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Ovarian Cyst with unknown nodule found

Posted , 2 users are following.

kate43953
kate43953

After going through a very scary time, I wanted to post a comment on here to provide some information and hopefully reassurance to anyone who maybe going through the same thing. I am 27 year old and experienced abdominal pain for four months.  I thought it was perhaps IBS but something inside just didn't feel right. I went to the doctors with symptons of abdominal pain, bloating and needing to wee a lot and after feeling my tummy, the doctor referred me to have an ultrascan. 

My ultrasound didn't go as well as I wanted as the sonographer found a 6cm cyst in my right ovary- they found an unknown nodule on this and said she was concerned and due to my age would fast track me to the specialist. This appointment was two weeks away and the longest two weeks of my life! Before my appointment I was told to have four blood tests, one of which was for the ovarian cancer tumour marker ca152. 

Two weeks had passed and my stomach pains had got worse, however I now think this was down to anxiety. I saw my consultant today who told me all tests came back fine and no cancer has been detected- phew! The cyst is quite a simple cyst and although 6cm, it may go away by itself. I have another appointment in 2 months to review the cyst. The nodule was not a tumour, I still don't quite know what it is but it could be anything from a hair folical or skin tag.

Although everything turned out well for me I wanted to write this so that if someone is going through having a cyst with an unknown nodule- it's not always cancer. I think a lot of people jump to the 'C' word and I am very guilty of that. So if this post reassures just one frightened person, it was worth writing

2 likes, 7 replies

7 Replies

  • peasblossom
    peasblossom kate43953

    Posted

    im still waiting for my app with the gyno and my cyst is only 3 cm but I dont get why there happy to leave us in pain just incase it goes on its own... they never say it could grow and youll need it out anyways so u go through pain for nothing sad im in alot of pain with mine and have been for weeks. I also pee alot and have back ache xx hope u get sorted and ty for sharing your story xxx
    • kate43953
      kate43953 peasblossom

      Posted

      Sorry to hear you are in pain with yours, if it gets worse I would go back and see the doctor. They told me they won't remove mine yet as it's likely to go away and if I did have it out, like all surgeries, the prodecure does run risks (although these are rare). If I still have it at the same size in 2 months time I think I'll push for the removal. Hope you gets things sorted and the pain reduces for you.

  • sandy67
    sandy67 kate43953

    Posted

    I was due to have mine removed along with the ovary and tube, endimetriosis and adhesions separated. I hae been in to a and e in agony twice in the last 6 weeks, cysts have doubled in size during that time and I have been practically bed bound so was really looking forward to getting this sorted. Minutes before I was due to go to theatre I was talking to anaesthetist, him going through a series of questions which resulted in him saying the op was too risky! So I am back home, in bed, in agony. My CA125 has been raised in the past and my period seems to have stopped and I have no idea what or when anything will be done now! The risk though was that because of the fact that my arms go totally numb whenever I sleep in my back (due to aserious spine injury many years ago) I may become permanently paralysed so there was no way he was gonna do it till I have more xrays, scans or whatever on my neck. Can't take much more of this pain though. Mine is a cyst within a cyst apparently and growing! I have had them in the past and they have gone of their own accord. It is pretty obvious now though that this one is going nowhere and causing as much trouble as possible. I a taking morphine for the pain ad that it even doing much good!
    • kate43953
      kate43953 sandy67

      Posted

      sandy67 you poor thing, it sounds very painful. Can they not drain the cyst instead? I'm obviously no medical expert but there must be something that can be done in the meantime?
    • peasblossom
      peasblossom sandy67

      Posted

      could I please ask what ca125 is please xxx and sorry u are going through all this .. it must be awful xx
    • sandy67
      sandy67 kate43953

      Posted

      Apparently not, as they also need to remove the ovary, tube and endimetriosis, but I am just waiting now to see what can be done. Meantime I am off work - again! Only recently returned after 18 monts off due to problems with rheumatoid arthritis, bedvound mostly. So I may end up losing my job with time off work now. Starting to feel pretty desperate about everything. The pain, the job worry, the financial situation and te possibility of being paralysed! Its all just too much to take I cant think straight. Thank you for your kind words x
    • sandy67
      sandy67 peasblossom

      Posted

      it is a cancer marker but please dont worry if it is only slightly raised, it can be due to other gynae problems. I believe it has to be over 100 before they worry about it x
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