Advice/support/experiences please-ovarian cysts?
Posted , 12 users are following.
I have cysts on both sides. left hand side about 11cm, right hand side 10cm.
I am being sent for an "urgent" MRI in 7 days. Rather worried how I will stay still for a whole hour all by myself in the MRI? Any tips please?
Then I go back to the consultant the week after to see if they are cysts or cancerous and how we will treat them.
I am having dizzy spells where I feel that the world is turning to the right. Constant back pain that feels like something is pressing on my back which makes me feel like I need to go poo.. Gassiness. I can feel the cysts as painful lumps from the front too. My stomach is hard and stretched.
I'm feeling very tired from the discomfort and worry.
My appetite is still pretty normal.
Sex is a little painful in certain positions as my tummy is tender and I can't fold up my body properly. I'm not able to move as easily.
They have been "watching" the cysts for 2 years now and have seen them grow from 5cm to 7cm to 11cm. Only now are they doing something about it.
My Ca125 test was 31 six months ago, it is now 37.
I'm very anxious and on edge.
I have no idea what the 'cysts' are made of though my last report said they have a "mild vascularity".
Also, I am diabetic and I have PCOS.
Any advice or support ladies? I need it to get through this uncertain time.
5 likes, 260 replies
maryvee
Posted
dobb34487 maryvee
Posted
I know how worrying this is and the lack of information and support.
I only found out I had another Dermoid growing 2 weeks ago and I was gutted but now relieved that it's been found and I wasn't imagining it all,I just thought it was pre menopause.
My Cyst appears to have calcium and blood and possibly hair in and a small chance of Cancer.My last one had Oily sebaceous stuff and a piece of pointy calcium and no Cancer.So I'm hopeful that it'll be the same outcome.I won't know until it's removed and analysed.
Feel free to ask me anything.It does help having these forums
maryvee dobb34487
Posted
I thought I might have been perimenopausal too the consultant says it is probably the cyst altering my periods.
I'm hoping they can just remove the cysts and leave everything else intact. I think I may have a lot of adhesions from a cesarean 26 months ago. It was at 25 months ago that they firs found "a collection" in my abdomen and they decided that as I was just after the birth that it may just be reabsorbed by the body and just go away.
siulolo69910 maryvee
Posted
I am 44 too our symptom is slightly different .Your period is irregular and mine isn't. Your cyst grew slow and mine grew fast affecting my bowl. I had to have a colonoscopy after my MRI due to my severe constipation and they found endometriOmaha in my sigmoid. So myou surgery will be a major one. I will be having laparoscopy, hystrectomy, and resection of my sigmoid rectum.I am praying for a miracle. I am trying to gett mind of it today since I was toled by the gynaecologist.
Let me know about your MRI .
Best wishes and prayer
elizabeth142 maryvee
Posted
Why have they left it this long?
I'm surprised you being diabetic Aswell.
I had an ovarian cyst when I was 19 that was back in the begging of the 80s!
I had all these same pains. I don't understand why they have left it so long.
I would press them to get you sorted right away!
2 years how crazy is that!
They should have find something about this ages ago.
I hope you get sorted out now.
You will feel better when they are gone!
From liz😀
maryvee elizabeth142
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dobb34487 maryvee
Posted
Congratulations on having a little one,see it as a good distraction and try to focal on the possitive. The stress and worry can drive you mad,and add in a bit of Googling horror stories!!!
Best of luck with everything x
maryvee
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elizabeth142 maryvee
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The MRI shows up just about everything..
I had one fine for my lower back.
They will see everything on the MRI
Stay positive
God bless.
Liz😀
dobb34487 maryvee
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maryvee dobb34487
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dobb34487 maryvee
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I try to stay calm as it sets my IBS off and then I get snappy and not nice to be around.I get busy and try to occupy my time.Distraction really helps
dobb34487
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maryvee dobb34487
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dobb34487 maryvee
Posted