Does Physical Therapy Help or Hurt
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Hello everyone. Looking for some insight here. I am not the typical Chiari 1 patient, as far as I can tell. I am 48, and just recently was diagnosed. On top of the Chiari I also suffer from limited mobility in my neck, from scarring.
Looking back, I have had some symptoms of Chiari for about 2 years now mainly, vision, fatigue, and headaches, I assumed it was just stress, but it was not until recently when I took a job in a factor, when symptoms got worse. I collapsed twice while on the job. So now I am currently on sick leave till September.
I have had 2 MRIs and a CT scan. I have 5mm cerebral ectopia and a binine tumor. Yes sometimes I have wondered if I have rocks for brains, this just confirmed it.
My symptoms are aggravated by physical activity. I am carefull not to lift any thing too heavy. I find it very difficult sometime to walk on hard floors. I've been haveing to use the motorized carts at the grocery, and now I constantly see flashing spots in my vision.
Currently my neurologist has me seeing a physical therapist and a massage therapist. I have been going now for about a month and I am getting stronger, but I am not sure better. The therapy has been concentrating on my neck, arms, and back. Unfortunately my back is now hurting, and I am still having fitigue and dizziness symptoms, which has me doubting PT.
Sorry this is getting long winded. I guess my question is. Does anyone here else have experience with physical therapy as a treatment and does it help. Thank You, and please forgive my awful spelling.
0 likes, 30 replies
b2wc97455 TanyaVE
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I just started in this this group, did your neurologist diagnosed you with Chiari 1 yet?, its look like that was the symptom, yes, I have exactly the like wise symptom as yours, but mine just getting worse-as I was tubborn kept working, in the end my body telling me to give up...and I was collapse one day, I was in the state of house bound for sometime and a waiting for surgical now, I have physio therapist, accupunture, durgs - and drugs and drugs (did not help at all) until I found this website..so I have been taking this certain supplements which helped me a lot..I did not believe at first ..I though it was scam.,but after taking it for 2 months and change my life style..I stopped taking my drugs..and start having less pain..and getting walking again...(slowly..slowy..catcth a monkey..though...) but I have to resign from my work...well I hope you getting better..I am now trying to get a support group in my area and also try to raise the level of awareness by putting seminar for all my health care professionals in Dorset...coz they have not got understanding what CM is
yeltzer TanyaVE
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b2wc97455 yeltzer
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Farmerlady TanyaVE
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I would think that physical therapy on a neck with chiari would have to be very caeful. Neck stretching caused me to have more symptoms and massage would aggravate the nerves that are already inflamed. I did find that static neck exercise (where you push your head against resistance without moving your neck) is very helpful to me. I started doing it as soon as I knew I was going for chiari decompression surgery and resumed as soon as I could after my surgery. I think that strengthened my neck muscles and have made my recovery go quicker. If I don't do the exercises now I start to get the symptoms again.
Just be careful with the therapy. Best wishes!
Laura
b2wc97455 Farmerlady
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So my understanding is that you already had Chiari decompression surgery...please could you share with me..do you think you have done the right thing by having that surgery?, so you still having the symptom if you do not do exercise?..onn the other hand can you suggest me what do I expect or ask my neuro surgeon when I see him next month for first initian of appointment to discuss what next step he should do (I really like the idea of operation) as I have enough of spending so much many with lots supplements (when I stopped taking the supplements = the symptom start again)
Farmerlady b2wc97455
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I am glad I had the surgery bc my symptoms really got bad. I was lucky bc I only had to wait a month to have the surgery from the time my symptoms got bad, and my surgical experience at Duke U. was very good. And my symptoms were better immediately. I still get to feeling kind of bad if I do too much now after 4 months so I have to be careful of my activities or pay the price of a week of feeling bad.
I would ask where they will get the patch for your surgery (they cut the dura and add space to it with a patch). How many of these surgeries have they done? My surgeon said something about women having some neck problems after surgery so I would ask more questions about neck problems after. My Dr. put all kind of nerve blocks in the area of the surgery while I was under so after surgery I had minimal pain for almost 2 weeks. You could ask about that. When the blocks started wearing off I felt some old symptoms and that worried me but they went away.
I believe the neck exercises really help me bc my longest standing symptoms were pain on one side of my head in the ear and the temple area where the nerve for that area comes from the space between the first and second vertebrae. So I figured strengthening the neck muscle would help that and it really has. I do "static" exercise which is pressing the head against an object that doesn't move. I do all 4 sides of my head. I get down on all 4 and lean my head against the couch or chair cushion pushing for a count of 20.
That's all I can think of. I wish you the best! Hope you feel better!
Laura
b2wc97455 Farmerlady
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Thank you for that, so just to summarize if you have not done the surgery you think that it might got worse?
Before and after the surgery did the neuro specialist give you any medication at all to take, if they did what was it?
I went for accupunture once a week, the accupunturist told me that if I carry one for another 12 sessions I will feel much better, he explained really better (well) than my specialist, he told me basically its like polip/hernia....the rpessure of the inside is highest that outside..if he can get the circulation back to normal...then I should not need the surgery..I am not really sure I live in Dorset - UK, the next surgeon closer to us is in Southampton..can you tell me how do I contact Dr flint..or who is the best neuro surgeon who has done lots of operation on this kind ?
b2wc97455 Farmerlady
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Just curiousity, I know you told me that you feel much better after operation but then you still feel bad after 4 month if you do too much..can you do a normal task such as daily chores and are you back to work or what?
Farmerlady b2wc97455
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Does that help you? I hope so.
Laura
b2wc97455 Farmerlady
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So, you glad that you have done the operation?
I have not have the surgery yet, I am seeing the neuro surgeon in early September, I have taken your note to ask (thanks Laura..!) any other suggestion
Farmerlady b2wc97455
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I am glad I had surgery. Now I have to be patient with recovery. I've been gaining weight lately BC I'm not playing tennis like before and that is frustrating. But my life is good and I am happy.
Blessings!
b2wc97455 Farmerlady
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Thagt is such a great news, is just when I read about it...people seems unhappy after the OP..just make me worried, yes I used to play squash and tennis....let alone playing them .., I can't even walk properly now.. How mnay hour was the OP...was it painful...how many weeks after the OP you recovered?...whay do you need Xanax to help you sleep?..on the other hand.. have you tried the ginger and tumeric each morning and each evening that help you with your hay fever, I used to bleed each summer...I have Ceterizine (clarytin didn't work for me - I used to sale them as a medical rep.), baconase, symbicort and eyes drops, now I dont take any of them..ginger and tumaric seems do the trick for me..
SO why those people say..they still got terrible headache after the Op
Farmerlady b2wc97455
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My symptoms didn't get as he as yours before surgery I guess. I hope it relieves all your symptoms with no head aches. I don't know why they still have headaches.
Farmerlady b2wc97455
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b2wc97455 Farmerlady
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1. Tumeric and Ginger - I used it every day - I bought a fresh ginger first thing in the morning I slice 2 or 3 slices plus 2 or 3 slices of lime pour with boil water 500 ml and in a cup i put half tea spoon of tumeric powder and honey then I pour the mixture of ginger and lime into my cup with tumeric and honey on it (every morning without fail) not only cleanse my toxic but its reduce my inflamatory (less ache and pain with my fibromyalgya) and also helping me with my allergy.
2. In term of the OP. It seems its worth while for you - and I am the same with you I passed out last time when I cough.., but if I sneeze I feel I was going to pass out..and it will last about 2 minutes before I can go back to a stable condition.
3. What I really would like to know is; how do you feel now? in regard to doing a daily chores?
Farmerlady b2wc97455
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I think the surgery will definitely stop you from passing out on coughing and feeling so bad on sneezing. I had that when I coughed before surgery. I've been sneezing like crazy lately with no head pain.
Thanks for the info on the ginger and tumeric. I'll give it a try.
Best wishes,
Laura
b2wc97455 Farmerlady
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I amsorry to hear about your condition this week, when you say bad week, does it stop you for doing anything? are you taking anything for your Chiari after the OP , I peesonally think that CM can also caused feeling like you have joint pain it is effecting all of your nerve and muscles and joint throughout your spinal cord..
Farmerlady b2wc97455
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b2wc97455 Farmerlady
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Farmerlady b2wc97455
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b2wc97455 Farmerlady
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Farmerlady b2wc97455
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b2wc97455 Farmerlady
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Farmerlady b2wc97455
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b2wc97455 Farmerlady
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