Help tryied everything...doctors stanford no help

I refuse to not be able to walk on my own because of my inner fears!

No matter what the doc tells me, am gonna lead a happy life!

i suffered from cluster headaches for 5 years so i know what you are going through, it is indescribably painful.  the medications doctors prescribe are extremely expensive and and only marginally effective.

cluster headaches are caused by excess histamine production in your body in reaction to food, stress, even changes in the weather.  for some reason our doctors don't seem to know this anymore.

i got rid of my headaches with histamine desensitisation.  this involves subcutaneous injections of diluted pharmaceutical histamine with one of those tiny little syringes into the fatty layer just beneath the skin.  this small amount of histamine seems to kick start ones mast cells(where histamine is made in the body)back into shape.  i am not 100% cured and shall probably have to continue the injections twice a week for the rest of my life, but i have not had a full-blown headache since january.

all allergists have pharmaceutical histamine in stock as they use it as a control substance when doing those allergy prick tests but they use it in far too dilute concentrations in practice, in fact, they don't really use it for anything but a control to make sure that your skin does react to allergens...

search: histamine intollerence, mast cell activation, dr. felix ravikovich

in the mean-time stop eating: white bread, yeast, tomatoes(esp tomato paste, ketchup), alcohol, anything fermented, vinigar, chilis, seeds, fish(esp tinned, anchovies etc), aged cheeses.  but you can drink as much coffee as you like!  it's actually good for you(don't know how many doctors told me to stop...).

then get on the phone and call every allergist in your area and tell them that you want to try histamine desensitisation and see if any will play ball.  the histamine that i inject is at  a concentration of about 1:15 with bacteriostatic water, but each individual is different so you will need to find the correct dosage for you.  i mention this only because allergists usually deal with concentrations around 1:10,000+ and this wasn't strong enough for me to feel much benefit.

the other big plus of this treatment is that histamine is not a drug, there are no side effects whatsoever. ( there is a bout a 1 in a million chance you will get anaphalaxis).

i hope you look into this it could really change your life, it changed mine.

Are you sure its cluster headaches, I have just been cured of them fingers crossed after 3yrs of never going more than 6 weeks without one, usually daily for months at a time, and I would get the blurred vision and facial pain during an attack but fine once the pain had drained although after a bad attack my head would be sore for days as if i had been belted with a baseball bat.

I have been prescribed verapamil 1 x 120mg tablet a day which could be increased up to 4 a day but since taking the 1 a day I have been 6 months free of them , maybe your dose could be increased as it does seem to help ?

I wish you luck

Allen, what you said about it being on the left side of your head caught my eye. For me it would start as if the left side of my face was tensed up until it hurt. Even the wind moving through my hair would hurt my scalp.

An old injury on the top of my head would ache as if it just happened. This would only happen in spring and fall, between 8pm and 2am, making me realize it was somehow sun related.

That was at first, then it became constant for months at a time.

After many hours of searching and hospital visits I found a cure (for me and I hope for some of you). There is a cause for all I believe and any kind of medication is just covering the symptoms.

People who haven't experienced this can never understand the pain, even though they think they do. For me it was as if every night someone would come in and smash me in the head with a hammer.

The amounts of different medications doctors threw at me were criminal. It wasn't until I talked to a podiatrist I knew personally and suggested after MANY hours of research that I thought is was my vitamin D levels.

I suggest every person has their vitamin levels checked. I believe doctors are scamming people by never checking these for many many ailments...just covering the symptoms with multiple return visits.

My vitamin D level was almost non exisistant. 30,000 mils prescription for 2 weeks and 1000 mils 5 days a week after, it's been 3 years pain free.

Be careful taking too much vitamin D...it can damage your kidneys if not done properly. For that...you need blood tests.