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Hi all, I was recently diagnosed with bronchiectasis after a referral to a pulmonologist and CAT scan. My pumonologist said my case is mild and I dont need any treatment as yet. I specifically asked if I should use a nebulizer and said no. I dont quite understand this because many of you practice daily airway clearance and use a nebulizer. He said if I cough up anything with a dark color to call the office. This is the thing: I dont have a cough. I do have sinus issues and post nasal drip and do have the throat clearing, but not a cough. He did mention it was good to walk a good mile daily but that was it.
What brought me to this diagnosis was I had minor pneumonia back in August and had to be on a couple different antibiotics to get rid of it. (ER visits...and they referred me to the pulmonologist. Are there people with this disease who dont need to do daily airway clearance? Im just so confused right now. Thank you.
0 likes, 3 replies
compiler patti37780
Posted
You don't have cough but sinus disease. You need to treat the sinusitis!
ellen13980 patti37780
Posted
Hi Patti!
I, too, was recently diagnosed with a MILD case. I do have a cough, but I don't do a daily airway clearance either.
My pulmonologist told me not to do a nebulizer, not to worry about a vest or ANYTHING. He said the best thing to do is to not stress about it and take up meditation to manage stress levels.
Not exactly what I wanted to hear, but I am trying to not be so hung up on "incurable lung disease" and trying to meditate daily to see if that changes anything.
Meanwhile the horrible cough is back and I really don't want to take steroids again.
I'm trying diet and exercise and meditation to see where that gets me.
Not sure any of this is helpful, but saw your comment and feel your confusion over here too! I took it really harshly and my doctor doesn't seem to think it's all that bad??
Good luck to you! Hope you're feeling better 😃
ellen
murphs patti37780
Posted
Hi Patti,
I was diagnosed about ten years ago with bronchiectasis and asthma. I also have sinus issues, I think it's pretty common to have all three problems. I was on tons of medicines and a nebulizer when needed. Now I just have an emergency inhaler.
The thing that helped me most of all, was walking. I fast walk a few miles every day to keep my airways clear. It seems so simple but it has worked wonderfully for me. My breathing used to sound like a horrible death rattle when I had flare ups.
The walking fast really makes such a huge difference.
Good luck and be well,
Murph
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