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Prinzmetal angina

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spotty1978
spotty1978

Hi all,

Let me start by saying I'm so glad I have found this group is thought I was on my own with this.

Right 2 years ago I was diagnosed with prinzmetal angina after having a attack whilst having a angiogram previous to this I was in and out of A&E like a yo-yo with chest pains and all the tests showed clear ecg and bloods until one episode a specialist visited me and noticed a problem with the top of my heart and wanted to investigate further hence the angiogram. I was given ibosorbimononitrate and gtn spray these seem to help and I started to lead a normal life up until now a couple of days ago I was watching TV with my wife in bed and I had the most severe attack which lasted 2 hours I managed to ride it out using my spray and asprin, the next morning I felt ok until I was out and then I had another attack so my wife took me to A&E they did the tests found nothing wrong but gave me morphine to relive the pain which it did but morphine is horrible sicky feeling.

So I was kept in placed on a heart monitor and I keep getting the attacks but these do not show up on the tests and I'm sure all the nurses think I'm putting it on even though I have been diagnosed with it.one nurse even said she has worked here 12 years and has never heard of it.

I'm 37 years old and at my wits end my quality of life at the moment is horrible I've gone from being active to being a recluse only going to work and then having to recover. I've tried veramapril but this made me woosy so I'm not using it. I just don't know what to do anymore or who to turn to I feel so embarrassed going to hospital as I'm sure they think I'm a hypochondriac. The only saving grace is I have a brilliant wife and mum who have always believed there was something wrong but when I get these attacks I get nasty with my mouth as I am in pain most of the nurses think I suffer from panic attacks but this isn't that.

Any advice would be so welcome.

0 likes, 3 replies

3 Replies

  • linda89207
    linda89207 spotty1978

    Posted

    Hi what part of the country do you live I have been diagnosed with microvascular spasm angina and coronary artery spasms and have been to a&e many many times if I am unfortunate to be seen by a doctor who won't recognise this because it can not be seen on normal testing I am fobbed off with probably reflux which can present with same symptoms but there are some symptoms not experienced with this i.e. heartburn problems swallowing so now on instructions of my cardiologist who diagnosed me I go only for troponin blood test and tell them I have already got a diagnosis. It is a hard battle as if life isn't hard enough with this disease. Even so last week after A&E stay was referred to gastro who said he didn't think it was gastro related but because an arrogant cardiologist had referred me he wants me to have a endoscopy doesn't make sense to me and very reluctant I am on a very large cocktail of meds but still have attacks at rest. Good luck.

    • spotty1978
      spotty1978 linda89207

      Posted

      Hi I'm in the north east lincs region and it's Grim😉......I was first told it could be a reflux problem as well and I'm also on loads of meds doesn't help with under active thyroid too. Having to explain time after time is so frustrating to and you get the look from the doctors like I am making it up.
  • linda89207
    linda89207 spotty1978

    Posted

    Hi, just tell them you have been diagnosed with Prinzmetal Angina ? by ? told to come in if GTN doesnt work for trop test, that should get you past the inquinition hopefully 
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