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Meniere's Disease

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  • Short intense attacks after Hurrican

    Hey. I've had Menieres for several years. July 2017 I had a shunt put in. I take Meclizine 3 times a day. I was fine during the hurricane we just had. In the past 4 days, I've had 3 intense but very short vertigo spells. Has anyone else been through a really stressful time, and had …

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  • The John of Ohio Meniere's Regimen

    Hi. I've just joined this group. I've had menieres for the last 4 years, and for the last month am in a continuous aggressive episode. I have only one properly functioning ear, and therefore have hearing only in the ear that has menieres. Intense pressure has cut off my hearing almost …

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  • labyrinthitis or meniere's

    I had a severe vertigo attack about ten weeks ago well running on a treadmill. I’ve done numerous test to rule-out a stroke or heart issues ( MRI, CT, heart test etc )  The ENT and neurologist diagnosed me with BPPV after reading others stories here I seem to think maybe I have  …

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  • Vertigo attack’s only when in a sitting position

    I have had Meniere’s Syndrome for about 7 years and had very few vertigo attacks until the last few months. There is a pattern in that most attacks take place when I’m seated at my office desk or in a meeting. Today’s attack was very strong but short lived - just a few minutes. Has anyone else …

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  • Head Feels like a brick!

    Hello everyone. I woke up last night with my head pounding. It felt like a brick was attached to my neck, or a bowling ball. I tried to get up and go to the restroom but was off balance. eventually it did get better and i think im 80% now. No vertigo, no hearing loss, no increase in tinnitus, no …

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  • BPPV and sac decompression or Labyrinthectomy

    After my sac decompression surgery, I asked my ENT whether it would lesson my bouts with BPPV. He simply said that it was different. I knew that it really meant "no". It is awful and unpredictable too. I have gone to vestibular therapy (VRT) and have eply maneuvers when this occur. They …

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  • Help I'm DEAF

    Help, its 4:30am. I jes woke up and I can't hear in my Left ear 😟 This has never happened before. I'm going to dr in am to get ears drained, then er if that doesn't work.

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  • Fluctuating sensorineural hearing loss

    Hello all. I woke up about 2 months ago with the left ear feeling clogged. First it was treated two weeks with some antibiotic fluid but as it didn't work I went to an ENT and was diagnosed with moderate SNHL in low frequency and also high frequency areas. MRI was taken and tumors excluded. I …

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  • Increase in meds, new vertigo experience

    Hi all, just wondering if anyone has experienced what I did today.  A week ago I had by betahistine doubled to 32mg 3x daily. Today I was washing up and felt the vertigo come on, I had to then crawl to my bedroom from the kitchen (one advantage of a flat) climbed into bed and within a minute …

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  • Viral infection and Menieres disease

    Has anyone been treated preventively for a viral infection that maybe contributing to Menieres disease? The suggestion for this treatment seems random since I have no visible signs or otherwise as far as I can tell. The proposed viral treatment plan is intensive for a condition that may or may not …

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  • Can Vestibular Rehabilitation help MD

    Hi My friend had vertigo and he is referring me to Vestibular Rehabilitation specialist who fixed the vertigo with an exercise. I know MD is different but can they help in managing the symtomps of dizziness I get every day even after taking betahistine 3 times a day?

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  • Constant Dizziness from Meniere's

    Hello everyone, I've had a diagnosis of endolymphatic hydrops (from some doctors, Meniere's) but my issue is constant dizziness. I've had Betahistine which has slowed my attacks almost completely but the constant dizziness stops me from living life, I'm pretty much stuck in bed all …

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  • Flying after sac decompression or Labyrinthectomy

    I had a sac decompression in May of this year. I have not flown since. I still have residual issues such as being off balance and also an unsteady feeling and some low in my head. It’s worse at times and not too bad at others. The thought of flying, even a short one, makes me very nervous.   …

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  • Sea band

    Has anyone with MD tried Seabands? My doctors want me off the Valium and Meclizine. I picked up a pair today to try out, but was curious if anyone else has tried them and if they got any results.

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  • Update

    In an earlier posting I talked about the possible positive progress with the 4th injection of gentamicine.  I am sorry to report that the regimine of the shots did not work and the episodes of vertigo has since returned.  My doctor informed me yesterday that the scar tissue from my …

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  • Endolymphatic sac decompression/shunt placement

    Hello to all, I was diagnosed with menieres about 6 yrs ago.  Started off with just fullness in the left ear with some distorted hearing.  As time went by episodes became more prominent with the tinnitus starting.  I had 2 episodes within a short time frame and went to ENT.   …

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  • Anxiety or an ear problem??

    Hi guys,  For the past 10-15 years i havent felt right. I have been to the doctors but they havent diagnosed anything.  Symptoms; i always feel unbalanced, cant stand straight for long as i feel i will fall over, constantly feels like im standing on a tipe-rope and feeling wobbly, …

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  • CSF leak after ESD

    anyone have any issues with nerve damage after a endophatic sac decompression?  I had the surgery in Nov 30th, they nicked my dura causing a CSF leak.  Then I developed Arachnoiditis from my body rejecting the stuff they used to block the leak. I have had a headache since, developed cyst …

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  • Do these symptoms sound familiar?

    Hi. I was very recently diagnosed with Meniere's. I was having dizzy spells and nausea, along with a ringing in my ear, but was also experiencing what felt like pressure in my head and what I can only describe as a feeling of fluid pressing down inside my head, and a constant "brain fog& …

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  • HELP TINNITUS IN BOTH EARS

    Hi, I have had meniere's in my left ear for over 20 years, now in the last couple of months. The TINNITUS is in my right ear..any one out there have help to deal with the relentless noise?? Thx cathy..new to this forum

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  • Ear ringing

    Has anyone tried Tinnitus 911 that is advertised on internet. It says it can stop the ear ringing, but not sure if I should order it.

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  • Light and menieres

    Hi. Does anyone else have a sensitivity to light? I'm finding driving in the dark with car lights a trigger.... not immediately, I wake upon the morning with ear fullness in 1 ear and sometimes a little dizzy. Also my daughter had a flashing light toy which sent me off in a spin for a few days. …

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  • MD Without aural fullness - is this possibe ??

    Hi there. I have been diagnosed (?) with probable cochlear hydrops. I have bouts of fluctuating low tone hearing loss accompanied by flare ups ( a kind of sound reactive semi-physical tinnitus in the affected ear.) These flare ups last for anything from one day to eight days and I might get one …

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  • Gentamicin injections

    Hi I had a gentamicin injection a few weeks ago. It made me really ill after it, having a major attack that lasted non stop for 5 days and now I'm still unsteady on my feet. My consultant wants to do another top up injection to ease this unsteadiness. He said it probably would make me ill …

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  • Sinus surgery

    I am considering sinus surgery due to sinusitis, polyps and a deviated septum. I believe this either set off the Menieres and at the very least makes it a lot worse. Has anyone had sinus surgery for similar issues and has seen any relief from their Menieres symptoms??

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  • Is this disease in the brain or ears??

    Hi I've been reading stuff from some doctors stating that the brain is involved with mineres? Has anyone gotten any research on this? The TINNITUS coming thru my left ear is HORIBLE. And as I stated before, now my right ear has the problem too, not as loud as the right yet...so frustrating, no …

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  • Hyperacusis or Retention

    Does anyone have hyperacusis or retention on here?  I thought I had hyperacusis which is certain sound frequencies being too. loud or annoying like a vibration in the bad ear, but Ive had one specialist tell me its probably Retention and they could not help. Does anyone else have this and what …

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  • Constant rocking/swaying feeling for 7 weeks and counting

    So my illness began about 7 weeks ago now. Initially I experienced two seperate short occurrences of a strange rocking swaying sensation... almost like someone had pushed my brain very hard inside my head so it felt like I was moving but I wasn’t. The first two times it happened were both after …

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  • Meiere's Disease Hearing - Noise

    I have had Meniere''s Disease for some time now and I find the thing that is bothering me the most is the constant roaring in my ear.  Do hearing aids help?  My Otologist  warned me that if I can't distinguish words,making them louder will not really help.  What help …

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  • What has helped me

    Good Morning, I hope this post finds everyone doing a least some better, I just wanted to share something that I have found that helps me, I have battled meniere's for a long time and the disease has been bilateral for the last 5 years. To help me from going bonkers, I started a hobby to keep …

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