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Meniere's Disease

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  • Menieres disease/betahistine

    For the past 8 months i have been suffering with vertigo & nausea, along with not being able to read or use or computer without going dizzy. I also feel extreamly tired all the time, loose my balance, intermittant hearing loss, tinitus, fullness in my ear and have what i call brain fog! Its been...

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  • Menieres time frame

    Have any members had complete respite from all symptoms of this dreadful disease and if so how long has it been since last attack.

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  • Is it MD or ETD or something else???

    Hello all, I am basically trying figure out if I have MD or not. I have seen two ENTs and I have done every test that I am aware of and all came back ok. I have been told it is BPPV. so here are my symptoms and when it started -summer of 2007 got the first vertigo, didn't how long it lasts but afterwards...

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  • fullness in ears

    when you get the fullness feeling and the ringing in your ears is there any exercise or something that you that lessens the effects? I'm pretty sure I'm getting into stage 2 of Menieres. I haven't had a vertigo attack since last year after three steroid injections. But my ear has been full...

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  • Seasonal Trigger for MD?

    I've had MD for over 15 years and have noticed that I get attacks between February and May.  I've asked my ENT about allergies triggering attacks, but I never get a straight answer.  Anyone else notice a pattern based on seasons?

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  • Cochlea meniere's disease

    I have been diagnosed with cochlea Meniere's disease, that is all the symptoms just without the vertigo.  My symptoms are bad aural fullness and tinnitus.  Does anyone else have this version of Meniere's disease and if so what treatments are you having?  Many thanks.

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  • Labrinthectomy.

    I have had vertigo since 2001 and numerous interventions, some working for a while.  I initially starting. with anti-nausea medications.  Saw my neurologist who suggested lamotregine (for migrtaine headaches, thought did not have them) and valium.  Both medications seem to have worked,...

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  • Ménière’s disease

    Someone told me to take Niacin for my ear, does that help. I keep getting dizzy spells . My bad ear will fill up and then comes on all the bad symptoms . Prednisone only seems to work

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  • Grommets

    Hi Been suffering with md for bout 7-8 yrs finally had a grommet fitted on Monday this week, just looking for others that have had this done to get any feedback on how it’s worked for them, had mine in for nearly 3 days now and have not noticed any difference whatsoever so does anyone know how long they...

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  • Gentamicin injections

    Hi I had a gentamicin injection a few weeks ago. It made me really ill after it, having a major attack that lasted non stop for 5 days and now I'm still unsteady on my feet. My consultant wants to do another top up injection to ease this unsteadiness. He said it probably would make me ill again...

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  • Riding in the Car

    Hi..I have noticed that being in a car causes my tinnitus to be worse.  I am not sure why...I usually do not notice it until I get where I am going and then notice it once I have been out of the car for a while.  The ringing in the ears is so loud and bothersome.  However I am not bothered...

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  • Beach

    So I decided to get some vitamin D today with my granddaughter.  I walked into Lake Michigan and the sand was rippled and the waves were coming in .  I had to get out because it made me so disoriented.  Funny how things I used to enjoy can make me sick now. 

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  • Favorite low sodium recipes

    I thought it would be fun to try to start a discussion for us to share our favorite low sodium recipes. I am interested in trying some new meal ideas.

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  • How to describe the Meniere's feeling ?

    Recently I was a passenger in the front seat of a car. We were stopped in traffic with cars and a semi truck on either side also in front of us and cars behind.  Suddenly  the semi truck on the left side seemed to start moving and I had the sensation that I  was moving Backwards....

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  • Sinus Medication helps me to function with Meniere's.

    I have had meinier's disease for 20 years. I used to get episodes maybe once a year up to last year up to 3 times a year. In the last two months it has been constant. I stopped drinking caffeine especially coffee because I found it made my sinusitis unbearable. I also stopped milk. Had total releif...

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  • Triggers

    Hi all Discovered a new trigger a short while ago, was watching a short video clip which had a close up of somebody then all sudden the camera spun round very quick which made me feel a bit light headed like it was me in the clip then within 20 seconds the whole room span n fortunately I was sitting...

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  • i suffer from miners disease and tinitus

    hi can anyone help at all iv had md and tintus for 2years now iv haven't had a an attack for 2 months now but I still feel hevy headed all the time .has anyone had surgery if yes did it work and stop u from having the attacks please let me no thanks I take betahistine tablets for my md my right ear...

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  • Minieres Disease surgery

    I was diagnosed in January and my doctor wants to performs surgery. Has anyone had the Endolymphatic sac decompression, and the Endolymphatic shunt surgeries. How envasive are they and did it cure your vertigo? Did you lose all of  your hearing?

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  • Caloric Test

    I have been diagnosed 2 months ago, after confirming hearing loss through my audio gram report, ENT wants me to have a caloric test. It is quite expensive test. Has anybody got experience of what information this test can give us? Is this test is just to conform MD or any thing else? I don't get...

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  • Campfire & MD help

    I had my MD symptoms fairly under control, no ringing and good range.  Then we had a campfire about a week and a half ago.  Ever since then my ear has been ringing like a loud bell...constantly.  Does anyone have any ideas to cut out the ringing, maybe steaming or something.  I will...

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  • Distorted sounds

    Hi I wonder if anyone can associate and advise of my symtoms. I have pulsating tinnitus in left ear only with hearing loss I am finding the next symptom hard to describe really and I hope u can g Help me 😊..The sounds in my left ear are distorted so if someone speaks cant hear them very well...

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  • MRA - Magnetic Resonance Arteriography

    I'm sure several of you have had an MRI, relating to your Meniere's, however, has anyone ever had an MRA? A doctor friend (not an ENT) suggested I speak to my ENT about this. He said an MRA is like an MRI but they shoot dye into your bloodstream prior to the filming and it shows a lot more...

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  • Menieres fullness

    I been having Mineres Virtigo almost for a week now. The fullness in my ear won’t go away. Is that permanent now or will the fullness go away.?

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  • Vestibular rehab

    First off I want to thank everyone for the helpful suggestions and comments. I will definitely be trying some of them. My doctor suggested vestibular rehab. Has anyone tried it and if so does it work.

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  • I have been suffering for several months what should I do

    In the past several of months I symptoms have become almost constant. I have a severe attack that last for hours and then I spend the next week or more trying to deal with the after effects. Before I start to feel ok I have another attack. I can't do any thing any more I can't even play with...

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  • I don't know if I have Menieres Disease or Tinnitus.

    It started with noise in my left ear starting about a year ago. With this I have also had roughly 5 Vertigo incidents. Today I have noise but also abit of brain fog.  Not always super stable in my walking either, especially when the noise is really loud. The worse part for me is a substantial loss...

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  • Balance issues/Ménières?

    Several years ago I was told I had labyrinthitis twice. The first time I had it, it took 6-8 weeks for my balance to return to normal. The second time it never really returned to normal and has been at a level where I’ve had to put up with it as medication and balance therapy have not helped. I have...

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  • Blue badg

    Has anyone applied and been given a blue disability card, because of Menieres? i was thinking of applying for one as I can’t walk far with the awful vertigo I experience. Shopping is only if I have someone with me. At the supermarket my husband fetches a trolley to the car and I hang on to it!!

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  • That horrible floating feeling

    Hello everyone! I am new to this forum. I have been suffering with Meniere's symptoms for about 10 years now. It started off almost unnoticeable. The feeling of blocked ears, constantly being told by doctors that it was probably the result of some cold or flu. The tinnitus I thought was due to seeing...

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