Posted , 4 users are following.
I have posterior scleritis which is in the back of my eyes. I have been on prednisone methotrexate and now humira. So far no improvement. Effects from the inflammation appear to be out of breath, major fatigue, internal weakness and shaking inside. Does anyone else have those symptoms
0 likes, 3 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
carole30337 jeffrey24350
Posted
That all sounds normal for being on prednisolone Jeffrey, don't know about the humira.
Been on Preds for almost two years now for the same reason, scleritis, episcleritis & iritis but now down to 12.5mg on a slow reducing plan. Hope you are improving.
Pamela_Elle jeffrey24350
Posted
I too, have been on the same combination as you. For me, the Humira has caused the most adverse side affects: major fatigue, out of breath, dry mouth, headache, fluttering in the throat(which they say is connected to irregular heat beat, and swollen feet.
shauna65365 jeffrey24350
Posted
Hi Jeffrey,
I have been on everything you are on as well. Once I was able to get completely off the steroids the shortness of breath and internal weakness went away. The Methotrexate causes Major Fatigue for me. Humira is the only thing I actually don't have the worst side effects from. I was on it every other week and am now on it once a week and I am completely pain free in my eye. My eyes are still red and I am not in remission but its really great to have no pain.
I think you may want to see if you can taper of the Prednisone? and increase your Humira to weekly. Did you notice any improvement after taking Humira?
Smiles
Shauna