Clinical outcomes for patients diagnosed with renal cancer and caval thrombus involvement considering surgery
This study focuses on kidney cancer that has grown into a large blood vessel called the inferior vena cava. This type of cancer often needs complex surgery, but doctors don't currently have enough consistent information on the best way to treat it across the UK. Researchers are setting up the first UK-wide study to collect detailed information from hospitals involved in operating on these patients. They will look at how patients are before and after surgery, and the real-world risks involved. The aim is to use this information to create clear guidelines and recommendations for doctors, improving patient care and making sure patients get the best possible information about their treatment options.
At a glance
What is this study about?
This study is about a specific type of kidney cancer. Sometimes, kidney cancer can grow into a large blood vessel called the inferior vena cava (IVC), which carries blood from the lower body back to the heart. When this happens, it can be a very challenging situation that often requires complex surgery.
Currently, there isn't a lot of consistent information in the UK on the best ways to treat these patients or how to decide who is most suitable for such a high-risk operation. This means that different hospitals might approach things differently, and it can be hard for doctors to give patients the most up-to-date and accurate information about their treatment options, including the potential risks and benefits.
This study is the first of its kind in the UK to bring together information from many hospitals. Researchers will collect details about patients' health before their surgery, how they recover afterwards, and the actual risks involved. They want to understand current surgical practices across the country. All this information will help them create clear advice and a standard way of doing things for this type of surgery. Their ultimate goal is to improve the care patients receive, provide better information, and create a leaflet that can be used nationally to help patients and their families understand this procedure.
Key takeaways
- This study focuses on kidney cancer that grows into a main blood vessel.
- It aims to improve surgical care and provide better information for patients.
- Participation involves no extra visits or changes to your treatment.
- The study gathers current information from many hospitals across the UK.
- It hopes to create national guidelines and a patient information leaflet.
Who may be eligible?
You might be able to take part in this study if you are over 18 years old and have recently been diagnosed with suspected kidney cancer that involves a blood clot (called a caval thrombus) in the inferior vena cava. You would need to have been referred to a specialist cancer team at one of the hospitals taking part in the study.
You would not be able to join the study if you are under 18 years old. Also, if tests show that you actually don't have a blood clot in the inferior vena cava, you would not be included.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you over 18 years old?
- Have you recently been diagnosed with suspected kidney cancer that involves a 'blood clot' (caval thrombus)?
- Have you been referred to a specialist cancer team at a hospital taking part in this study?
- Do you consent to your routine medical data being used for this research?
What does participation involve?
If you are eligible and choose to take part, you won't have to do anything extra beyond your usual NHS care. This study simply collects information from your routine hospital visits and medical records. There are no additional appointments, tests, or changes to your treatment because of this study. The researchers will gather details about your health journey before and after any surgery you might have, as well as information about the surgery itself, as part of your standard care.
Potential risks and benefits
Locations (4)
- Charing Cross HospitalApproximateLondon, United Kingdom
- The Royal Marsden Hospital (london)ApproximateLondon, United Kingdom
- Royal Free London NHS Foundation TrustCity onlyLondon, United Kingdom
- Norfolk and Norwich University HospitalApproximateNorwich, United Kingdom
Common questions
What is 'caval thrombus involved renal cell cancer'?
It means kidney cancer that has grown into a large blood vessel called the inferior vena cava, which carries blood back to the heart.
Will I have to do anything differently if I join the study?
No, you will receive your usual NHS care. The study just collects information from your routine appointments.
What is the main goal of this study?
The main goal is to gather information to improve how doctors understand and treat this type of kidney cancer across the UK.
When will this study start and finish?
It's expected to start in September 2024 and run until January 2027.
Who is paying for this research?
The study is funded by The Urology Foundation (TUF), a charity in the UK.
How to find out more
Martin J. Connor
Always speak to your GP or specialist before deciding to take part in a study.
Discussion
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