Please help me, I don't no what to do!!

Posted , 9 users are following.

my daughter is 25 months old, since birth she has had extreme behaviour problems. Can anyone relate to my story or maybe had a diagnosis or even offer ANY advise, I feel like I cannot cope anymore, and often wonder how I can continue to live like this anymore.... 

I am going to seek medical advice, but I am worried about health visitors and doctors telling me it's normal and thinking I am a hypochondriac.

My story so far.

Daughter was born and did nothing but scream for the first 12 hours of her life.

She has always clung to me, never been able to cuddle her dad or other family members (so basically left to deal with this alone)

She has never slept properly

She has extreme (super extreme) tantrums for no reason, tantrums can last for 4 hours at a time. Screaming, crying, head banging, smacking her self, stops breathing, bites herself. These as I said for no reason, sometimes just because she has woken like it or has just 'flipped'. 

She would never cuddle anyone else but me from birth, but when I had a shower and clean clothes on she wouldn't even want me, she would scream for hours until I put my dirty clothes back on. As she got older this subsided, but I knew something was wrong then.

She is very obsessive, she became obsessed to watching the same tv program and would hit me with the tv remote until I gave in (which I didn't give in easy I have other children and it most definitely is not spoilt brat syndrome) she became obsessed with the same drink, the same food....

She has an extremely good pain threshold, she can fall over and bang her head for example and never even wimper.

She is relentless, she won't give in, I cannot explain enough how abnormal her tantrums are. She just gets worse, she ends up making herself sick from crying. She kicks, punches, pinches me! Let alone what she does to herself, chucks her legs out, bites herself, punches herself, bangs her head on the floor and even stops breathing. She turns her lips blue.

My family history is quite plank as my mother was adopted, but I know that I had ADHD (undiagnosed) and I feel I still have it mildly now 

Her dad has a lot of depression on the one side of this family and he also thinks he me have a mild anxiety problem.

Anyone else had this experience with a child. Any help, stories or advice is much appreciated. 

Also want to know, should I go to health visitor or doctor? 

Worried about their response, will they think I am mad thinking my oh so young baby is mentally ill?

What on earth is wrong with my beautiful baby, what can I do, how on earth do I cope.

 

Help me!!!! 

0 likes, 10 replies

10 Replies

  • Posted

    Also, she has recently been fine when going to town with her daddy or nanny. And 90% of the time is OK whilst out and about. She has always been ok with children, but not adults. 
  • Posted

    I would video tape your daughter and seek help immediately. It is difficult to explain such behaviour. Heartbreaking! Hopefully she is not autistic, try and do as much research as possible. Good luck.
    • Posted

      I have filmed her recently because I knew I would have to 'prove' myself but I cannot manage to even begin to explain her behaviour. 

      Thank you for your responsesmile I wasn't sure if anyone would even see this post. 

      I'm sure it's not an autism problem because she can communicate and does sometimes laugh etc. 

      Thank you x 

  • Posted

    You really should seek medical advice as soon as possible, I am sure that no responsible doctor/psychologist would accuse you of malingering. Making a video of your daughter's behaviour is a good idea, as sometimes children can behave very differently when being assessed than when they are in their home environment. Another thing that would be helpful would be to keep a journal of your daughter's behaviour, noting every instance of a behaviour that you feel is inappropriate, e.g. biting, screaming etc.  - describe the behaviour, note the time it occurs, how long it lasts, and what was happening just before it occurred. In this way, you will have a document to form the basis of a meaningful discussion with medical personnel, and it also might be useful in identifying triggers for her behaviour. Keep this journal faithfully until you get an appointment. I wouldn't presume to diagnose at a distance, but not all children on the autistic spectrum are incommunicative. Given that her behaviour has been erratic from birth, there could possibly be some sort of intolerance problem.
  • Posted

    Hi I really think your daughter is far too young  yet to be held responsible for her behaviour She is not much more than a baby. Two year olds can be a nightmare but she will start to improve if you are consistant with her and give her lots of love and patience. Please hang in there before you take her to any psychiatrist or psychologist  who may label and drug her . I am very much against drugging little children as it can make matters worse in the long term and damages childrens health. Please try getting her involved in something like swimming or dancing and reward her when she is good Kids are very unpredictable and with patience she will simply grow out of it.  Dont give up!!
  • Posted

    Glad I came across this .. I have had the sMe trouble . My daughter is now 5 next week and escalating really bad both aggressively and violent now.. I have intern courses had social services in they just looked at the here and now .. I'm back at go Tomorr as I suffer real bad with my health and putting my down saying we are in crisis now . Also got an another appointment for my daughter on Monday as she been discharged strangley from her pedatrion and again I'm Gonna stress we are in crisis .. So fight on a mothers instinct should never be left ...
  • Posted

    Have you seen your doctor, Smurfete?  Keep a journal of every event, with the date and time.  These symptoms aren't typical ... video taping is a good idea.  

    I see you've had some good replies to this: I'm not sure I agree with Wendy.  I'm a psychotherapist (CBT).  See the specialists; take advice.   They may be able to identify a syndrome, and perhaps advise on behavioural approaches.  But remember especially, Smurfete, that this is not your fault.  

     

  • Posted

    Hi!

    Hope you can cope with my poor English. 😉

    I just want to tell you you're not alone having children with a Neurologic disorder. Maybe your little girl has one, or she might not. IF she does, there must be a way of grtting help somehow.

    (I'm from Sweden and don't know how it's working in England).

    As for us, our whole family has just ADHD, or ADHD along with another diagnose.

    The father to our children (my husband for 27 years by now, was diagnosed at age 39), our son (age 16, diagnosed at age 7), our youngest daughter (age 11, diagnosed when she was 5-years old, though she didn't start to medicate before she got 8-years old) and they're all having ADHD,.

    I was dubble diagnosed as having ADHD, and Bipolar type 2 at the age of 36 (ADHD), Bipolar at age 41. Our oldest daughter (turning 24 this year) was diagnosed with ADHD at the age of 18, and Bipolar type 2 and GAD at the age of 21.

    Having a Neurologic disorder doesn't mean you're stupid, which is a common misunderstanding amongst people.

    Often are those with Neurologic disorders very bright.

    Steven Fry is an example of having Manic Depression disorder (Bipolar type 1) and being a genious.

    Having a diagnose is nothing to be ashamed of, as I understand that you doesn't think either and I hope it's not going to stop you from getting help. I think you're just afraid they are going to turn you down. And that's normal.

    Having read your story I'd get really surprised if they did. You definitely need some kind of help!

    A diagnose are not somthing you can choose not to have, not for now anyway. Some develope a Neuropsychiatric diagnose depending on genes eventually inherited and you will get those genes even if you don't want them.

    The choice aren't ours to make. The same goes for physiological diseases. You don't choose to have them either.

    In general people are afraid of Psychological disorders as you can't see who's got it.

    Sometimes I've been thinking: -What if I got a bandage on my head and told people I had fractured my brain? Whould they be less afraid then?

    (Well, none of my disorders has caused anyone trouble, other than tiredness as I tend to speak a lot 😉).

    Having said that, I think you are a reasonable woman, AND you must learn to trust yourself as being a mother. No one knows their children as well as their parents do.

    You seems to be a strong woman. I'll cross both thumbs and toes for you! 😊💪👍

    Good luck!

  • Posted

    Hi, we have a 26 month old toddler who displays similar behavioural issues as you describe in your child, as a family we have been through he'll for the past 18 months but it's nothing to what our little one has endured, extreme terror at being separated from parents, ocd behaviour , night time terrors bordering on what I can only describe as possession, it was all so extreme and surreal at times, 4 doctors told us it was tantrums the terrible 2s Tec and recommended parenting books, we have 2 other children who are great kids with no issues! Finally we took her to an A&E paediatric unit within 10 minutes they gave a clinical diagnosis of Pandas/Pans syndrome and prescribed antibiotics, the change was unbelievable from being a tortured child with extreme irrational behaviour to being the most pleasant loving social child you could imagine, she has had several relapse but we can spot the signs very early now, they're usually triggered by illness, and within a day or two of the antibiotics being prescribed her symptoms disappear or reduce dramatically. Do some research there are a few forums and some clinical studies in the USA one of which has just finished recommending treatment, be prepared to be knocked back by your GO as its rare but your Paediatric A&E dept should have had a case, mine had 3 cases in the last 5 years. Good luck I know how heart breaking it is to see a child suffer and no one listen but your not alone.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.