bronchiectasis/pseudomonas
Posted , 76 users are following.
I am here to find patients like me with Bronchiectasis and the complication of chronic Pseudomonas Aeruginosa. I am intersted in knowing what kind of treatments they use to stay healthy. I have had theP.A. for seven years but do not have Cystic Fibrosis.[/b]
8 likes, 277 replies
Guest
Posted
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madeline0505 Guest
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desperate and depressed
christiann74538 madeline0505
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inhalers. I don't feel better with all these things...exercise is very important and healthy food as well. I feel very sorry for you to have this being so very young! I got it at the age of 38 and I'm now 66...I do lots of research and I tried many treatments and therapies without succes but now it seems that I am on a good track! I will let you all know if this is going to be our salvation but it will take some months as I have to try it and see if it works... I wish you all the best and please be positive and try not to worry. That makes it worse....
debra64041 christiann74538
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gianet Guest
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sandmayo christiann74538
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mizsuzyq sandmayo
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My routine consists of the folling:
Acetylcysteine 3mil in nebulizer 3 times per day
Acapella Flutter 2 times per day - there is a special routine that you do with this device and it is amazing how much mucus you can get out. After each neb treatment.
The Vest 2 times per day (which is used along with the nebulizer)
BiPAP machine - at night, which I cannot stand to use. As you know we sleep little as it is.
Columbine17 gianet
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I have been refused funding for tobramycin by my CCG and am appealing - can you let me know which hospital you are under?
Had bronch since childhood too, and got PA 11 years ago. Colymicin is good but consultant wants me on tobramycin as physio etc is now 5 hours a day!
johnnyd57uk madeline0505
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Russell27NOLA debra64041
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Someone said in one of our discussions that their doctor told them that to let nature take its course. I find that to be true. When I have mucous ready to come up I start cough naturally. I try to force mucous production with salins but have not had any luck so far.
Best
Russ
sandra98061 debra64041
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I had bronchitis and pneumonia for a year and suffer bad I finally got a Dr who got my diagnosis of bronchiectasis . I'm currently in a severe flair up, I also feel feverish but I'm not running one it's actuallymlow. I can't breathe a deep vreath, my chest feels like a elephant is sitting on it. I also now have pleurisy . I did ten day steriods and now three different antibiotics m for ten day for the months. It's horrible dealing with this I feel like life has stopped. Anything worked for you?
pam81116 Russell27NOLA
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Pam.
brad65952 Guest
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carole74618 sandra98061
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Hi Sandra. Just seen your blog on PA. I've just been told I have Bronchiectasis & PA. I was given 2 wk course of antibiotics which has not got rid of it. I use a nebuliser to help me breathe & hopefully cough up phlegm. I also feel like an elephant is sitting on me. Can't sleep. Always feel dehydrated, it's awful. They have found PA in my water supply.
Guest
Posted
I have also had PA together with Bronchiectasis. The doctors managed to clear the PA by giving me a six week course of antibiotic by tablet as well as twice day inhaling antibiotic through a nebuliser. This treatment cleared the PA. This has been verified in two sputum tests. I am sure that I had had PA for at least a year beforehand. I know it is common in people with our condition as well as those with a low CD4 count such as mine.
Hope this helps
Brian
cc17 Guest
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Pamathatteras Guest
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mary_ann_0313 Guest
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Have you had any immunology shots or anything like that?