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Rapid Heartbeats

Posted , 7 users are following.

debby01
debby01

Does anyone get days where you feel unable to do anything and just want to

lie down. Do you get breathlessness and rapid heartbeats that just come on.

I know I am meant to be doing things but it's so difficult when you feel terrible

3 likes, 18 replies

18 Replies

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  • belinda45747
    belinda45747 debby01

    Posted

    Yes everyday find it difficult to do tasks I get very breathless and my heart races as soon as I move. B

    Since September my life as changed I was so active before now I struggle everyday to mobilise. I get very depressed, down because I miss doing the things I enjoyed, going to the gym and socialising with friends. It really scared me when I was rushed into hospital and could not breath and was put on oxygen I just hope I don't go through that again. Now I am on medication for the rest of my life and have blood tests to keep an eye on my INR. I just keep doing the best I can everyday Belinda

    • debby01
      debby01 belinda45747

      Posted

      I know how you must be feeling, I was very active before and

      loved being out and about, now I feel a shadow of how I

      used to be.

      This forum has been a great help and it is good to know that you

      are not alone.

      Keep positive and things will get better and easier.

      Take care

    • debby01
      debby01 belinda45747

      Posted

      Hi Belinda

      I know it is horrible and so scary. I am out in the car with my partner and my brrathing went all weird and i felt terrible,now i just want to get home. Yesterday i had quite a good day and now today terrible...

      I am 52 and like you say, it totally changes your life.

      Take care

      Debby x

  • lizzie70061
    lizzie70061 debby01

    Posted

    Hi Debbie. yes I get times when I just haven't got the energy for anything. .I just do what I can when I can. I don't push myself too hard. I realise now this will mend in it's own time.

    • debby01
      debby01 lizzie70061

      Posted

      Hi Lizzie

      That is the best way to go, do what you can and rest when you need to. It is just such a shock when you feel so limited.

      Take care

  • rona92956
    rona92956 debby01

    Posted

    Hi I had my PE 2 yrs ago and still have days like today where I have no energy

    i just rest it's the only way to go I agree having a PE ruins our lives I struggle to walk like I used to and swimming is very hard I hope you start to feel better just try to. Be happy that you are still here 

    • belinda45747
      belinda45747 rona92956

      Posted

      Yes I totally agree with what you are saying I am lucky to be alive. My doctor said he's suprised I am still alive he told me the truth that I had a large clot and lots of small clots on my lungs. I try to keep positive and keep mobilising as much as I can. I have seen what happens to people when they give up and it's not good. I hope we can help each other it's nice to talk to someone who is going through the same thing Belinda

    • rona92956
      rona92956 belinda45747

      Posted

      Hi Belinda , thought I would talk to you again you didn't say how old you are 

      I was 72 when it happened to me I have never got over it like you I am so lucky to be here My specialist tells me it's the scaring that stays in our lungs that cause our breathlessness and because our lungs don't work at full capacity anymore my clots were huge and went to both lungs Hopefully you are young enough for your lungs to heal so keep. Your chin up and look after

      yourself 

    • debby01
      debby01 rona92956

      Posted

      Hi Rona

      It has been such a shock and a real life chager.

      I am so glad that they found them when they did and I do feel better than I did, I guess it is a long slow process but be positive and just do what you can.

      Take care

  • acrdpt
    acrdpt debby01

    Posted

    It's 2yrs now since I had bi-lateral PE's. I still get frequent episodes of both breatlessnes, rapid heartbeats and palpitations. I have been to a variety of specialist and got no explanation so I am just living with it the best I can. I use to work full time but now I can only do 3 days a week. My life has totally changed but I am happy that I am still here.

    • belinda45747
      belinda45747 acrdpt

      Posted

      i am really happy you are working 3 days you are the first person who I have spoke to that is able to work. I have spoke to different consultants and none of them as been able to give me answers. I just keep going day by day. I don't know if I will improve or not but there is no point worrying about it. I just wish doctors could help more

    • acrdpt
      acrdpt belinda45747

      Posted

      It did take me over a year but after that I was slowly able to get back to work.

      It would be great if someone could tell us how long these stressful symptoms    will continue. Good luck with your recovery - remember at least we survived.

    • lizzie70061
      lizzie70061 acrdpt

      Posted

      Hi pleased to hear that you are able to get back to some sort of normality. I had started to think perhaps I was just letting the clots take over almost. This forum has helped me so much and only found it a week ago. Thanks to all of you for sharing. Keep smiling. x
    • debby01
      debby01 acrdpt

      Posted

      Hi Acrdpt

      Yep it is a total life changer and I am so glad that they found the PE's when they did, it went undiagnosed for about 3 weeks.

      I am looking forward to getting back to work at some point, and I am so happy for you that you are able to do part time work.

      Like you say take every day one at a time smile

      Take care

    • Sway
      Sway belinda45747

      Posted

      You will get better. Im about 14 15 weeks post relatively small bilateral pes. my first month i could bearly work now i can work full time. I do get slight chest pain every now and then but im pretty good. Its hard but you will get better in time. Your body needs time to heal.
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