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Bronchiectasis

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  • Embarrassment following flu

    I'm getting over a bout of flu. Last night I had a really bad fit of coughing & found it difficult to expectorate. Eventually I managed it although I know I'm not yet completely clear. I'm soon to go on holiday & my partner has said there's no way I should upset other people by...

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  • how, why, when?

    I can't understand how I could have sustained such terrible damage to my lungs sometime in my life without even knowing about it? How can it be that it went undiagnosed all these years, no symptoms, gets found on a CT scan of the pancreas by chance, and then I immediately start getting symptoms when...

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  • Bronchiectasis

    Hey..I have bronchiectasis and live in the UK..is there anyone else on here who lives in UK as I have never spoke to anyone about it before..

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  • flare-up

    How long do these flare-ups last? It started with a cold but it's two weeks now and if anything I feel worse. Not just "fatigue" but so weak I can't even do the washing-up without a rest in the middle. I haven't been out of the house for five days, can't stand up long enough....

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  • "Lassitude"

    I was diagnosed with bronchiectasis just by chance a couple of months ago – no symptoms – but now I have a cold/cough and the worst of it is extreme lassitude (as the nurse practitioner called it) – I can't stand up for long, I get faint and sick, and basically I just want to sleep. Is that normal?

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  • I was diagnosed with Bronchiectasis just before Christmas .

    This was because of a chronic dry cough lasting 8 months. My consultant has told me it is minor but has offered physio for breathing  and an appt with a cardiologist for the palpitations. My main symptom is fatigue. I get really tired after doing not very much and I also get breathless and a bit...

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  • Some insight to Bronchiectasis from other people.

    Well I've been poorly with chest infections and pneumonia for about 2 years. I do have asthma so thought it was that. But I decided I had enough of being given antibiotics after antibiotics. So I asked my GP if I could see a respiratory specialist. He sent for me this April and I had heard nothing...

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  • bronchiectasis/pseudomonas

    I am here to find patients like me with Bronchiectasis and the complication of chronic Pseudomonas Aeruginosa. I am intersted in knowing what kind of treatments they use to stay healthy. I have had theP.A. for seven years but do not have Cystic Fibrosis.

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  • Painful Lungs

    My lungs hurt every day. Sometimes for hours. Sometimes for a few minutes at a time. I used to hurt only on one side. Now it's both. I've never heard anyone else say they hurt....do you have lung pain? And if so, what have your doctors said about it?  Will it ever "stop" for long...

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  • I was just diagnosed with Bronchiectasis

    I'd never heard of this.  I was coughing up dark red blood.  At the ER they took a CT scanand said that's what I had.  I am now in my 3rd "cycle"....... Every two weeks I'll get a bad pain in my lung, at least one cold sweat, a lot of fatigue to the point I can't...

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  • Pain of BX

    Does anyone experience aching bone pain all the way down their arm? (on the same side as their affected lung with BX)

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  • Stem Cell Treatment Results

    Well, It's been 6 months since I had my stem cell treatment and I can't say that it has helped me. Maybe because I have Bronchiectasis that adds a whole new issue to COPD. My lungs maybe repairing it self, but the weakening of the airway walls (the difference from Bronchiectasis and COPD) will...

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  • Nebuliser use; combining chemicals

    I am trying/testing out a nebuliser daily sequence where I use it twice a day. Each session I have been prescribed 2 x chemicals: 1. Nebusal 4ml (7% hypertonic sodium chloride solution) 2. Salamol 2.5mg/2.5ml (Salbutamol sulphate) Can I on each of the 2 x daily sessions combine the chemicals in the...

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  • Salt cave therapy?

    I'm probably not alone in doing research on possible help besides medication. Has anyone had any experience of trying salt cave therapy? I have read pros and cons about it. Many thanks. 

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  • dry bronchiectasis

    Diagnosed with dry bronchiectasis 8 weeks back. Hospitalised for a week. Spent 3 more weeks in bed, anti biotics for 10 days, ventillion, and symbicort. I continue to have bouts of exhaustion, spending most of my day in bed. Continued tight band across my chest, escalating into servere pain centered...

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  • Just diagnosed with brochiectasis

    I have been diagnosed with this disease today, after coughing for 1 1/2 years with first CAT scan a year ago negative, this week’s CAT scan to rule on nodules caught it. Did it take that long for any of you to get diagnosed? Any tips? I’m on Symbicort which helps, but still cough . Does the cough ever...

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  • Dull pain under rear rib cage?

    Just reading some posts about acid reflux. I've been taking lanzaprozol daily for years but not sure if it's like the meds discussed on here as being possibly detrimental in other ways? Also, I'm told I have a small hiatus hernia, but left that well alone. I am seeing a consultant mid February...

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  • Acid reflux

    Hi everyone Does anyone suffer with this and if so what do you take to ease or stop it?  Xx

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  • newly diagnosed

    On 9/19/17 I had rotator cuff surgery. Within 2 weeks I devolved sever breathing issues. I had a chest x-ray showed pneumonia. Put on prednisone. Two weeks later getting worse, given Z-pack and two weeks after that still no change. I then had a cat-scan which show debris in my lower right lung. Apparently...

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  • Blood in Sputum

    Is blood in phlem/mucous normal with Bronchiectais? I coughed up a very small amount in the phlem/mucous. It was a hard straining cough and it just came up. 

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  • Perform surgery in both lungs

    Hello my friends I have a bronchiectasis in the right lung is enlarged by a large and left lung expands by a small, Can surgery be done by removing a lobe from the right lung and splitting from the other side Where are surgeons specializing in this?

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  • Bronchiectasis - the good and the bad

    I had never heard of bronchiectasis until I was diagnosed as having the disease in both lungs at the ripe old age of 51. The consultant was very good and explained what the disease was and then dropped the bombshell that there was no cure! However he went on to say that it was treatable and I have been...

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  • New Infection- Candidas Albicans

    This infection is completely new to me and wondered if anybody out there has any experience of Candidas Albicans. It seemingly occurs after long term use of multiple antibiotics and can be quite harmful to people with damaged lungs through advanced bronchiectasis. Sputum production has increased...

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  • Help needed! mucus clearance!

    Dear all, My name is Ian, and I am an Emergency Medicine physician. I am currently looking at trying to improve mucus clearance for people with bronchiectasis. My team and I would need some help surveying people suffering from bronchiectasis and find out reasons they do or do not perform mucus clearance,...

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  • Growing E. coli

    just had tests done at hospital, they have come back with very high levels of eosinophil. 2.6 and sputum test came back with heavy growth of Ecoli.  I have to go back to hospital tomorrow for more tests which is worrying me.Also antibioicts and two week steriods.Does anyone on here know if it is...

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  • Steroid treatment?

    Hi everyone.  I'm new here. I was diagnosed with BX and also rampant Aspergillus about this time last year. It sort of came on suddenly so I had all the testing and the name was given to the condition. I'm aged 66.  I'd had whooping cough aged 4, pneumonia aged 13 and a wheezy chest...

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  • BBX

    Had three ct scan I have BX I know that.  Phelgm all the time.   Muscus plugs.   Now my doctor wants me to go for bronchoscope has anyone had that test.    Also is it safe to take antibiotic for rest of our lives.    Thanks

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  • tony15641

    Hi as anyone else used one of these Aerobika expiratory pressure therapy system to help get sputum up went to see consultant was on about putting me on antibiotic every day but said there is some risks can cause liver problems heart as well to which I suffer with both these things ad to do 3 lots of...

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