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Polycythaemia. Taking Anagrelide

Posted , 5 users are following.

janet37924
janet37924

Hello

Used this forum when first diagnosed almost 6 years ago.

Been plodding along quite reasonably on Hydroxicarbamide.

Until last year when I developed an ulcer on my ankle which wouldn't heal due ti the Hydroxicarbamide.

So Anagrelide prescribed instead in about January. This doesn't seem as effective and my Blood Levels have been all over the place.

Has anybody else with PV been taking Anagrelide and if so how have you found it?

Hope somebody can help

Janet

0 likes, 4 replies

4 Replies

  • justin23294
    justin23294 janet37924

    Posted

    I was also taking Hydroxyurea for essential thrumbosethima and jak2. after a few years I lost my food taste .about six months ago I stated taking Anagrelide. My food taste has slightly improved .I have no side effects so far. I'm taking 12 mg per week .My platelets are now in normal range. Other than price , $8 for Hydrixyurea vs $40 for Anagrelide with my insurance ,I feel much better with Anagrelide .

  • niloc47
    niloc47 janet37924

    Posted

    ulcers and lost food taste, main two side effects of hydroxycarbamide for me..

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