Grommets: Do they really work?

Posted , 12 users are following.

Would appreciate any feedback re grommet operation.  ENT specialist wants to put in both ears but I thought the problem was only in one ear??  Having said that,both ears were virtually 'blocked' for almost 6 weeks. Now, 2 weeks later it is mainly the right hand side.  If I tilt my head to shoulder everything clears and my hearing is fine.  I would love to know if anyone experiences this?  Before insertion of grommets I am to have the following tests:  VNG/ENG + Calorics, Computerised Head Impulse, Computerised Dynamic Posturography.   Has anyone had these tests done and if so what did it solve?   After 9 years of this incidious disease which has robbed me of the ability to work, socialise, and partake in whatever used to be 'normal activities' I am at my wits end.  Depression has set in big time. I just don't know what to do any more.  I am so sensitive to all drugs, so rarely go down that path.  Currently I am on 1x bendrofluorazide per day, but don't feel it is making any difference whatsoever.  Betahistine gave me a massive headache, urea crystals sent me 'off the planet' as did prednisone.  I have always been athletic and had a very healthy diet.  Anyway, would LOVE some communication re the above as I feel so incredibly alone in this journey right now.   

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  • Posted

    My husband was a bit luckier than you, but there is hope  read this about the astronaut who suffered from Meneires and had the op.

    Alan Shepard - (November 18, 1923 - July 21, 1998) was the first American in space and the fifth person to walk on the moon, commanding the Apollo 14 mission. In the early 1964 Shepard was diagnosed with Meniere's Disease. The condition caused him to be removed from flight status for most of the 1960's as the disease cause disorientation, dizziness and nausea. In 1963 Shepard was designated Chief of the Astronaut office which involved monitoring the coordination, schedule, and control of all activities involving the NASA astronauts. Shepard was eventually restored to full flight status by 1969 after going through corrective surgery. At the age of 47 years old, he was the oldest astronaut in the program when he took part in his second space flight as commander of the Apollo 14.

  • Posted

    Hi everyone, I've had Menieres for several years and I think I'm a bit further in my treatment than some of you. Like most of you by attacks changed from every few months to daily attacks which left me totally incapable and bed ridden for weeks at a time. I was then fitted with Grometts, afterwards it was fantastic, no more attacks, life went back to normal. All was well for about 18 months, then my attacks came back. Were all different and for me the Grommets didn't work. Eventually I went on to have Gentamicin treatment in my ear. I wasn't worried about hearing loss, because I already had hearing loss plus I was so desperate to stop the attacks. I went into hospital had my operation, I was told that afterwards I would get a severe vertigo attack, that never happened. My attacks gradually stopped and I'm nearly 2 years from having attacks, and hoping I'll stay this way!
  • Posted

    Hi there not sure how long ago this forum was, but I am a 38 female and suffering very bad.. I have had MD for 5 years now and the last year I have been so unwell. Like in bed every day. I have had grommets in my ears and initially 4 years it helped but I have had them replaced now and they don't seem to be working! I feel nothing works.. I feel as though depression and anxiety has kicked in and I have nearly lost my job because of many days of sick leave.. my husband is great but not sure how much longer he will stick around.. 😭. I am so unwell and most of the time spend my life in bed.. I can't really do anything like going for walks or shopping or anything .. it's such a dibilating disease..

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