Instrumented POsterolateral Arthrodesis for Adolescent Idiopathic Scoliosis
This research is for young people in the UK, aged between 12 and 20, who have a condition called scoliosis – a curve in the spine. These young people have been told they need surgery but are facing a wait of six months or more. The main goal of this study is to explore what might lead to a better quality of life for these individuals after they've had their spinal operation. By understanding these factors, doctors hope to offer better support and care in the future. It's about helping young people with scoliosis feel better and live more comfortably after their surgery.
At a glance
What is this study about?
This study focuses on young people in the UK, between the ages of 12 and 20, who have a condition called adolescent idiopathic scoliosis. This is when the spine curves sideways, and 'idiopathic' simply means we don't know the exact cause. For some young people, the curve is significant enough that doctors recommend an operation to straighten it.
Now, sometimes, there can be a wait for these spinal operations. This study is खासly interested in those young people who are waiting for six months or longer for their surgery. The main aim is to understand what helps improve their quality of life once they've had their operation. 'Quality of life' means how well someone feels overall, including their physical comfort, emotional well-being, and ability to do daily activities.
By gathering information from these young people, researchers hope to identify factors that predict a better recovery and overall well-being after surgery. This knowledge could help doctors and healthcare teams provide even better support and care to future patients undergoing similar operations, ensuring they have the best possible chance of feeling well and happy after their treatment.
Key takeaways
- This study focuses on young people aged 12-20 with scoliosis waiting for surgery.
- It aims to understand what improves quality of life after spinal surgery.
- Participation involves filling out questionnaires about your well-being.
- No new medications or extra medical tests are involved.
- Your contribution could help improve care for future patients.
- You can stop participating at any time without affecting your medical treatment.
Who may be eligible?
This study is looking for young people who meet certain conditions.
You might be able to take part if you are between 12 and 20 years old and have scoliosis, which is a curve in your spine. Your doctor must have told you that you need surgery for your scoliosis, based on specific measurements of your spinal curve. Also, you (or your parents, if you're under 16) must agree to be part of the research after learning all about it, and you need to be covered by a social security scheme, which most people in the UK are.
You would not be able to join if you are over 20 years old, if your scoliosis doesn't require surgery, or if you or your parents don't want to take part. It's always your choice, and there's no pressure to join if it's not right for you.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you between 12 and 20 years old?
- Do you have scoliosis that needs surgery?
- Are you currently waiting for your scoliosis operation (especially if it's been six months or more)?
- Are you covered by a social security scheme (usually if you live in the UK)?
- Have you (and your parents, if under 16) agreed to take part after learning about the study?
- Are you *not* over 20 years old and *not* refusing to participate?
What does participation involve?
If you decide to take part in this study, you won't need to take any new medicines or have extra medical procedures. Your main involvement will be filling out some questionnaires. These questionnaires are designed to understand how scoliosis and its treatment affect your everyday life, and how you feel about things like your comfort, activities, and general well-being. These surveys would be given to you at different times to see how things change over time after your surgery. There are no extra doctor's visits beyond your usual care; your participation is mainly about sharing your experiences through these questionnaires. The study will follow you through your normal medical journey, so you'll be answering questions at specific points related to your surgery and recovery.
Potential risks and benefits
Locations (1)
- Clinique du dosVerified postcodeBruges, France· Recruiting
Common questions
What is 'scoliosis'?
Scoliosis is when your spine, or backbone, curves sideways. It's often diagnosed in young people, and 'idiopathic' means doctors don't know why it happened.
Why is this study only for young people waiting for surgery?
Researchers are interested in how the waiting period and the surgery itself affect young people's lives, specifically focusing on those who have a longer wait time.
What does 'quality of life' mean in this study?
It means how well you feel overall, including your physical comfort, how you feel emotionally, and how easily you can do your daily activities.
Do I have to take new medicines or have extra tests if I join?
No, you won't take any new medicines or have extra medical tests. Your participation is about sharing your experiences through questionnaires.
Can I stop participating if I change my mind?
Yes, absolutely. You can decide to stop participating at any time, for any reason, and it won't affect the medical care you receive.
How to find out more
Jean-François Oudet
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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