Grommets: Do they really work?

Posted , 12 users are following.

Would appreciate any feedback re grommet operation.  ENT specialist wants to put in both ears but I thought the problem was only in one ear??  Having said that,both ears were virtually 'blocked' for almost 6 weeks. Now, 2 weeks later it is mainly the right hand side.  If I tilt my head to shoulder everything clears and my hearing is fine.  I would love to know if anyone experiences this?  Before insertion of grommets I am to have the following tests:  VNG/ENG + Calorics, Computerised Head Impulse, Computerised Dynamic Posturography.   Has anyone had these tests done and if so what did it solve?   After 9 years of this incidious disease which has robbed me of the ability to work, socialise, and partake in whatever used to be 'normal activities' I am at my wits end.  Depression has set in big time. I just don't know what to do any more.  I am so sensitive to all drugs, so rarely go down that path.  Currently I am on 1x bendrofluorazide per day, but don't feel it is making any difference whatsoever.  Betahistine gave me a massive headache, urea crystals sent me 'off the planet' as did prednisone.  I have always been athletic and had a very healthy diet.  Anyway, would LOVE some communication re the above as I feel so incredibly alone in this journey right now.   

0 likes, 18 replies

18 Replies

Next
  • Posted

    Hi Carly,

    I'm so sorry to hear you're going through such a rough patch at the moment. I recently went to see a specialist and they told me that there isn't any point in me having grommets, I'm not sure why but they said that if I get really bad they would consider doing the injection (may cause permanent hearing loss).

    In my experience betahistine and bendroflumenthiazide don't really help me at all, the only thing that has worked is the travel sickness tablets.

    However, when o have hearing loss and tinnitus no matter what way i tilt my head it doesnt clear like yours.

    It's good that you've found the forum as we're all here to help each other. I hope it gets better for you soon!

    • Posted

      Thanks for your reply Melanie - so appreciated.  Good to know you are not bad enough to have the grommets.  Hopefully it won't get any worse for you.  It's tough when it does.
    • Posted

      It's not that, the specialist said there wasn't any point in it but I don't know why. I've been reading the forum and it seems like it's worked for others. I know how life changing this illness can be, I've been having constant spins since before Christmas, I have a 9 month old boy and some times it's just too much to leave the house. Last week I got a hearing aid and I'm only 27.

      It's good to know that there is support on here, so if you're having a bad day we're all here to keep you positive. Hopefully the grommets will be great for you! xx

    • Posted

      what are grommets?  Please explain cause I would like to ask my doctor about them.  thank you.
    • Posted

      They are very small tubes that are inserted into the ear surgically to allow air to pass through into the middle ear, which in turn releases pressure buildup and helps clear any excess fluid.  Hope this helps.
  • Posted

    Hi Carly I was diagnosed last August with MD following six months of spins and various other symptoms. I had all the tests you have mentioned. My consultant suggested having a grommit and to be honest I would have tried anything!!! I had mine inserted on the 28th August last year and immediately felt the benefits I have had no spins and all my other symptoms lessened within a few weeks. I am really please to say that it's worked perfectly for me 😃 I got the odd swishing feeling & fatigue but no full blown spins. It's a very simple procedure literally takes a minute to insert, I would day definitely worth giving it a try and hopefully will be as successful as mine, good luck. If you need any more info just let me no Abby x
    • Posted

      Abby, I would love to know a little more.  Did you have dexamethasone perfusion  (steroid injection) as well?  How long are your grommets supposed to stay in?  Then do you need to repeat the procedure?  When you had them first put in you say you had immediate benefit? Did it not feel uncomfortable for a while?  Can I ask what your other symptoms were?  Lots of questions I know, but I'm so uncertain of anything new right now, but a part of me will just try anything!! 
    • Posted

      Hi Abby. I was diagnosed 3 years ago. I've been having spins constantly since the beginning of January. My next hospital appt is in March and I'm considering asking for a grommet as I've heard good things about them. Am I right in thinking they don't affect your hearing at all? As I know the gentamicin injections can make your hearing worse than it already is
  • Posted

    Hi, no i didnt have the steroid just the grommet. Basically started in february last year having really bad vertigo attacks, i couldnt walk was crawling around, vomitting, fulness feeling in my right ear with hearing loss, was unable to focus on things.  Following attacks which were nearly everyday i would feel exhausted, weak, loss of balance, headaches, neck & shoulder pain, i also had a fogginess in my head unable to concentrate and unable to read without sending me funny (i now know they call this nysastagmus, which i do still have problems with when iam tired). I was off work for 7 months and feeling like you very depressed, if this was going to be my life is it worth it!!! I had ct scan, eng, choleric test etc and diagnosed with md. The grommet is tiny, i went in as a day case, had some numbing cream in my ear then went to theatre, it hurt a little bit very briefly. I think some ent departments can also do it in a clinic rather than hospital. After the grommet the spins completley stopped.  It took about a month for me to start feeling normal again, my balance improved, hearing came back and slowly was able to read again. The have informed me the grommet does work its way out eventually but can last several years, children tend to have grommets for glue ear, and they work there way out quite quickly because children are still growing. Ive stopped all the medication i was taking, started driving again and returned to work.  I was having trouble working full time so reduced my hours to 4 days a week which really helps. And ocassionally i get a swishing feeling like iam gonna have a spin this is mainly when iam tired, stressed or got a cold and also at that time of the month!!  I work in a busy hospital for social services assessing people for social care support and a lot of my time is spent on a computer. Its also quite stressful but iam coping with it at the moment. For whats its worth i would reccommend just trying the grommett as it doesnt damage your hearing like the steroid can, its such a simple thing thats been life changing for me, ive read it doesnt work for everyone, but think its worth trying. My consultant has told me if the grommett comes out to ring ent and they will get me back in asap for a new one. Have a look on youtube you can watch a video on gromett insetion. Hope this info helps both of you let me no how you get on, good luck. Abby
    • Posted

      Hello Abby, Sorry for the delay in replying - Ive just got back from a brief stay in hospital.  Thank you so much for relaying your personal experience re the grommet.  One question:  the swishing feeling you get is it 'intense, moderate or mild?' as I tend to get these from time to time, but not too often now. Usually when I am in bed. I had a period of four months when I couldnt turn over without going into a spin. Incredibly difficult sleeping as the spins would just instantly wake me. Eventually I worked out a way of turning over by rolling on my stomach. Had numerous drop attacks. Severe vertigo attacks, etc. etc. Have supposedly reach 'burn out' stage, but feels like something else is going on.  I will ask the specialist if the steroid is absolutely necessary.  Thanks again. 
  • Posted

    Hi Carly. After 35 spins last year I had a grommet insertion july 14 in the affected left ear + dextramethasone steroid at same time (general anaesthetic but quick). Plus on a regime of 32mg betahistine x3a day + 1 x bendroflumethiazide tablet (diuretic). I can honestly say to anyone that is suffering that this has been brilliant for me. It hasn't affected the hearing, and hasnt increased the tinnitus. I had a cluster of less severe spins (7) a month afterwards and that could be because I was asked to reduce the betahistine after the op, I reverted back to the higher dose and requested a further steroid injection which I had done in December at the hospital in theatre and awake, it was brief, made me jump once and feels like slooshing in your ear but no pain at all. Surgeon could clearly see the grommet in place and squirts it straight in I think. No spins so far since September. Bad fluey cold in december and I had brief rushes of vertigo turning over in bed and getting up/laying down. In my opinion best thing my ENT offered me and I say go for it if they've recommended it for you, it made me so much better. I'm holding a 25hr/wk job down, and keep away from noisy public places I also have my food shopping delivered because being aline in a supermarket when they're so noisy is an anxiety fuelled occasion! Keep us posted. Good self help book Vertigo Vertigo by Meniere Man and youtube videos by Ed Cheung also grommet insertion video so you can see how tiny they are and how quick the procedure is. Good luck xx
    • Posted

      Hi Angela, As I mentioned to Abby, sorry for the delay.  Been in hospital. Never had back problems in my life but somehow sprained ?? my lower back.  No idea how, all I know is it was excruciating pain.  I did manage to view a video earlier on re the grommets and yes, they are tiny little things. I sort of wonder how a specialist decides when to use the dextramethasone, but will ask him, as generally sound is just much too loud!! (hyperacusis) Like you, supermarkets are a nightmare for me.  One big plus, is that most of the time I am able to drive short distances.  My nearest main food shop is about 45 mins away as I live in a rural area. There are days of course when I know for certain I cannot drive.  I will check the book out you mentioned and Ed Cheung's videos..  It's so incredibly difficult at times. Great to hear you are able to work 25hr wk. Many thanks for your comments and support. 
  • Posted

    My husband suffered from meneires for 30 years. he was offered an operation and grommets,never took the offer up.

    He  used to take loads of tablets, some you mentioned.He used to suffer terrible bouts of sickness/ giddyness, even had to have injections to stop him vomiting Then a Dr told him to cut all caffeine and Salt from his diet. IT WORKED. Its worth a try, but may not work for everyone.. GOD LUCK

    • Posted

      30 years... I guess we have to come to terms that we have menieres for life. But... I hope we do not have to 'suffer' every day. We can help ourselves, we can get help, we can do lots of things to ease the symptoms. Salt and caffeine, yes, we can cut out caffeine, and salt can be drastically reduced. In addition, reduce your alcohol or completely cut it out. Plus, I believe don't stop the medication when we're feeling well. Listen to our bodies, when we're feeling tired, get yourself somewhere quiet and have a short nap. When feeling stressed do some relaxing deep breathing. Don't overdo reading/computer/kindle/phone etc. Too much vestibular stimulation can exacerbate things I think. The grommet and dextramethasone steroid has given me a wonderful reprieve of spins since September and the other symptoms at the moment are at a copable level. Anyone else got any thoughts on things to help ease symptoms?
    • Posted

      I appreciate your input.  How I wish I could say, wow, I will give it a try but in actual fact I gave up salt many years ago and haven't drunk coffee nor touched alcohol for at least 30 years, so that suggestion won't work for me. Hopefully for some one else?  

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.