*2 tony 15641

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Hi everyone been to doctors this morn only consultant put me on carbocisteine plus antibotics which are not working im wondering if anyone else falls asleep wen watching tv plus doctors dont really know much about bronchiestis now trying to say my diabetes not helping does anyone else who as got bronchiestis suffer with diabetes i would like to ere from you

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  • Posted

    Hi Tony, I dont have Diabetes but I do take Carbocisteine, my colsultant explained to me that it is good for helping with secretion as it would help clear the chest. this does work for me, I take it long terms (been a fews years now) but I dont experience any symptoms with it. it may be the antibotic you are on, if so go back to the doctor let him/her know that its not working for you, they should be able to change your antibiotic. 
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    • Posted

      Ive telled them this morn ive only been on carbocisteine for month so think i need to give them bit longer but thank u for ur advice its nice to know ur not alone with bronchiestis thank u
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    • Posted

      Sometimes it can take up to 6 weeks for it to kick in and if your taking antibiotics, it can be a while before you notice wether it is effective or not. And your most welcome if ever you need to ask anything feel free to message me or write a post.
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    • Posted

      Hi thank u for advice just finished 10 day course of antibotics stii no better so another trip to doctors sent sputum sample in say come back all clear will give carbocisteine chance to work thanks again
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    • Posted

      Your welcome. I know how it feels when your not well and you get negative results on your sputum sample; but just because its not a positive result does not mean that there is nothing there. This is what happened to me at my GP's. Later on when I went to see my respiratory consultant I told her what had happened, she explained to me that a negative result usually indicates that there may be more than one bug growing. Suffice it to say she was not pleased with the GP not doing anything after that result. I was then admitted for a course of IV antibiotics. 

      I often find that when it comes to GPs its like pulling teeth. they dont know how to treat it so ulitmatelky the paitent becomes the expert, dont let them beat you into submission; if you want something kick a fuss (in a polite way of course); it lets them know that you know what your rights are and what their protocol should be if they can help you.

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    • Posted

      Yes I'm Def going back to doctors so looks like more antibotics just wished I didn't feel so tired no energy but will post on ere let u know outcome thanks for advice

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    • Posted

      Hi Tony, if you still feel tired, eat 3-4 dates in the morning. It should give you energy to last the whole day.
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  • Posted

    Hi tony ,I tried carbocisteine and had really bad headaches so I stopped taking it,I also feel very sleepy I think that part of the bronchiestis ,I had a infection for 4 weeks and had three lots of antibiotics I'm am on clarthromycin for two weeks ,all this week it's taken me all my time to stay awake at work it's very difficult sometimes ,I don't have diabetes but it must be hard having both illness ,also my doctor is the same it sometimes is very frustrating trying cope with a illness the doctors struggle copping with ,take care Jokeys

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    • Posted

      Hi Jockeys thanks for ur relpy i was wondering if i was going mad but u put my mind at rest knowing u get tired there is a list of other ilness i suffer with but this bronchiestis chest infection gets me down more so its took me 2 yrs to find out what was wrong it must be hard for u avin to work im my self are retired glad to know there is someone else we can talk to thank u ope u feel better soon
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  • Posted

    First the tiredness. From my own perspective and having read the bronchx threads for some time, all/most bronchX sufferers get periods of tiredness and sometimes exhaustion.

    I don't think it's a side effect of antibiotics but linked with the disease itself. There are times when we do not get enough oxygen into our lungs (due to narrowing of airways and mucus detritus blocking paths) and it is that impact on our blood that causes the tiredness. I have found that when I feel the onset of tiredness it's usually when I have been sedentary and if I get up and walk around briskly I can get more oxygen into the lungs. It seems to help the majority of the time. I must admit that sometimes I just let it wash over me and sleep, largely when it has impacted my motivation, but I think the gentle exercise solution is probably healthier in the long run.

    People with real problems of repeated exhaustion that goes beyond tiredness really do need to discuss this with a specialist, so that oxygen levels can be assessed. There is something called oxygen therapy which I assume means that you keep a bottle handy at home/office and have a session of inhalations when the exhaustion washes over you. Again, something to be discussed with a pulmonologist.

    Which brings me to the second point. BronchX is a chronic disease and it is vital IMO to get professional experienced analysis and subsequent monitoring (which might only be annual if you are under control). Only pulmonologists - and preferably one who specialises in bronchX (usually as one of several lung issues they deal with) can give proper advice and monitoring. In state health systems that means pestering your general practitioner to refer you. Only if we push will the state system respond with putting increased resources behind the disease.

    Easy for me to say with my UK private medical health cover (which I pay for of course), to deal with regular monitoring, and access to cheap pulmonologist advice in a low cost country (Thailand) at other times. Worth considering paying for some limited advice and monitoring if your household budget has any flexibility and your 'free' system is refusing to give you proper medical attention? I recognise that will get some howls of derision from some of you who are less fortunate than me. Clearly retirees on a state pension and with no other resources have to make the most of what can be levered out of the system (though I had parents who we children discovered were not being honest with us about their needs in the face of other chronic diseases and were stashing money away only to pass it on to us - fer heaven's sake!; if only I had known I would have bought them the advice or bought their house with a lifetime lease back so they could have had a more comfortable eighties)  

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    • Posted

      Thankyou Steve for your reply you have given very good advice ,I exercise when I can but the the two weeks has been very hard .i am pushing to get a pulmonologists but NHS are very limited ,if I had the funds I also would go private,I also I have parents and help me out ,I will keep pushing and try and get a balance but I feel I'm been pushed from pillar to post at the moment ,I am a positive kind of lady so hopefully I will get there in the end

      Thankyou Joanne

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    • Posted

      Thank u Jockeys i wished i cud excerise but with me avin lots of other ilness im limited to wat i can do still waiting for physo but im in private hospital scheme if dont ere soon i will consider going private cause NHS dont seem to care but thanks again regards tony
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