Investigated for Menieres Disease

Well, you are now part of an unfortunate group. The only other thing I can offer as advice is to cut back on Sodium intake if you haven't already. I honestly cannot say how many have been helped by this. I was given Meclizine and Valium for episodes, but I didnt like how they worked. maybe you'll fell differently.

Sorry to know you have this horrible disease. After seeing several ENT doctors, my adult son found one that knew the fluid in his ear needed draining and inserted a tube that remained in his ear for about a year. He had immediate relief and during that year he only had a few mild attacks. The tube came out and within 3 months he started having severe attacks. Had new tube inserted and again he is much better. Ask your doctor and maybe this will help you.

I've quite similar problems. Tinnitus in left ear with hearing loss. Chronic dizziness for 23 yrs. When attack came, I couldn't stand & walk. Very dull pain in head when I tried to stand or to walk & I vomited too. Went to Emergency 3 times. My last admission I had MRI on head, heart scan, chest xray, blood & urine tests. All turned out ok and I'm still having dizziness but it's not bad as before. I'm now taking Betahistine 24mg once a day & Vit E 400iu. I took Prednisolone only for a week and this medicine really worked very well on my dizziness. My dizziness is tolerable now & I can walk & drive. Driving used to be very challenging esp on expressway. To help myself getting better I need to have good sleep, take a nap whenever I'm tired & drink enough water. Going for a 30-min walk everyday & having some sunshine have also helped me. Btw I'm seeing a neuro-otologist for my issues. Hope this helps you. Do note the medicines that I've taken & am taking now may not work well for you although we may have quite similar issues. Please don't give up. See the right doctor. Pray you will be ok soon.

Hello Barry,

I was sad to see your post , I know what you are going through.

I am 61 years old, and I have had the dizziness eleven years now.

I take 23 different meds for the all the illnesses, that I have.

I have tried many different meds to combat the dizzies

I have not been able to conquer the dizziness.

I even tried stopping the meds to see if they were causing dizziness.

I have had to learn to live with the foggy head and dizziness,

After a couple of years, I found myself conditioned to the dizziness

The symptoms were worse at first, as time progressed, the vertigo and

nausea dissipated, and only the dizziness remained. I am hoping you can find

a coping place, somewhere in all the madness. God Bless

Hi Barry. You mention that you take histamines.....is it betahistine (serc) that you are taking? If it is please do not give up on it. Most folks on betahistine will find success in controlling the MD symptoms once they reach the correct dosage for them. In my case I take 64mg/day (16mg 4 times/day) but many folks require even higher dosage. I have not had a vertigo episode in years. And the ear fullness is gone and tinnitus is milder. It's important that you gradually increase the dosage over several weeks and give it time to work. The vast majority of folks also do not suffer any stomach side effects which in your case is important. Please give Betahistine the opportunity to work for you. If after several months of titrating up on the dosage you still have problems, there are surgical procedures that have proven quite successful in eliminating vertigo....such as intratympanic gentamicin injections. I had this done for my left ear and it completely eliminated the vertigo from that ear. I later developed bilateral MD and the betahistine completely relieved my symptoms from the right ear. Be patient....there is a solution for you. Good luck!

Barry

Sorry you are going through this. It sounds like the way mine started. I was diagnosed with MD over twenty years ago. I've been prescribed diuretics, prednisone and now finally betahistine 16mg 3x day which seems to be working. I could not tolerate the side effects of oral prednisone, but some people can. When I felt an attack coming on or a change in my hearing the doctor then started a direct injection of predinsone into my eardrum. I believe it helps a bit, but it is not a long term solution. I've been to accupuncture as well as upper cervical chiropractor which worked great for over a year. I've basically tried just about everything. I would suggest going to an otolaryngologist as they specifically focus on the ear. As the years have gone by my hearing has gotten worse in both ears and I now wear hearing aids. MD is a weird condition as it affects hearing in as not just loss of sound, but sound distortion, tinnitus and vertigo, the worse trifecta. I wish you the best and let's hope the medical community can figure out a cure.

DizzyDaddy

Hi Barry...you are about the same age as me (if you were born in 1979 like your name says). I am 38 and have been diagnosed with meniere's disease since age 34. The best thing to do is lower your sodium intake. Decrease your fast food and frozen dinners, frozen pizza, etc. Try to increase your water intake so that you flush sodium out. I also learned from my ENT doctor that menieres disease gets worse before it gets better. 😦 and he was right. The first 3 years i would get the vertigo attacks every 2-3 months and i would have to lie down and sleep to make it stop. Finally on year 4 it got better and i havent had an attack in 19 months.