What causes your flare-ups?

did u have a surgery to try to fix this?

maybe this will help you afford health insurance... http://familiesusa.org/sites/default/files/product_documents/enrollment/Consumer_Health%20Insurance%20Basics_FACTSHEET_GettingHelp_063015_web.pdf

• Yes!!! My symptoms flare up when i am stressed, exhausted, or overly active, i can't even bend over without getting so light headed and dizzy, I always have a headache tho just most day's it's mild and tolerable, but when my symptoms flare up they are so severe i can't keep my eyes open, can't be around light. Sounds, the littlest movement or touch makes me vomit, That's not even to mention all the other symptoms like confusion, balance, speech, numbness in face, back, leg's, hands and feet, forgetfulness, nausea, and Pain, those are the main one's sometimes i have a few other that happen like when i would be walking my body would pull to the right or the left, that's around when i first got diagnosed with Chiari, i s told i needed a full body/back MRI but my doctor won't order it for me, because she says it's too much radiation, but i feel something is wrong, the numbness and tingling in my back are getting worse. I just wanted to reply and tell you that you are not alone. Try to keep yourself calm, ask your doctor about topamax it has really helped for me besides the numbness and tingling i have but with the headaches i haven't had a sever one in awhile, i an i always have a pressure headache but it is very mild compared to what i usually had 5 days out of a week.....Good Luck!!!

Most major syndromes and illnesses can be linked to inflamation...including Chiari. When we put my daugher on a low sugar and gluten free diet for ashtma, I went on said diet also for empathy so she would feel she was not the only missing out on foods normally used to eat. Well, this diet is anti-inflammatory and did wonders for my Chiari symptoms...because it helped reduce inflammation and helped reduce cortisol levels linked to wheat and sugar intake. Miracle for her, greatly helped me. Also, I had Chiari decompression surgery and it did nothibng for me...like for most. But, then I had filum terminal dissectum surgery...which is basically a 2 inch incsion abover your intergluteal cleft (butt crack) and it got me out of bed and living living live wonderfully. Research said dissectum surgery. Gets rid of the cause of Chiari for most who have the surgery, unlike decompression surgery which is a tempoaray bandaid. God Bless and know that HOPE can be found, and you do not need to live the rest of your life with the symptoms.

hello. i get nasty flare ups when the weather changes. when it rains, oh my. I did have decompression surgery in 2016 which has done nothing for me. in fact now, even more symptoms have shown up. the pain in the base of my skull is like a stake driven in, severe neck/shoulder pain. my hands are numb, tingling, shaky. I have what my doc is calling a "dead foot" on the right side. my face droops a little on the right side during these flare ups. my lower back just throbs all the time now. forget bending over to stretch it out, otherwise the dizzy spells increase. i tend to veer off to the right while trying to walk. also something strange... sitting is becoming an issue. My tail bone starts to hurt unbarable, almost like im sitting directly on that bone....does anyone else have this? im 51 yrs old, have no quality of life. im missing out on so much, im ready to give up. No one understands because i look just fine. i had an incredible support system, but now, it is starting to weigh on my marriage and family. i was denied disability, no way i can hold down a job, i have more down days then i have functional days. the constant headache is bad enough w/o extra flare ups. I am so glad i came across this discussion and seeing i am not alone. God Bless you all. i didnt mean to rant, just so tired of "NOT" really living.

Thank you for sharing, just been diagnosed with it and that's what I've noticed, daily headaches all the way down to my neck and shoulders and numbness on my hands. Also struggle with my fine motor so I am always dropping things and sometimes it affects my walking where I fell down the stairs at one point, also, with memory issue.I did notice that under stressful situation or environment symptoms gets so severe. I am grateful that I've found this discussion, some people think I am only faking but it's good to know others who have somewhat similar symptoms.

First off I feel for you Nissa It sucks that your hurting and I hope it gets better for you.

Secondly quit killing yourself for your job/career choices. It's not worth it your health is really all that should matter to you. It's a lesson that I have had to learn as well. You are not responsible for the company you work at failure to adequately staff itself. I don't know if your from the states like me or the UK as they are different work culturally as well as work rules and law wise, but I know the feeling of shame and remorse from leaving your co-workers farther in a lurch than they already are. In the end though it's not you or your chiari that is the problem remember that, and if your in the states and they want to make it a issue or hard on you make sure to get FMLA and use it as you need.

lastly, yes! My symptoms start for a multiple of reasons like stress laying down with my neck in a incorrect position, working out over excessively, barometric pressure shifts, to silly things like standing in front of a forced air heater vent when its blowing hot air.

Again take care of yourself and I'm rooting for you.