Gabapentin Withdrawal IMPORTANT
Posted , 149 users are following.
I spent 4 days in intensive care following a spinal operation. This was found to be the result of the sudden complete withdraawal of Gabapentin.
For 3 whole days I was, to quote my surgeon, 'on another planet.' The only drug, of the many I was taking for pain, the only one that could not been given in an alternative form was Gabapentin. Fortunately, on the 3rd day there happened to be a charge nurse on duty who had seen a [b]previous case similar to mine, also resulting from withdrawal of Gabapentin.
My husband insisted that some way was found of administrating the drug. (I myself was una\\ware of any of this until later). There were objections from the staff since I would need sedating and was unable to consent! My husband over-rode them - thank goodness - and said he would take full responsibility and 'just do it.'
Some time after he left they did sedate me and administer the Gabapoentin. Then, as now, I had been taking 900mg 3 times daily for nerve pain, so I had obviously fallen off a cliff in terms of amount taken.
The following morning I woke up back to normal and asked for a cup of tea. When my husband arrived I saw him wipe tears from his eyes. If not back from the dead I WAS back from a living nightmare.
WHAT CONCERNS ME MOST IS THAT THIS WAS DISMISSED BY THE MANUFACTURERS WHEN ONE OF MY CONSULTANTS MENTIONED IT. YET IT IS A TERRIBLE REACTION, ALBEIT NO DOUBT EXTREMELY RARE. IT SHOULD BE MAD E KNOWN:!:
16 likes, 474 replies
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Tabstoyou pins
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mary41637 pins
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fsrvival mary41637
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dave34467 pins
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di14407 mary41637
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jessica87017 pins
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Reading thi Scares me. I am a 37 year old mother of 3. I hurt myself at work as a result I have been on 3600 mg a day of gabapentine for a year and a half. I went without it for 3 days once I thought I had the flu I was so sick and didn't sleep for 3 nights. Not knowing it was withdrawl my Dr assured me it's non addictive. The 3rd night at around 4 am I was in lots of pain I looked up another medication they had tried me on I was going to take it for pain.and there was a huge thing about gabapentine withdrawal. I was so scared. The worst part was I went to pick up my prescription and i had been waiting for my medical to kick in it hadn't it was 100 like it is every month, I explained to the pharmacist I didn't have it on me can she just give me enough for that day and night I'd be back tomorrow to get my script. She said no. Being a pharmacist she would know I would go into severe withdrawal. 3600 mg cold turkey. My boyfriend came got me my boys brought my prescrption we went to his house I could barely walk straight. I laid in his bed until I fell asleep. I Was a mess for days. I'm trying to get off it now. But I'm so scared of withdrawal now
brenda20365 pins
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kirk51905 jessica87017
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kirk51905 brenda20365
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brenda20365 kirk51905
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kirk51905 brenda20365
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ann59425 kirk51905
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kirk51905 ann59425
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shorttcake521 kirk51905
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?? I take magnesium every day. I'm not supposed to be taking it with Gabapentin? Why not? Thx!
kirk51905 shorttcake521
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emma69977 kirk51905
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Was put on Gabapentin and Oxycodone after foot surgery, took for 6 days felt so terrible went cold turkey of both . Feeling terrible, pharmacist says it's withdrawl, from the Gabapentin and take tylenol, any suggestions ?
kirk51905 emma69977
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emma69977 kirk51905
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kirk51905 emma69977
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kirk51905 emma69977
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kirk51905 emma69977
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emma69977 kirk51905
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kirk51905 emma69977
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kirk51905
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emma69977 kirk51905
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kirk51905 emma69977
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kirk51905 emma69977
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kirk51905 emma69977
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kirk51905 emma69977
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kirk51905 emma69977
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kirk51905 emma69977
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kirk51905
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emma69977 kirk51905
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kirk51905 emma69977
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rebecca62207 kirk51905
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kirk51905 rebecca62207
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2redhot kirk51905
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I don't know what planet you're on but Ativan is not a narcotic. It is classified as a benzodiazepine which is a tranquilizer. It is however a controlled substance. Please stop giving information that is incorrect. Your advice concerning magnesium is also a problem. Taking magnesium and gabapentin is not necessarily off limits. One withdrawing from gabapentin can certainly take it to kept the body happier since both use the same receptors. That said, taking both without considering that could cause one to not receive the desired effect of pain relief etc. Rehabs use magnesium as an adjunct during withdrawal. Don't post bogus, inflated or uninformed information.
coca_51 2redhot
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Thank you God and people who post their experience with this medication
Guest 2redhot
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I'm living proof that magnesium as well as aluminum and calcium can cause the onset of withdrawl symptoms if taken within 2-3 hours on either side of taking this medication. I read that magnesium helps ease withdrawl symptoms so I started taking it....wrong!!!.....it shares and competes for the same receptor site. Same as oxygen and carbon monoxide, which can cause death. Sever and sudden withdrawl of gabapentin can also cause death.
Ok...I'll give you the narcotic blerb; however, benzodiazepines are considered mild tranquilizer at best. Tranqeluzers have been pulled off the US market decades ago.
Do not minimize all the good help the writer has provided to many of us. As of yet there is no/zero/zip gabapentin ween schedule for clinicians to implement. Most clinicians are not aware it's addictive.
Thanks to all contributors as we are making progress as we titrate down by trial and error.
Remember, don't give up we can and will do this!👣
kirk51905 2redhot
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when i was in the emergencry room and the doctor prescribed ativan he told me it was a narcotic so you will have to go tell the doctor its not a narcotic. and here is a link saying you cant take gabapentin with magnesium http://forums.prohealth.com/forums/index.php?threads/neurontin-and-magnesium-users-must-read.76086/
kirk51905 Guest
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jenniemayd mary41637
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Hey there, I was wondering how you had fared? Reading this post is eerily similar to what my husband has been experiencing. He was on 1600 mg of gabapenton for several years, we lost our insurance and he went off it completely last March no one telling us not too. He has been "mysteriously" ill getting steadily worse. I'm wondering now if the drug is involved.... he has severe nausea and vomiting, has lost 60 lbs in 6 months, has tremors, muscle loss, loss of coordination, and can no longer walk unassisted. On top of bone loss, and unbearable joint pain... not one doctor has mentioned Gaba problems.
kirk51905 jenniemayd
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linda88918 jenniemayd
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Jennie, Please give my sincere sympathies to your husband. As someone who has experienced a very severe reaction to Gabapentin (both start up the third time and then discontinuation and withdrawal), I hurt for both of you. I found many of my symptoms to be similar to those of people suffering from benzodiazepine withdrawal. (Both gabapentin and benzodiazepines are Gaba medicines.) I found a lot of support and encouragement from people on this site and the benzo buddies site. I did experience nausea, weight loss, and tremors, but because I did not have balance issues I cannot comment on your husband's exact symptoms. I know for my symptoms, I was told it could last anywhere from six months to 3 or more years. I am now at the one-year mark and I'm doing much better. I still have a few minor symptoms, but they are barely noticeable and do not interfere with my daily living. I hope you get a chance to consult with a physician regarding your Gabapentin suspicions. Since many doctors seem to be uninformed, it might be helpful to print out some information from this site and maybe from the benzo buddies site, if applicable, to support your theory. My best to both of you.
TheClosetPotter kirk51905
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kirk51905 TheClosetPotter
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kirk51905 TheClosetPotter
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garnella24377 brenda20365
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kirk51905 garnella24377
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linda88918 garnella24377
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garnella24377 linda88918
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linda88918 garnella24377
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Garnella, I know I had bloating and probably had gas too (though I didn't write that down in the notes I took). What I mainly remember is that I was very uncomfortable and in pain and slept with a heating pad on my belly and abdominal area at night and also laid down with the heating pad when possible during the day. The heating pad seemed to help a little. I lost weight because I didn't feel like eating. It was definitely NOT a fun time!
d53545 kirk51905
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Could you let me know why I can't take tylenol while trying to get off gabapentin? It was helping with headaches and I take it at night with benadryl to sleep.
Thanks
linda88918 d53545
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Hi d. I'm wondering if you can't take tylenol because someone told you not to, you read something, or it has negative effects on your body in some way. If it is affecting your body in an unusual say, I can tell you that the withdrawal does weird things. For almost a year after getting off "g", when I took Tylenol, i felt "buzzed." The withdrawal affects everyone differently, but that's how it affected me.
kirk51905 d53545
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d53545 linda88918
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Hi Linda,
No, I was not having trouble taking tylenol but I had read on here that you should not take it during the process of coming off gabapentin and was wondering why. It helps me and I couldn't find any other information anywhere with a reason not to take tylenol, along with benadryl. I took it last night and slept well. I slept 7 hours, this was my second night without any gabapentin. I have been only tapering from 100 mg. at night, but had pretty bad withdrawl effects for 2 weeks when I went from 100mg to 50mg. I hoping the rest of the tapering goes better.
I hope you are feeling better now.
linda88918 d53545
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Hi again "d". I am pretty much back to normal now. I sincerely hope the rest of your withdrawal goes well. You are doing it the best way -- tapering slowy to minimize side effects. I've done it the right way and the wrong way, but also learned that once you've been on and off, you can get a different reaction if you go on again. While the 1st time I had a great reaction, I've also suffered the most severe reaction possible going on and withdrawing, so I never plan to ever try the medication again for any reason!!!!! As far as tylenol, I have learned from others that some handle it fine during withdrawal and others do not. I did not for awhile, but if I was in real pain or suffering, I did occasionally take it. It just made me feel more "buzzed" after I took it.
stefanie94404 kirk51905
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im on day 8 quit cold turkey my withdrawls are sweating, anxiety, diahreah, depression, feeling like its never gonna get better. heart racing, constant fear and worry. on day 8 i feel a lil better but have fear im never gonna be the same. can ativan help me with withdrawls or snything else? when am i gonna feel like me again ? i got 3 girls and i feel like a bad parent cuz im so out of it feeling like im gonna lose my mind sometimes. i wake up dizzy and hungry but dont wanna eat. get nsuseaus when i do eat
linda88918 stefanie94404
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Stephanie, I am so sorry about what you are going through. I understand since I have experienced it and I know how difficult it is. Can I asked why you quit cold turkey and what dose you were taking? Gabapentin affects GABA (gamma-aminobutyric acid -- a “calming” element) in the body and can be very difficult to get off of because one’s body will adjust to the artificially induced GABA from gabapentin and start to produce less of its own. If taken incorrectly, stopped abruptly, or tapered too quickly (or the wrong way), before the body can rebuild, lots of “uncalm” things can happen (insomnia, anxiety, sweating, heart palpitations, panic attacks, muscle tightness & pain, twitching, akathisia, digestive issues, breathing difficulties, nerve excitement--burning, itching, tingling, numbness, etc) because there is not enough naturally-produced GABA available. It takes much longer than most people expect, for the body rebuild GABA, which is why a slow taper is so important. The window for reinstating without negative effects is generally thought to be 3 weeks. If you can get back on your dose or even a somewhat lower dose, you symptoms should resolve. Then you can do a VERY slow taper and may be able to get off of gabapentin with little or no problem. If you try to ride this out, you could be suffering for months with little or no let up. (People's reactions vary, so no one can say exactly how long your withdrawal will last.) Typically, withdrawal takes much longer with GABA meds than with opioids or street drugs. If you do reinstate your dose, be sure to taper no more than 10% every 2 weeks or more. Since the effects are so difficult, some taper 5% or even less and hold for a month or more before lowering their dose. Please be careful. Effects from cold turkeys last for years with many people. If at all possible and for the sake of yourself and your children, please try to reinstate. (Hopefully your doc will understand, but since the majority don't, you may have to insist.)
stefanie94404 linda88918
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i was taking them without a prescription. off the street. i would sometimes get 20 and take 4 a day of the 400s then some days i wouldnt even have them and be fine. i am now 16 days without. dr put me on vistaril for anxiety. its helping but i still feel it from time to time. your comment got me freaking out now tho. i was thinking i was doing good. now im worried.
heidi55209 kirk51905
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Just a side note, Ativan is a Benzodiazepine, not a narcotic. However it can be addictive and withdrawal symptoms can be just as bad as the Gabapentin, if not worse. In some people it can last for months.