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Meniere's Disease

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  • Long term sufferer .

    Hello I am 71 years old suffered severe Meniere's for over ten years. Had an operation in 1975 to remove my inner ear not a problem since.  Though the operation leaves you deaf in that ear. If l can be of any help to any fellow suffer let me know.

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  • Gentomicin injections.

    I'd like to hear from anyone who has had Gentomicin injections.  Did it work to eliminate your MD vertigo?  How sick were you while it was deadening your inner ear?  Thank you. 

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  • Does anyone have a cochlear implant ?

    Just saw my ENT who has suggested a cochlear implant for my left ear which has profound hearing loss.i also have moderate hearing loss in my right ear.he is afraid if I lose the hearing in my right ear I will be totally deaf .i now wear hearing aides in both ears.

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  • Meniere's Disease - First drop attack

    I've been diagnosed Meniere's for about 3 years, the usual hearing loss, tinnitus and dizzy spells but recently experienced what I think was my first 'drop attack'. I was lucky to be sitting down watching TV when it felt like the room had been turned upside down. I yelped and grabbed...

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  • I just really need to let off some steam.

    Okay so as a child, I was severely depressed and even suicidal. Some of the main things that got me through were music, socialising and sports. I have been rapping, playing guitar and singing for many years. I also loved to go out to bars and pubs and talk to all sorts of different people. I practised...

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  • Ménière's chiropractic care?

    I've been reading up on chiropractic care for MD. It all makes sense that my MD could be the result of whiplash from a car accident leaving a slightly displaced disc. I wondered if anyone in the uk has seen an MD chiropractic care expert, did it work?  Also can anyone you could recommend a practitioner....

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  • worrying about future

    I am 22 years old. i have tinnitus since six months. sometimes also i faced vertigo. whenever vertigo happens, my right ear tinnitus gets worse and it last around five to ten minutes and later i feel so week and increse tension. I am from India and will go to canada this december for higher education....

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  • Different types of attacks

    Been suffering an attack for over two wks now, only had one drop attack fortunately but lots of dizzy spells hearing loss and increased tinnitus the usual stuff, thought it was abating last couple of days but woke today and the roaring in my ear is almost unbearable so back to square one, this attack...

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  • Scary Information

    I have been reading through the information pack from the Ménière's Society which I have just joined. They say MD is progressive and comes in three stages. Really scared now, does this mean I will eventually lose hearing in both ears? At the moment have fullness in just one ear and having...

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  • That horrible floating feeling

    Hello everyone! I am new to this forum. I have been suffering with Meniere's symptoms for about 10 years now. It started off almost unnoticeable. The feeling of blocked ears, constantly being told by doctors that it was probably the result of some cold or flu. The tinnitus I thought was due to seeing...

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  • Menieres & Driving

    Unfortunately, I had to give up driving 15 years ago, because I was having severe vertigo while driving and only managed to pull over. This left me feeling depressed, it's so frustrating, I try to be positive, but it is difficult. Having this forum truly helps.

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  • New Diagnosis

    Have recently been diagnosed with Menieres by ENT consultant after having MRI. Had first attack in May on holiday in Florida, wondered what on earth was happening. Now back in the UK and have had four attacks since that last for about 4hrs leaving me feeling wacked out.Have now just started on Betahistine....

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  • TMJ or Meniere's? pls help

    Hi guys, Im a 23 yr old male and 5 weeks ago today i had my first ever vertigo attack, where my right ear roared with titinus to the point of total deafness, (as the world began to spin) this lasted for a good few hours that day (touch wood nothing of the sort since). However, since the attack 5 weeks...

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  • Quick Question

    Can I ask, do people find themselves being more careful about where they go and what they do when they have got Menieres? Mine has only just started up again after a break of 5 years and already I've cancelled taking my grandchildren swimming, a day out with friends and a meal with work colleagues...

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  • Length of attacks

    Hi all just wondering what sort of attacks others have, mine started about 10 days ago the usual fullness in the ear that's affected resulting in loss of hearing increased tinnitus then about 3 dizzy spells a day lasting about 30 seconds each time I had one drop attack a week ago without warning,...

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  • Menieres and Betahistine

    Simple question, has Betahistine worked for you? I have having a rough time at the moment with a flare up of symptoms with Menieres, I used to take Betahistine a couple of years ago 16mg three times a day, but I felt this had very little impact so I gave up with them The way I am currently feeling...

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  • Intranasal betahistine

    A Swiss company called Auris is developing an intranasal form of betahistine which they claim has greater bio-availabilty than the oral form. They have completed the first stage of their trial. It looks as if the medicine would be available in the US if the trials are successful. A second phase 1 trial...

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  • Can I choose between the two?

    I have been to see the ENT dr, who has recommended a labyrinthectomy as my medications have failed to control my Ménière's Disease. I was diagnosed with MD in 2007 by an ENT consultant surgeon.  She has referred me to the consultant surgeon (ENT) to get his opinion as she has recommended...

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  • Salt?

    Hello All. If you have read my previous post, you will know that the doctors disagree if I have Meniers or not. Regardless I have been trying to follow a low salt diet. But it doesnt seem to change my symptoms or cause an attack when i have salt. I was out this week and must have had 5000 mg of salt....

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  • Symptoms with no diagnosis

    Hello everyone. I've had 3 severe attacks and was hospitalized last night, hoping the doctors could tell me what was going on. Each attack is the same. My ears are filled with pressure and I lose almost all hearing in both ears. Then the vertigo hits with a combination of nausea, sweating, and vision...

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  • Level of symptoms

    I was diagnosed with MD about three years ago, I had a prolonged period of dizziness combined with fatigue and general feeling of being “unwell”! this was in conjunction with hearing loss in my left ear as well as severe tinnitus, a constant echo like I was holding an empty bean can behind my ear. I...

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  • Hot weather and menieres

    hi my husband has suffered with mineires disease for 25 years in his left ear, last year it also came into his right ear.  We found it to be worse during hot weather and wondered if anyone else has experienced this?  

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  • GP not interested!

    I have been diagnosed with menieres by ENT  consultant for four years. I have  the spinning vertigo,vomiting,tinnitus,deafness and balance problems and have managed to attend work with out a sick note.  I recently had a vertigo attack in the street resulting in me falling and unable to...

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  • Minieres sufferer

    Hi everybody I've been a MD sufferer for about 8 years and unfortunately after only having one attack in last couple of years I'm unfortunately going through it again, I've been taking betahistine since last wk after previously been told not to take them all the time the ENT have now said...

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  • Caloric test

    Hi all, I have just had the results of my caloric test done in may. My ENT told me that I have a 29% loss of vestibular function in the left ear and a 10% loss in the right ear. She basically told me that this is my diagnosis and she has discharged me with a piece of paper with some vestibular rehab...

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  • Flare up - help

    Hi everyone, I've felt more tired than usual in the last 2 weeks and also somewhat nauseous, just not myself. I had a bad allergy attack about 3 days ago. My tinnitus has been growing progressively worse, and today I have louder ringing plus a strange low pitch along with it and fullness. I'm...

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  • Distinguishing between MD and other causes

    Hi, I have had diagnosed MD for 6 years, but have had symptoms (head fog, tinnitus, hearing loss, vertigo, vomiting etc) for nearing 9 years. I go through good periods and bad (as I guess we all do!), but I often wonder that when I am feeling unwell if it is caused by MD or if in fact it is something...

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  • Stress was my trigger!

    I first developed this disease 10 years ago the this past spring it came back. Before the onset I was stressed with emotional trauma and overwork with a poor nutrition and sleep schedule. At the time I didn't know that is was causes it. It took months for me to find the trigger. I've had only...

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  • M.d. And hearing aids

    i have had m.d for 16 yrs or so , my ear rings like a teakettle all the time , recently I got a hearing aid for my right ear. The one with m.d. I have been wearing it daily for a week , my question is will this make my ear hurt because I keep having an ear ache 

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  • Meniere's Disease and driving

    I was diagnosed with Meniere's last year.  I have trouble with my balance while walking but have no problem driving a vehicle.  Do others notice this also? 

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  • Experience of tinnitus clinic (UK)

    Hi A update on my husbands journey.  MRI was normal and we have seen a different GP.  She has referred us to a tinnitus clinic at our local hospital, where there is an 8 week waiting list.  However, she did ask about a private referral.  On reflection we have decided to request the...

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