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Chronic Uticaria 17 years

Posted , 6 users are following.

rebekah97346
rebekah97346

I've had this condition since I was 14.  I have to take anti histamines everyday and if I go a day without suddenly i will become very itchy and it litgerally spreads all over my body and i come up in red weals that look like horrific scars.

I am worried that I have had the condition for so long and I have never seen a specialist.....only my doctor who says theres nothing they can do.

Does anyone know of a specialist i can speak to as I am worried that I may have an underlying condition....just is a long time to suffer with this for.  Thank you

0 likes, 8 replies

8 Replies

  • younusjavaid
    younusjavaid rebekah97346

    Posted

    I was too diagnosed with urticaria once and hence treated well and timely with my doctor here in Pakistan. I was given antihistamines too with a lotion and some injections leadng to timely recovery. His name is was Dr.Haroon.
  • jill43168
    jill43168 rebekah97346

    Posted

    Please try Xolair shots, I had horribly hives for months and months that wouldn't go away with diet or anything. It is a fairly new medicine, but I saw results right away. I have gotten the shot 4 times now, (4 months) and I haven't had a hive in weeks!
  • ann09075
    ann09075 rebekah97346

    Posted

    Hi. I have suffered from chronic urticaria for 15 years. I have been on anti histamines, steroids and xolair. Xolair worked one year then it stopped. However you should try it because i was a very unusual case where it stopped working. I was desperate and flew to Denver and recently went to visit an Allergist and Rheumatologist that confirmed it is autoimmune related. She put me on the same medicines as my mother who has rheumatoid arthritis - methotrexate!. Eventually I will start plaquenil which is an antI maleria drug. By the way I have no allergies, no medical issues other than hives that come and stay for many many months. I was only able to keep the hives down with prednisone and that has really hurt me more. I wish you luck but trust me....find and Allergist and Rheumatologist that can test you in a complete manner. I suffered for so long with a great Allergist but this was beyond her expertise. I wish you the best!
    • rebekah97346
      rebekah97346 ann09075

      Posted

      Thank You so much for your advice! I have written down the medication and treatment that you have mentioned! Thank you for your help and I hope you will be well! :o) 
    • ann09075
      ann09075 rebekah97346

      Posted

      the doctor i am now seeing is Dr julie patel in houston. I previously saw Dr truong at national jewish hospital in Denver when I didn't know what else to do. My Allergist in houston was at her wits end and was just as frustrated as me. She was the one who recommended national jewish. They told me that mexotrexate is the safe way to go first then if that didn't work they have 6 more medicines that they can try. Good luck and I hope my experience will bring you to a better place.
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