support.
Key takeaways
- This study collects information about children with cancer.
- It aims to improve future cancer care for children in French-speaking Africa.
- No new treatments or tests are involved, only data collection.
- Data includes age, type of cancer, treatment, and outcomes.
- Information is kept confidential and secure.
- Families do not need to do anything extra.
Who may be eligible?
This study is open to most children and young people under the age of 18 who are diagnosed with any type of cancer and are receiving treatment at one of the hospitals involved in the study. This means that if your child is under 18 and has cancer, they might be included.
However, children and young people over the age of 18, or those who are found not to have cancer after all, would not be part of this study.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Is your child under 18 years old?
- Does your child have a cancer diagnosis?
- Is your child receiving treatment at one of the hospitals involved?
- Has a medical professional confirmed your child's cancer diagnosis?
What does participation involve?
If your child is included in this study, it simply means that information about their cancer and their treatment journey will be securely recorded. This information will be gathered by the hospital staff who are already caring for your child. It won't involve any extra hospital visits, additional tests, or new medicines beyond what is already part of your child's planned cancer treatment. The data will be collected throughout their treatment and recovery, providing a detailed record of their care and how they are doing.
Potential risks and benefits
Locations (14)
- Hopital Yalgado OuedraogoVerified postcodeOuagadougou, Burkina Faso· Recruiting
- Centre Hospitalier Universitaire Pédiatrique Charles De GaulleVerified postcodeOuagadougou, Burkina Faso· Recruiting
- Centre Mère et Enfant CME-FCB (Fondation Chantal Biya)Verified postcodeYaoundé, Cameroon· Recruiting
- CHU de Treichville à ABIDJANVerified postcodeAbidjan, Côte d’Ivoire· Recruiting
- Cliniques Universitaires de KinshasaVerified postcodeKinshasa, Democratic Republic of the Congo· Recruiting
- Cliniques Universitaires de Lubumbashi (CUL)Verified postcodeLubumbashi, Democratic Republic of the Congo· Recruiting
- GFAOPVerified postcodeVillejuif, France· Recruiting
- l'Institut de Cancérologie de LibrevilleVerified postcodeLibreville, Gabon· Recruiting
- HJRA, Hôpital universitaire Joseph Ravoahangy AndrianavalonaVerified postcodeAntananarivo, Madagascar· Recruiting
- CHU Gabriel Touré (HGT)Verified postcodeBamako, Mali· Recruiting
- Centre National d'Oncologie (CNO)Verified postcodeNouakchott, Mauritania· Recruiting
- CNLC, Centre National de Lutte contre le CancerVerified postcodeNiamey, Niger· Recruiting
Common questions
What is a 'registry'?
A registry is like a carefully organised list where important information, in this case about children with cancer, is collected and stored securely to help medical professionals understand more about a condition.
Will my child receive different treatment if they are in this study?
No, your child will receive the exact same treatment and care they would normally get. This study is about collecting information, not changing treatments.
Is my child's information safe and private?
Yes, all collected information is kept confidential and stored securely in a dedicated online system by a trusted institution in Paris, France.
Do we have to do anything extra if my child is in the study?
No, there are no extra appointments, tests, or actions required from you or your child. The hospital staff collecting the information will do all the work.
Why is this study important?
This study is important because it helps health authorities understand childhood cancer in these countries better, allowing them to plan and provide better care for children in the future.
How to find out more
Brenda MALLON, MSC
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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