Labia fusing

Will the fusing unfuse?

It is a possibility,  I think mine returned to partial normalcy.  However I do not have a clitorous anymore and the labia majora is all but gone too.

 

I am 33. Really all I want to do tonight is curl in a ball and cry. Are your Labias completely gone? Is this what happens?

No it doesnt happen to everyone,some people never get worse and some go into a type of remission,everyone is different.

Thank you for responding. I guess I felt like I was doing ok and then out of nowhere things are looking worse. I am still using the Clob twice a day and sometimes use coconut oil in between. I guess I need to work harder at this. Sometimes I am so afraid that I am young and the years of head of me are going to be horrible.

Melissa, clob twice a day is a heavy dose. The thing is it takes many months for clob to settle things down. More time, not more clob. That's why we're all here figuring out additional things that help.

I've come to the conclusion that most of us are quite intense people who have more than one disorder that's made worse by stress. I was really bummed out by my diagnosis, too. Kinda nuts, since at age 62 most of the effects on my life were behind me.

It's not that I'm suggesting you suck it up and get past it, but since being even a little upset will result in a tear in my perineum, I have made peace of mind a priority.

I think your generation is a lot more conscious of appearance down below, what with all this Brazillian waxing and stuff. Many of us crones were pretty unaware of looking different. My husband thought mine was "pretty" when I was young - when I saw the protruding labia of a life drawing model, I thought they looked gross. It's all relative.

Thank you! Did you also start on Clob twice daily? My gyn said twice daily but the dermatologist said not that much. It leaves me lost because no one is agreeing. I am grateful for this forum. I would be so lost without it and would probably have been thru a whole tube already if not for you wonderful ladies.

No, I seem to recall using it daily for a matter of weeks, then every second day maybe a couple of months, then twice a week. I'd go with your dermatologist's advice. I forget the name of the member here who's suffering from overuse of clob.

I think over useing any ointment or even natural products like vit e oil or vaseline can irritate.

I am in the U.S.    When I was diagnosed about 2 or 3 yrs ago, I was told to use the Clob twice a day...in the morning and at night, for 6 weeks...then once a day for 6 weeks, then every other day for about 6 months, then every three days from then on.  About a year ago, my new dr. (an LS specialist) changed my steroid from Clob, to a milder steroid, Triamcinolone.  I was supposed to use it every three days, but everything is looking so good now, and I had been alternating between pure emu oil and pure coconut oil just whichever one I felt like using, then a few months ago I started mixing some Frankinsense essential oil into the coconut oil and I have used that exclusively since.  I mean, I use that every single day, but I do use the steroid about once a month.  I go back for a check-up at the beginning of April.

Thank you. I am also in the US. I have been doing twice a day for 6 weeks so this week started once a day. I was suppose to see the gyn this past week but started my cycle so I see him soon. I am also using coconut oil during the day. This disease is annoying!!

It is definately a bummer, this LS.  But you can make it liveable.  It just takes some time to put a handle on.