Sinus Medication helps me to function with Meniere's.
Posted , 11 users are following.
I have had meinier's disease for 20 years. I used to get episodes maybe once a year up to last year up to 3 times a year. In the last two months it has been constant. I stopped drinking caffeine especially coffee because I found it made my sinusitis unbearable. I also stopped milk. Had total releif from sinus pain and pressure. But, I think taking the caffeine (diuretic) away caused all the Meniere's attacks. Anyway, When I get an episode The only thing that works is a decongestant, Pseudoephedrine Hydrochloride. The disease is all about fluid in the ears. the decongestant dry's everything up. I can totally function. It stops the spins, nausea, ringing in the ears. No prescriptions have every worked. But this has saved my life and made me be able to function. When I get an attack. I take 60 mg and lay still for 45 min. to an hour. then I can get up and resume my day. Has anyone else tried this.
1 like, 15 replies
Guest
Posted
What type of decongestant do you use ?
isabel68814 Guest
Posted
they said Sudafed Pseudoephedrine
Guest
Posted
sarah87228 Guest
Posted
Just wondering as want to try it but can’t afford to be laid up? My gp has refused to give me a diuretic as she’s not comfortable treating something she doesn’t know enough about as well as refusing to allow me to up my dose of betahistine.
I’m at breaking point now.
isabel68814 sarah87228
Posted
so sorry to hear this!!! I'm in the US and betahistine isn't allowed here but not sure why when other countries use it 😕
Guest
Posted
Also been left with awful tinitus in my right ear.
Not saying it dosent help, my reaction might just have been bad timming and i was due an attack, but im not trying again, as ive been put off the idea and head is still in a spin.
Thanks for suggestion though :!:
jodieteach Guest
Edited
Yes!!! I had severe menieres attacks almost daily for a couple weeks. I couldn't functioned. I was terrified since it was keeping me from my job and life. I tried Claritin D (psuedophederine) 24 hr. It was the ONLY thing that saved me! I have to take it daily. I tried missing a dose on two separate occasions and was immediately in a full blown meneries attack each time. I have been taking claritin d (generric) 24hr dly nonstop for 8 yrs now and have not had an attack since. My doctors write me a script for 1 mos supplies. I don't want to be on it for the rest of my life, but the alternative of being completely bedriddren unable to move or even turn my head is not an option.
sarah87228 jodieteach
Posted
I’m on betahistine and it’s working in as much that I’ve not had a sever vertigo attack in 8 weeks, however, I still feel dizzy and have a lot of fullness in my ears.
I’m just concerned about trying the 2 in conjunction with each other in case it gives a bad reaction.
There are no recorded interactions between the two but just wondered if you’re on both?
Thanks, Sarah
snowman51 Guest
Edited
Yes it definitely does wok. I have had Meniere's now for almost 10 years. Like everyone here I have wanted to control it. I live in Alaska and noticed that a lot of the episodes would occur whenever we had a new weather front move in. This made me start correlating the change in barometric pressure that always accompanies a new weather front and the onset of a Meniere's episode. This led me to think that Meniere's is, for some people, a reaction/overreaction to a change in pressure, either from external sources like barometric pressure or in your case Guest 1 the reaction to withholding caffeine. Caffeine is a mild diuretic. Diuretics cause a different type of change in pressure a constriction of the blood vessels.
As an experiment, I asked my pharmacist for the best OTC medication for relieving sinus pressure and was suggested the same thing, Pseudoephedrine Hydrochloride or a Sudafed generic. In addition, a nasal spray with the active ingredient of Oxymetazoline Hydrochloride which is the generic active ingredient of Afrin was also suggested. These 2 medications can be used in combination or by themselves. And I can attest they work for me consistently. The only symptom they have no effect on, for me that is, is the tinnitus. But I can put up with that since the dizziness, fatigue and fuzzy thinking is gone.
However, there is a downside to these two medications if you have heart issues or high blood pressure or are taking medication for high blood pressure. Both of these medications constrict blood vessels. This means that if you already have high blood pressure taking these medications can and will increase your blood pressure, especially if you take them for an extended period of time. In addition, using the nose spray for an extended period of time can cause your nasal passages to react negatively and clog up with nasal congestion. Essentially, they become addicted to the active ingredient.
So, if you do decide to take these medications and they work for you you should do the following. Only take the 12 hour Pseudoephedrine Hydrochloride. When you do take it, take it sparingly, only when you have to. Or, you run the risk of having to make an unplanned visit to the E.R. as I did, where they had to give me high blood pressure medication intravenously.
When taking Oxymetazoline Hydrochloride, only use it for three days. Then wait three days before resuming taking it. If not you can end up with an unplanned and very unpleasant stuffy nose that can be difficult to get rid of because your nasal passages have actually become addicted to it.
Remember, even though they are Over The Counter, they are still medications and should be treated as such. Used in moderation though, they can help you in your fight to overcome this debilitating condition. I wish you the best in this fight of ours.
stephen61100 snowman51
Posted
high snowman,
I totaly agree with you about barometric pressure,
when you think about it were are spinning round some 1200mph
in space and its taken an evolution for us to learn to balance that combined
with our orbit round the sun (which is not even) must have an effect on us
all not only meniere's sufferers ..when you think about it when we have a
meniere's attack it seems with the virtigo we are feeling that full force of 1200mph
in an attack..its only a theory but the intense tinnitus could also be to much are
pressure...stay welll..
tim78245 Guest
Edited
sarah87228 Guest
Posted
When do you take it etc?
isabel68814 Guest
Posted
Hi, I am 25 years old and got diagnosed with Meniere's just a year ago.. I just bought sudafed today because I've been having severe episodes for about 2 weeks now... I saw an article about sudafed being a stimulant and possibly making the ears worse... What do you think I should do? because i also see a lot of people saying nasal decongestants have helped them and I am looking for advice! thanks!!
nikki00618 Guest
Posted
My pharmacy only has the Sudafed congestion and headache medication, with phenylephrine hydrochloride. Will this also work? I've had such a bad flare up this last month, with 2-4 -attacks per week with vomiting. I'm willing to try anything. I have restarted acupuncture which I had five years ago when I was first diagnosed, and this seemed to help.
Thank you in advance for any response or advice.
Blondenurse Guest
Posted
hi i haven't tried the decongestant because i have hypertension and it increases my BP, but also gives me heart palpitations. the ent just prescribed Betahistine. haven't tried it yet. I get back on here and let you know if it works.