New Dr lowered levo. HELP
Posted , 5 users are following.
I've been on 300 mcg Levothyroxine for several years. Was still hypo until I was given Adderall 40 mg day. Except for PTSD was fine. Old Doc retired and new Doc is freaked because my TSH is almost undetectable, T3 and T4 high side of normal. She lowered it to 250mcg and I'm in a tailspin in less than a month. Crying, shaking, cramps in my feet, leg tremors, etc. ANXIETY out of control. Please, please help.
0 likes, 44 replies
shellyC19 brun35406
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My name is Shelly and I am a nurse in the USA. I have Hashimoto's Thyroid disease since 1987.
300mcg of Levo is a huge dose. Most people take 75mcg to 125mcg. If your TSH is "undetectable" as you say, then you are in the Hyper zone. 0.45 to 4.50 is normal range and if you are at 0.00 or so, you are in a danger area.
Too much thyroxine (LEVO) can cause a heart attack and cause palpitations. It is dangerous to your health and your liver at a very high dose!
I think you are not processing Levo well until they raised the dose so high. Your T3 and T4 should not be on the high edge of normal.
There are other thyroid meds that work better. I myself had to go off Levo many of years ago as I was not getting well on it.
Here are the names of many other meds for the thyroid: Liothyronine (Cytomel) is just T3. Armour Thyroid is made from a pig's gland. Thyroid S and Thyroid W, Thyroid Gold, are natural thyroid meds also made from a pig's gland. Liotrix (Thyrolar - is a T3 and T4 combo).
Hyper symptoms are happening in you such as anxiety, leg cramps and shaking, tremors, & crying. I understand they lowered it, but these all fit with overmedicated or too much thyroxine.
Hyper symptoms are: feeling HOT, insomnia, anxiety, huge weight loss, tremors, sweating, jittery, nervousness, panic attacks, fast heart rate, palpitations, headaches....etc.
Hypo symptoms are: feels cold, weight gain, slow heart rate, low energy, depression, muscle aches, brittle nails, bruising, low temp, sleepy/fatigue, dry skin....etc...
I think you need a different thyroid medication, as I said above.
Keep us posted on how you get on. If you can please get your lab report and post your blood levels so we can see what is happening.
Regards,
Shelly
brun35406 shellyC19
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shellyC19 brun35406
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The body is used to a very high dose, and a drop will make some bad symptoms return but such a high dose is dangerous. NDT's like Armour are not hard to figure out the dose on it.
If you are in UK, they refuse to prescribe it because of the policies they have and it is a natural medication made from a pig's gland and you can't license or patent a pig.
If in the USA, it can be prescribed and I was on it for years.
I would say you do need a better doctor and one who understands the thyroid and can work with you to try other meds like NDT's. Please look into that.
Keep us posted, we care!
Shelly
barbara98940 shellyC19
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shellyC19 barbara98940
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i meant that - sorry for the mistake.
Shelly
brun35406 shellyC19
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Meanwhile I fired the other Doc, went back to 300mvg Levo and all the symptoms disappeared starting within hours. I seem to be sensitive to Levo. A day and a half without my Levo and Adderall (in the hospital for small bowel obstruction) my pulse dropped to 38 bpm. I hope this new Doc can really figure this out. I'm writing a critical to take with me. Thank you so much for all advice!!
barbara98940 brun35406
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shellyC19 brun35406
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Okay, thanks for the update. Let us know what the Nautropath says because fresh ideas can't hurt. You need to find what works for you.
XO, Shelly
brun35406 shellyC19
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free T4 0.8-1.8 mine is 2.5
TSH mine is <0.01 freet3="" 2.3-4.2="" pg ="" mine="" is="" 5.4="" reverse="" t3 ="" 8-25 ="" mine="" is="" 34="" thyroglo ="">0.01> <9iu mine="" is="" 2="" signal="" to="" cut="" off ="">9iu ><1 mine is .40
what is your opinion? any help or advice is appreciated. these tests were ordered by my new naturopath, although i had to insist on the reverst t3 test. she wasn't even going to bother with it. mine="" is="" .40="" what="" is="" your="" opinion? ="" any="" help="" or="" advice="" is="" appreciated. ="" these="" tests="" were="" ordered="" by="" my="" new="" naturopath,="" although="" i="" had="" to="" insist="" on="" the="" reverst="" t3="" test. ="" she="" wasn't="" even="" going="" to="" bother="" with="">1 mine is .40
what is your opinion? any help or advice is appreciated. these tests were ordered by my new naturopath, although i had to insist on the reverst t3 test. she wasn't even going to bother with it.>
brun35406
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shellyC19 brun35406
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Well let's go over the blood:
TSH is low which means Hyperthyroid or too much medication should be 0.45 to 4.50 your level is below 0.01 which is no where near the normal and is almost not detectable. This can change by lowering your dose of the LEVO, your thyroid med. A natural thyroid medicine called Armour Thyroid or Thyroid S are better for you.
So you can back off on the Thyroid medication
Now Reverse T3 shows 34 which is saying you are making too much T3 and the liver will have to eliminate the excess out. This is not good on the long term, you want that to be within range and goes along with too much hormone in you.
Free T4 is a bit high so you do not need as much hormone. This is the amount in your blood flowing around, you need that to come down to 1.8 or slightly under that. Too much T4 can make the heart race and you will feel jittery and anxious.
TPOA (Thyroid Perox and Thyroglobulin are good! YAY, good news, as that means your are not having any autoimmune Thyroid disease.
I would lower your Thyroid medication or even it out by taking a lower dose 3 times a week. You will be better for it. Ask your naturopath but many people need to take a lower dose and or an alternating dose. 300mcg is a huge dose and you do not need that high of a dose as you have several abnormal blood levels.
Let me know how you feel and what you think. Any questions just ask.
Shelly
brun35406 shellyC19
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barbara98940 shellyC19
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Brun, I found that when I reduced my thyroxine dose I got hypothyroid symptoms - even if the dose was the correct one. You need to get through the withdrawal symptoms to be able to find out if it is the correct dose. I found the best way to minimise the withdrawal symptoms is to reduce the dose very slowly, by a quarter of a 25mcg tablet at a time every 2-3 days. After a week you will have reduced by 25mcg. Stay at this new level for a couple of weeks then, if you need to reduce further, start the slow reduction again. To find out what level you should be aimng for, do the calculation 'body weight in kg' multiplied by '1.7'. The answer will be your dose of thyroxine required in mcg. This answer assumes that you don't have any serious medical conditions that require you to reduce more quickly.
barbara98940 brun35406
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brun35406 barbara98940
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shellyC19 brun35406
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NDT - Natural dessicated thyroid does not cause autoimmune thyroid disease at all. It is made from a Pig's gland and is almost identical to our own gland. NDT's have been around for more than 100 years and are the original thyroid medicine. NDT's are so much better since you get all 4 hormones made by the thyroid, and they are easily absorbed no major converting problems.
If you wish to stay on the LEVO 300mcg that is up to you. I am only going by your blood work and pointing out the abnormal ones. I understand your symptoms do come back when you do a lower dose.
Dexadrine is a Stimulant used for dieting and appetite control and it can be addicting. It does act like an "UPPER" and will make you feel WIRED and jazzed up, and increase alertness and keep you awake. I will say it helps you to not feel Hypo in the sense of energy & alertness.
I may not agree with the doctor who put you on this Dexadrine, as it is not a good thing to be on long term. You may be okay now but in the future your heart can take a hit and it can place stress on it. I am just being honest. After all you are the one taking it, and if you feel okay then it is up to you.
Read up on NDT's and see if you can get another doctor to prescibe them for you to see if you do well on them. It can't hurt to try.
Any questions just ask,
Shelly
shellyC19 barbara98940
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The ratio is 2:1 on FT3 to RT3 (it could vary depending on the lab).
I think certain blood levels speak for themselves above in the fact that the TSH is not even detectable enough. Never mind the T3 and RT3 which are high and the FT4. Way too much. The dexadrine to boot is so dangerous to the heart on long term use.
I agree with you too much medication is being used here (300mcg of LEVO) and the body weight times 1.7 calculation is safer. Better yet an NDT would be safer & work better on her.
All I can do is suggest this.
Shelly
brun35406 shellyC19
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barbara98940 shellyC19
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For me to feel even vaguely normal when on levothyroxine my TSH was undetectable and my T4 had to be just over the upper range, so I know just how you feel Brun. However we differ in our T3 results. Mine were always in range despite my T4 being too high e.g. TSH= <0.01 (0.4-4.9), t4=22 (9-19), (0.4-4.9),="" t4="22" (9-19),="">0.01 (0.4-4.9), t4=22 (9-19), >
barbara98940
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5/5/2015: TSH= <0.01 (0.4-4.9), t4=22 (9-19), t3=5 (1.6-5.7).
10/11/2014: t4=23.7, t3=4.6 (0.4-4.9),="" t4="22" (9-19), t3="5" (1.6-5.7).="" 10/11/2014:="" t4="23.7," t3="">0.01 (0.4-4.9), t4=22 (9-19), t3=5 (1.6-5.7).
10/11/2014: t4=23.7, t3=4.6>
shellyC19 barbara98940
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This is interesting and at what dose were these results based on when you were on Levo? I never saw anyone on 300mcg most are on 75mcg to 150mcg tops.
I never got that far on Levo, as a 25mcg dose gave me awful loose bowels and cramping hard a lot, and my TSH was in the Hypo zone forever. It got much better on Armour Thyroid for me. I felt normal but it took a long time to figure out the T4 problem I have.
I seem to be very good now on just Liothyronine T3 and no T4 and a lot of the bad symptoms stopped and my TSH is good every 3 months.
Regards,
Shelly
barbara98940 shellyC19
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The only time have been on 400+ was during my second pregnancy. I was really ill, virtually comatose, and my pulse dropped to 38 (normally 60, unless hypothyroid) and my GP & I kept putting the levothyroxine dose up. Got to 400+ before pulse recovered.
shellyC19 barbara98940
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OMG 400mcg wow! I have never seen or heard that high. I thought 300 mcg was nuts!
Amazing you survived 38 pulse, that is shock conditions!
Thanks for the info.
Shelly
brun35406 shellyC19
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shellyC19 brun35406
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Amazing! 38 pulse is really critical. It is alarming.
Shelly
brun35406 shellyC19
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shellyC19 brun35406
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This is good news, I think you will do better on Armour. Please update us all, good or bad.
I enjoy helping people and am doing what i was trained to do, knowledge is meant to be shared.
Blessings to you,
Shelly
barbara98940 brun35406
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brun35406 shellyC19
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barbara98940 brun35406
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brun35406 barbara98940
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shellyC19 brun35406
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Most people need anywhere from 90mg to 180mg or even more of Armour Thyroid. Our bodies are slow and it takes time for the body to process and build a level.
When we take a medication we have some get into our blood stream fast and then some is later excreted via urine and feces. However you have a half life of the previous dose. Then you take another dose and build on the half life of the dose before, so it takes time and anywhere from 6 to 12 weeks to build a level. Most people feel better after a month on it.
If you take a higher dose now, say 160mg or even 180mg you may shock your system with a big dose. Ask your doctor if you can have an increase in the Armour Thyroid. Tell her how rough you feel. It may help.
Keep us posted,
Shelly
brun35406 shellyC19
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barbara98940 brun35406
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shellyC19 brun35406
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Give it a chance to build a level. I wish our bodies were faster but sadly our bodies take time to adjust. Hormones also by protocol you start low, and then add more after time. Do log it as Barbara says, because you will be able to see what symptoms fade away and even if it is small like skin changes keep a log. It is hard to remember it all as time goes on.
Keep us updated on how you do, we all know how it feels.
Shelly
brun35406 shellyC19
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shellyC19 brun35406
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Sounds like the Armour is doing it's job. Give it some more time and most people are on doses of 90mg to 190mg. So as time moves on they will test the blood and then we will know how your blood is doing.
Keep getting well, and keep us updated,
Shelly
brun35406 shellyC19
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barbara98940 brun35406
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brun35406 barbara98940
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barbara98940 brun35406
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brun35406 barbara98940
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