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Bronchiectasis

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  • Coughing blood

    Here I go again.     Went to my doctor yesterday coughing blood for about  10 minutes.    He told me again not to worry it’s your BX.     He sent me another CT scan.      Hard not to worry.    Anyone can help me stay calm and has the same problem...

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  • Should I take my antibiotics

    Dear all, I suffer with Bronchiectasis and have caught a cold, with a dry cough, and the usual muscus, I cough up is not there at the moment. I had a cold earlier this year which developed into a sinus and chest infection that was cleared by antibiotics. Is the cough I have now part of the...

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  • bronchiectasis/pseudomonas

    I am here to find patients like me with Bronchiectasis and the complication of chronic Pseudomonas Aeruginosa. I am intersted in knowing what kind of treatments they use to stay healthy. I have had theP.A. for seven years but do not have Cystic Fibrosis.

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  • Good days?

    Feedback please...I was diagnosed with asthma, bx and pseudamonas years ago. Was wondering how many days others can be off antibiotics between flares? Could you please state if you have bx alone or what overlapping diagnosis.  Asked similar question yesterday but only got one response so far (thank...

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  • Navigating site.

    I thought I started a new discussion yesterday on this site but I can't see it appearing anywhere. Anyone know how I can check if my posting has been successful?

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  • RX frequency

    Hello!  I am wondering what the LONGEST time between needing antibiotics for BX WITH PSEUDAMONAS? How frequently rx is needed.  Thank you for feedback!!😊

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  • Bronchiectasis: Pulmonary doc wants to scope me to look inside

    Has anybody undergone and able to share experience? I have mild B and am bit concerned about infection with procedure vs just caring for myself with exercise, breathing exercises daily, helpful supplements etc. When I asked about outcome, doc said if chronic infection may need long-term antibiotics which...

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  • Mucus tests

    Test results on mucus specimens have until recently taken up to 4 days. Now I'm told it can be up to 10 days.  This seems to me too long a time. I am currently waiting with some apprehension . I would however be interested in knowing how common this is. Equally no sample can be submitted without...

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  • Extreme shortness of breath ?

    So after I did my Contrast CT Scan they said I have mild cylindrical Bronchiectasis in the upper lobes and Bronchial Wall thickening. Is this what's causing my short of breath.Its been 5 months since it's started and it's only getting worse. The medication is not doing so well for me .Can...

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  • Vicks humidifiers

    Was wondering if any of my fellow bronchiectasis/ asthma/ sinusitis sufferers have tried any room humidifiers ? Was thinking of buying one but there are "warm air " or "cool air" models and dont know which would be more suitable for our condition, wondered if anyone could recommend...

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  • Bronchiectasis Using Oxygen

    Seems my biggest thing with BX is night time, always coughing up every 30 mins getting no sleep,so I figured I try doing oxygen,started last night finally got some sleep, just wondering if anyone else is doing the same,and what are the results. I still use the neb during the day Sodium & Albuterol...

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  • What do you want your therapist to know?

    Good morning/ afternoon/ evening. My name is Amber and I am currently a Respiratory Therapy Student in Georgia. I am approaching the last 2 terms of my path and have been given a simple project. For this project; I need you to tell me what you would like your therapist to know about you and your condition....

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  • Shortness of breath, weakness

    I am 64 and was diagnosed with bronchiectasis in 2013.  I did very well managing it until August of 2017.Managing meant getting antibiotics and steroids and it would clear up.  Since then I have been in the hospital 4 times and it seems that I am weaker every time I get out. ...

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  • Looking for a little help?.

    Hello to all.. This is my first time to posting on this website. I have been reading though all the posts lots of great information..  A little about me. I have being diagnosed with asthma and copd . i am on ventolin and breo. My question and why i came to the bronchiectasis group is the past year...

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  • Bronchiectasis.

    Hi I have been living with Bronchiectasis for years since having whooping cough as a baby. I am having problems with coughing and having attacks of not being able to breathe. Last night while out for dinner I swallowed food and I hit like a sensitive spot in my throat and i suddenly cough and then I...

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  • Chest pain after eating

    I'm trying to understand if the chest pain I feel after eating is related to bronchiectasis. I get a pressure pain after eating that sometimes develops into a pocket or bubble I find hard to  clear. I am taking Prilosec 2 times a day. 40 mgs. My GI doctor says t is not my esophagus....

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  • Finding answers for cough

    Hi again ,just want to thank everyone on this site for your post and support where I have learned so much about bronchiectasis. I usually just read post and hate to give advice when I think some because I don't feel as if I am an expert. Please ignor my rant today , bad night you see.! After years...

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  • New to bronchiectasis and would like advice

    I was diagnosed with bronchiectasis last January at the age of 22. I like to think of myself being a generally healthy person. I eat well (cut out dairy and alcohol), exercise when I can, and did as much research as I could on my condition. So I have a few remaining questions and would like to hear...

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  • Could we have the day off ?

    Do any off my fellow Bronchiectasis sufferers also have sinus problems? Between constantly coughing up phlegm, blowing my nose, painful ears , headaches post nasal drip it is really pulling me down 🤧. Does anyone else have these problems. I can imagine I'm not the only one ! I also have nasal...

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  • Need some help and support

    Hello all, I often read this forum, but now I decided to tell my story as I have been very down lately. I have a very complicated story. I am female, 29 years old. Been diagnosed when I was 24, after a serious of wrong diagnosis and “bronchial asthma” since 2010 (only lately I found out I never had...

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  • Pseudomonas A.

    Please read this article on Probiotics study on PA. I have gone on 100 billion Probiotic multi strain. Am feeling like I am coming back after a bad response after Cipro course of 14 days - 1500mg/day for Pseudomonas. https://ccforum.biomedcentral.com/articles/10.1186/cc6907 After finding this article,...

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  • Bronchiectasis

    Hey..I have bronchiectasis and live in the UK..is there anyone else on here who lives in UK as I have never spoke to anyone about it before..

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  • Insight into Bronchiectasis

    Hi! My name is Alonica & I am a Respiratory Therapy student. I am here here to gain insight on what Brochiectasis patients & caregivers would like to see from their respiratory therapist and what we can do better to give you the best care possible to aid in your treatments. Your recommendations...

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  • Nitrates and lungs?

    I've cut smoked bacon out of my diet (or anything with nitrates) as it's said to be bad for people with lung issues. It was an American doctor talking about it but I also googled it and a UK national newspaper had an article too. I looked back in my food diary for when I started eating it and...

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  • acute inflammation

    I have bronchiectasis and have been suffering from acute pneumonia with a clotted green sputum for six days; my doctor has described me josamycine and Prednisone me but the infection has remained the same. Please help me

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  • Decreased DX time in US!

    From the quarterly Sjogren's Foundation letter: Launched in 2012, the SSF announced our Goal: To shorten the time to diagnose Sjögren's by 50% in 5 years. In five years, we have decreased the average diagnosis time from over six years to 2.8 years! End quote Of course these figures...

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  • Bronchietasis and me!

    Hello everybody. Only joined today and im keen to be part of something rather than an isolated case. I am an asthma sufferer and diagnosed with dreaded bronchietasis 6 months ago. Im 56 and other than that in reasonably good health. I guess my gripe with the bronch thing is im looking for something or...

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  • Fatigue 😴

    Hi Folks ,  I'm new to the group ! I have severe bronchiectasis, was diagnosed 53 yrs ago at the age of just two yrs old. Wondered if anyone here have been living with this most of their life too ? If so do you feel you are always tired, I feel like I am sleeping my life away , the tiredness...

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  • Lingering Symptoms after walking pneumonia for months

    Hey all, I wanted to share the past few months of your life to see if it compares to what I've been dealing with.  I'm a 31 year old Caucasian male, 5'8, 220 pounds, living in Illinois, taking 75MCG of Levothyroxine daily. I don't smoke and I rarely drink (couple of times a month)....

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