*2 tony 15641
Posted , 6 users are following.
Hi everyone been to doctors this morn only consultant put me on carbocisteine plus antibotics which are not working im wondering if anyone else falls asleep wen watching tv plus doctors dont really know much about bronchiestis now trying to say my diabetes not helping does anyone else who as got bronchiestis suffer with diabetes i would like to ere from you
1 like, 15 replies
marion49836 tony_15641
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Hi Tony. I don't suffer with diabetes but I definitely feel
Very tired when taking antibiotics for chest infection
Hope you feel better soon
tony_15641 marion49836
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t02439 tony_15641
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tony_15641 t02439
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t02439 tony_15641
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tony_15641 t02439
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t02439 tony_15641
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Your welcome. I know how it feels when your not well and you get negative results on your sputum sample; but just because its not a positive result does not mean that there is nothing there. This is what happened to me at my GP's. Later on when I went to see my respiratory consultant I told her what had happened, she explained to me that a negative result usually indicates that there may be more than one bug growing. Suffice it to say she was not pleased with the GP not doing anything after that result. I was then admitted for a course of IV antibiotics.
I often find that when it comes to GPs its like pulling teeth. they dont know how to treat it so ulitmatelky the paitent becomes the expert, dont let them beat you into submission; if you want something kick a fuss (in a polite way of course); it lets them know that you know what your rights are and what their protocol should be if they can help you.
tony_15641 t02439
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Yes I'm Def going back to doctors so looks like more antibotics just wished I didn't feel so tired no energy but will post on ere let u know outcome thanks for advice
t02439 tony_15641
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tony_15641 t02439
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Jockeys tony_15641
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Hi tony ,I tried carbocisteine and had really bad headaches so I stopped taking it,I also feel very sleepy I think that part of the bronchiestis ,I had a infection for 4 weeks and had three lots of antibiotics I'm am on clarthromycin for two weeks ,all this week it's taken me all my time to stay awake at work it's very difficult sometimes ,I don't have diabetes but it must be hard having both illness ,also my doctor is the same it sometimes is very frustrating trying cope with a illness the doctors struggle copping with ,take care Jokeys
tony_15641 Jockeys
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steve62514 tony_15641
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First the tiredness. From my own perspective and having read the bronchx threads for some time, all/most bronchX sufferers get periods of tiredness and sometimes exhaustion.
I don't think it's a side effect of antibiotics but linked with the disease itself. There are times when we do not get enough oxygen into our lungs (due to narrowing of airways and mucus detritus blocking paths) and it is that impact on our blood that causes the tiredness. I have found that when I feel the onset of tiredness it's usually when I have been sedentary and if I get up and walk around briskly I can get more oxygen into the lungs. It seems to help the majority of the time. I must admit that sometimes I just let it wash over me and sleep, largely when it has impacted my motivation, but I think the gentle exercise solution is probably healthier in the long run.
People with real problems of repeated exhaustion that goes beyond tiredness really do need to discuss this with a specialist, so that oxygen levels can be assessed. There is something called oxygen therapy which I assume means that you keep a bottle handy at home/office and have a session of inhalations when the exhaustion washes over you. Again, something to be discussed with a pulmonologist.
Which brings me to the second point. BronchX is a chronic disease and it is vital IMO to get professional experienced analysis and subsequent monitoring (which might only be annual if you are under control). Only pulmonologists - and preferably one who specialises in bronchX (usually as one of several lung issues they deal with) can give proper advice and monitoring. In state health systems that means pestering your general practitioner to refer you. Only if we push will the state system respond with putting increased resources behind the disease.
Easy for me to say with my UK private medical health cover (which I pay for of course), to deal with regular monitoring, and access to cheap pulmonologist advice in a low cost country (Thailand) at other times. Worth considering paying for some limited advice and monitoring if your household budget has any flexibility and your 'free' system is refusing to give you proper medical attention? I recognise that will get some howls of derision from some of you who are less fortunate than me. Clearly retirees on a state pension and with no other resources have to make the most of what can be levered out of the system (though I had parents who we children discovered were not being honest with us about their needs in the face of other chronic diseases and were stashing money away only to pass it on to us - fer heaven's sake!; if only I had known I would have bought them the advice or bought their house with a lifetime lease back so they could have had a more comfortable eighties)
Jockeys steve62514
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Thankyou Steve for your reply you have given very good advice ,I exercise when I can but the the two weeks has been very hard .i am pushing to get a pulmonologists but NHS are very limited ,if I had the funds I also would go private,I also I have parents and help me out ,I will keep pushing and try and get a balance but I feel I'm been pushed from pillar to post at the moment ,I am a positive kind of lady so hopefully I will get there in the end
Thankyou Joanne
tony_15641 Jockeys
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