Posted , 9 users are following.
I have had a sore tongue for quite a few weeks. No apparent thrush. Tongue has a crater like appearance and is a bit red. I am assuming it is the Pred. Has anyone had anything similar? If so how did you do to treat it. Thank you Kathy.
0 likes, 19 replies
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celia14153 Kassiebeetle
Posted
If you're in the U.K. I'd go to a pharmacist. They should be able to tell whether or not you could get something for the symptoms you describe. I had something like that, not due to Pred. Uncomfortable but went away on its own eventually.
Kassiebeetle celia14153
Posted
Thanks for replying. I live in Australia I am due to see the my GP next week. I don't know why I haven't mentioned it to her before. I think sometimes the discomfort of PMR takes over my thoughts and I forget to mention other stuff. I will try the Vit B as suggested by MariGrace. This forum is such a great support for us all.Take care.
MariGrace Kassiebeetle
Posted
With a different autoimmune disease, I've struggled with canker sores, sore mouth, etc. The treatment that has helped has been vitamin B6 -B12. My vitamin D is very low, too, so take that, but it is the B vitamins that have help my mouth issues over the years. I have noticed that with the onset of PMR 4+ months ago, my canker sores have been recurring so restarted the B.
I'm on 30 mg of prednisone- down from 60 at the beginning.
Hope you find something that helps.
MariGrace - very thankful to be learning so much from the members of this list.
Kassiebeetle MariGrace
Posted
Hello MariGrace. Your suggestions are very good. I didn.t think about the Vit B-B12. As mentioned in my post to Celia I am seeing my GP next week so will ask if it would be worthwhile having a Vit B shot. How are you going on the 30 mgms of Pred? I wouldn't get any sleep if I was on that dose.!!!!. I am on 13.5mgms reducing down. I seem to be very sensitive to reduction in doses. You take care of yourself.
ashley2153 Kassiebeetle
Posted
Hi, I'm on here because of my husband and his issues. I'm not on any medications like prednisone. I was having trouble with my tongue this past spring and summer with the same description as you. To make a long story short I was given a B-12 shot for another reason and my tongue completely healed up. So I would try a vitamin.
Good luck as it is annoying.
Kassiebeetle ashley2153
Posted
Michdonn Kassiebeetle
Posted
Kassiebeetle, yes I had a sore tongue last year while on Pred. Seem to get less painful under 10 mg. This year after flare less discomfort in the mouth, but definitely not normal. To me just one of the Pred side effects.
Think positive, smile on my face. 🙂
Kassiebeetle Michdonn
Posted
I am glad that you and others have had similar symptoms. It is good to know we are not alone in this PMR journey. I am also taking oral steroids in the form of an inhaler for Lung disease. That wouldn't be helping either. But as I mentioned in the original post I don't have any signs of thrush. So me thinks this is something different. Thanks for your advice. Cheers Kath
Michdonn Kassiebeetle
Posted
No, Kath we are not alone on this PMR journey. This forum has been a great help to me. I have learned more about PMR with the guidance of the people on the forum. EileenH has been unbelievable sharing her knowledge. I have a Rhemy who will not think out of the box, her way or the highway. I am affraid that we will have a falling out shortly. Without the forum I would be lost. Think positive, smile on your face. 🙂
EileenH Kassiebeetle
Posted
Don't assume it is pred - except it could be a form of thrush which doesn't always appear as white curds! Do check with your doctor.
Out of interest - what do you mean by crater-like?
Kassiebeetle EileenH
Posted
EileenH Kassiebeetle
Posted
Not too bad as far as I know - he doesn't say much! The first 2 weeks he was very tired but that seems to have improved.
The biggest problem is the weather! After a summer that was 3-4C too hot, we are having an autumn that is 3-4C too cold. Which would be fine but we are using the campervan to be closer to the r/t unit! Means half an hour drive instead of one and a half hours but it is a bit chilly outside at present. My granddaughter pointed out it was normal for them - but we are spoiled after 8 years here! We'd normally be away with the van at this time - but with this sort of weather we'd also elect to either stay at home or go further south! Ah well...
Michdonn EileenH
Posted
Best thoughts for your husband, hoping his journey is a smooth one. Thanks for your help on my journey.
🙂
EileenH Michdonn
Posted
Michdonn EileenH
Posted
You are most welcome! 🙂
margaret89358 EileenH
Posted
Good luck to your husband Eileen. My husband is cancer free after 5yrs not good side affects, but it is good support our husbands, as mine is very supportive with my PMR, since reading some of the forum comments He has a better understanding. If it is any concellation Eileen the weather in the UK is not good, I was expecting an Indian summer in September after such an awful August.
oh well can't have it all, on a lighter note I believe it is 98 days until Chidtmas🎄
Look after yourself as welll as looking after your husband.