Coughing a lot through night

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Not long found out I have bronchi ecstasies the hospital had known over a year I have a bad chest infection I am cough all night had bad ones before but this seems really bad do you cough a lot in the night xx

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  • Posted

    I have had B for 8 years, had chronic coughing  many times  through the night totally unpleasant, however  it was found  steroid  tablets stopped the coughing,8 in the mornings for 7  days    but I need to point out that now since the 5 the of. August this year my doctor  has prescribed  the brown steroid spray. To be taken  twice in the morning  and again  at night. This to be done  regualy wetheryou are well or not  this is a prevention  I am told so far this has helped me  speak to your doctor   About this information and I wish you well.   From ER Indoors
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    • Posted

      Thanks I have steroid tablets at the moment my husband has asthma he has purple steroid and he has morning and night he thinks it would help I dread go to bed and often sit up late because I know I will struggle to breath and cough a lot I am going on in a few weeks they will try and find some thing that helps 
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  • Posted

    Hi Judy

    I am assuming since you have been diagnosed with bronchiectasis you have had a ct scan and are now under the care of a respiratory specialist - you should be.  Consulstant should have referred you to a physio.

    I don't generally like to suppress a cough in bronch if it is productive, as it is basically doing the physio for you.  I have over the years, however had those nights of constant cough cough cough.

    I have recently found from a bronchiectasis forum, and this is going to sound crazy but give it a go, you might be surprised:  Use good old Vicks vapour rub, not on your chest but, wait for it (on the soles of your feet) and cover with a pair of socks.  

    I occasionally have steroids and do have a steroid inhaler but these are not for my bronchiectasis but for my asthma.  I try to keep the orals to a minimum.

    Try the loony sounding Vicks thing.  It does work for some.

    love cx

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    • Posted

      It was great only had problem when my feet got warm put my feet out of the bed soon as got cooler I started to cough a lot put them back in as soon as they got warm again it stopped thank you so much even this morning breathing easier x
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    • Posted

      I'm so glad to hear it worked for you.  The first time I heard of it I thought no way, that can't be right.  Pleased for you hun.

      cx

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  • Posted

    On 8 steroid a day at the moment for chest infection got go back about inhalers hospital tried me with one inhaler said it did not seem to help some said stop taking it he was going to discharge me last year then said he should do two more things and he would discharge me this year one was ct scan which showed the trouble always felt that he thought I was making up was in hospital about 5years ago a doctor said in middle of the night I had food it turned no from the test had a cope nurse the team sent me to respiratory doctor always felt that he thought I was making it up not pleased they had know over a year what it was and did not inform me
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  • Posted

    There are many ways you can bring B back under control. The lung clearance exercises (mid morning and mid evening works for me) plus regular exercise plus good diet - including superfruits and veg - for the natural vits/immune system boost are the foundation and a must.

    Keep a diary of how you feel and go discuss it with your chest consultant (regular GPs do not have the experience and if you can afford a session at a private hospital with a reknowned lung defence unit - getting one of them on public healthcare or insuance is a bonus) is then absolutely essential to make sure:

    1. The best antibiotic is found (antibiotics do control my cough as well as placating the other bacterial effects of wheezing, flash fevers, tiredness/exhaustion); needs a thoroughly analysed sputum sample in a big hospital lab; several days cooking is required - too many cheap clinics/hospitals come up with a same day result which will not have captured the deep-seated bug if one is affecting you

    2. Other supplementary drugs are tailored for you - cortiscosteroids (as an inhaler like Symbicort, or as a pill like Prednisolone on a carefully tailored dosage over a few weeks including a declining tail; anti inflammatories/longer acting breath relievers like theophylline; mucus thinning agents like carbocysteine/acetylsteine: releivers like 'Berodual' for breath shortness. Some of these are primarily for asthma or COPD but I have found them very helpful in keeping a good comfort level. I suspect some doctors do not prescribe all those cos the books do not associate them with B treatment

    3. Don't be afraid to pop a couple of paracetemol if your coughing gets bad. They have an anti-nflammatory effect and sometimes when I wake at 4am and feel that inflammatory hoary feeling in the chest and an involuntary cough the paracetemol will quieten it down and give me a refreshing few more hours of sleep.

    I am not a medical pro - just a sufferer whose diagnosis progressed over 32 months from acute bronchitis to early stage lung cancer (discounted) to non-aggressive lung lymphoma (treated with radiotherapy) to bronciectasis. I've been given a whole load of differing medications over that time by several different specailists in the UK and Thailand. Check everything out with a medical pro and make sure that, if you are taking a cocktail of differing drugs, that the doctor/pharmacistr has considered clashes and side effects.

    I'm lucky in that I seem to be ok on my regimen of 'Symbicort', Puroxan (a third world alternative to theophyline and much better IME) antibis when needed and occasional puffs on a cheap releiver or occasional paracetemol. Once I drop the antibis its only a matter of time before the next infection comes along and needs jumping on. My consultants allow me to be my own best prescriber for comfort.

    [Just for completion I very occasionally take on an as required basis Ozemaprole for gastric effects and pill side effects and a hay fever nose spray to clear my sinuses (one of my ears will infrequently block up with mucus). It's not as bad as it sounds - most days I am only taking 3 different things!]

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    • Posted

      Thanks it symbicort was the one he gave I said it does not to seem to help so he said stop taking it and it been left like that he acted as if he believed I was making it up and had known over a year before they told me just over a month ago doctos at medical centre going to look at it they cart believe that they have not done anything I have asthma as well don't u stand every thing yet they say about the tubes and the sponge in left lung has holes in it I eat a good diet I been told things like swimming very good I some times have to have ozemaprole with some of tablets I been given by gp
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  • Posted

    I agree with lots Steve has posted, especially the lung clearance.  The only thing I would say is not everyone can afford to go private or believe in it either and it doesn't guarantee you will get the best treatment.  I feel you are being short changed by your medical team.  I strongly belief, from 67 years of experience of having good, rubbish and excellent consultants, that you need to find a respiratory consultant who has a special interest in cf/bronchiectasis.  If you let us know a large city you have access to, we may be able to help you find one and you can then ask your doc to refer you.  I feel whether you bronch is mild or severe you should be monitored by a consultant and I can't understand why they would discharge you.

    You don't say if you have been taught lung clearance or how to use many of the gadgets available - the flutter: acapella choice.  All bronchs are different and prefer different methods.  

    One thing we all have to be is our own advocates with bronch.  So learn all you can.  I would put up the British Thoracic Guidelines up for you but links take so long on here it would be quicker for you to google it.

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  • Posted

    Sorry moved to see a reply from someone else and post went back to beginning and wouldn't let me move to where I was.

    The guidelines advise that a sample is sent in at the beginning of an infection but that abs should be started straight away and changed if sample shows the pet you are growing is not sensitive to it.  This works for me and if I waited for a sample to come back I would be hospitalised.  I have less orals now (and am intolerant to many) as I now nebulise abs for 28 days on and 28 days off.

    Wishing you well and that you will finally get the treatment you need and deserve.

    love cx

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    • Posted

      Don't take the antibis before you submit the sample if you can help it. My consultant said that antibis can act fast enough to mask the bacteria in your sample. Agree though that you should take them before waiting for results.
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    • Posted

      Sorry my reply was misleading.  I meant to start abs after the sample has been sent but before getting the results.

      love cx

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  • Posted

    i have had bronchiectasies all my life i am 74 and its trial and error with all medication, if you do not get rid of all the mucas in your lungs before you go to bed yes you will cough all night. i have long periods of antibiotics, i am on my third month now after a bad infection and using my ventolin inhaler (at least 4 puffs) when i can not cough any thing up and it really works well for me. steroids do not help me at all and some antibiotics that i have had over the year no longer work. plenty of exercise that gets you out of puff will help you get that mucas from your lungs, is very important that you do this. best of luck and hope you get some sleep.
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    • Posted

      OMG sylvie you must have been a tough little b to have bronch 7 years before the NHS started and expensive for your parents too I would imagine.  I thought I was tough living through whooping cough and double pneumonia as a 5 month old baby, even though it did a lot of damage, but it was 1948 and the start of the NHS.

      Respect to one very strong lady.

      love cx

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    • Posted

      Thanks I have some idea of what u have been though I was ill a lot as a child I could only go up stair one step at a time and would have to sit on the step to get my breath back I airway came down on my bottom and would have a job to walk across a room then as I got to my twentys then a few years ago this came alongxx
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    • Posted

      Hi  cofalot  i do try and look on the bright side of life, yet sometimes i do say  why me and get rather depressed for a little while, but my children and grandchildren are healthy, and there are some people a lot lot worse than myself. my partner of 20 years lost his daughter(from a previous marriage) to cystic fibrosis at 12 years old. 

         take care sylvia

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    • Posted

      I think we all get like that sometimes sylvia, especially if our colonisation of pets decide to kick off but we bounce back.

      I am so very sorry to hear of your partner's daughter's passing.  How devastating - cf is a nasty cruel condition.

      Take care

      love cx

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