Tibulone withdrawal
Posted , 21 users are following.
At 60 I thought it was about time I came off Tibulone (Boltin)after 7 years. It has been 3 months now and I am seriously considering taking it again. I have awful hot flushes, insomnia and just don't feel so well without it. Both my hip joints have started being really stiff and painful since I stopped taking it. I did put on some weight but had no other side effects it was wonderful. Weighing up quality of life against the risks makes me think it's worth taking. Anyone else had experience of withdrawal, how long does this misery go on for?
1 like, 29 replies
lyndsa
Posted
Old_NIck_1
Posted
I was off the Boltin for three months and the symptoms were getting worse not better, never again. After this experience I am going to kill anyone who suggests I stop taking it again!!!
hot_flushes
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Old_NIck_1
Posted
Old_NIck_1
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hot_flushes
Posted
The problem with a lot of these 'randomised' studies is they can be biased depending on the researcher's focus of interest. Someone else can come along and look at it from a totally different angle and get a completely different outcome; happens all the time! Anyway, I took the decision myself to come off it last year because I knew that whenever I did, I was going go straight into the menopause because i had a total hysterectomy and BSO when I was 41 and thought better to get it over with sooner rather than later.
I've since changed my mind!
Andi
Posted
However, I have always had pain I think from ahesions, caused by endometriois. It has started getting worse again.
From 2005 i gained, weight, developed dark patches on neck, downey hair on face (slight), forgetfulness/so difficult to concentrate, hideous crepey skin on decollette (chest), sagging aging face, all within 2 years.
Doctors not interested, they don't know. I don't make a fuss. Difficulty sleeping. No motivation to do anything. Pretty much dragging myself along for 7 years. And that's with Livial!!
I am worried to keep taking it in case all this is caused by it and take a chance on what symptoms I might get. And I just read that Livial can cause endometriosis to get worse, possibly cancerous - I have it still in my abdomin??
I think I still get some symptoms, irritated dry, vagina, night sweats, sometimes! Dry skin. My sister looks better than me and she is 7 years older. Never been on HRT herself.
If it gets worse without it, I am seriously worried for my sanity.
Anyone else similar to me?
Old_NIck_1
Posted
Old_NIck_1
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Andi
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The one thing Tribolone seems to have helped with is the hip pain. It never occured to me to go back to the doctors, but i think i should, feel like i have wasted 7 years feeling like a depressed old moany minnie.
All the advice is be checked out once a year by GP, but they aren't interested - too busy!
Thanks for the advice. Andi.
jane3
Posted
I suppose Livial works for some women but it was a disaster for me.
Andi
Posted
Wow, reading your post, so intersting, and so much like my experiences, including the finger joint pain. I am 53, and fall asleep around 8 pm most nights. Then difficult to sleep at night. So tired and depressed probably for obvious reasons. Why have I never thought to try something else for 7 years, I am cross with myself now. Although I have been several times to docs with a list of these things and been sent away with no suggestions. As if this was normal. I thought HRT gave you a new lease of life, so blamed myself.
Although some post suggest these symptons happen without Livial. Quite confusing.
Some times I wondered if I was taking a placebo sugar tablet?
I have started reducing by one every other day. I will update on this experiment. Maybe try the Cohosh and Clover!
Good luck and good health to all you ladies.
Andi
Andi
Posted
Has anyone tried Serenity Cream (internet purchase)?
lynnspain Andi
Posted
I too am on my withdrawal weeks on my 3rd week and omg the hot flushes are unbearable and i have no energy i feel light headed and dizzy. If it gets any worse i'm straight back to dr. So i hope you continue to feel well.
jane3
Posted
I'm back on Black Cohosh now - taking about 4 a day one day then one or two on other days. I'm also taking red clover. My aching joints have subsided and I don't feel the exhaustion that I was feeling a few weeks ago, or the very low feelings I had on Livial. I think HRT can work for some people and not others. I cycle every day to work and go to the gym once a week and have been for a few years now, and I try to eat sensibly (vegetarian). I'm not overweight. I won't be going back on HRT having tried three lots now. My mild hot flushes are non-existent at the moment but I think regular exercise works wonders too. My gynaecologist said that the flushes do subside naturally but I have heard of them lasting years in some women! What a prospect.
I think it's hit and miss really as to what works and what doesn't with different women. We are all different and I think we have to use trial and error to find what works for us, and what we feel comfortable taking or not taking, and our medication has to be tailor-made. I came off HRT of my own accord and I'm glad I did. Herbal remedies are quite potent too so care is still needed when taking these - do your research though and you may not need HRT..
In reply to Andi - glad you are feeling no ill-effects with the Tibolone withdrawal..I haven't tried Serenity Cream....