.ACUPUNCTURE AND POST SHINGLES
Posted , 5 users are following.
Hi can any one tell me if they live in the uk
,also I want to find out if acupuncture would work on this pain, or hypnoses .
1 like, 14 replies
Posted , 5 users are following.
Hi can any one tell me if they live in the uk
,also I want to find out if acupuncture would work on this pain, or hypnoses .
1 like, 14 replies
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ron96331 jocelyne44618
Posted
I've heard that acupucture for postherpatic neuralgia is possible and all acupuncture pratitioners woud have some knowledge of this. For myself it's in the nerves of the right side of the head and neck, so that means severe headaches and I didn't try the acupuncture idea because the headaches were too much
jocelyne44618 ron96331
Posted
How do you cope with yours, your head aches must stop you from doing a lot of things do you still drive?, its such a crippling pain unless you have it your never going to know how painful this pain is. I find that one of the doctors says you have to breath thro it well you take this pain and you show me how to breath thro it because all you want is the pain to stop. My spine also feels like its on fire but because my arms can not touch my pack i cant get relief.
I wish you well Ron and to every one who reads this. I dont feel as alone as I was until I met this site. Jocelyne
ron96331 jocelyne44618
Posted
I am retired living in India but I'm British. The doctor told me to go on Neurontin/gabapentin and it clears the headach away almost completely, the only thing is I've read a lot of reports about coming off that drug or reducing it there's a terrible withdrawl, so I feel I'm trapped with this now. Don't know what to do. The drug is very good makes you slightly sleepy that's all. It clear my pain away enough to be going around. I don't drive, fortunate to have smeone take me shopping etc,.
But anyeway I'm worried about this drug I'm taking, so I wouldn't recommend it.
Hoping all is well with you
ron
jocelyne44618 ron96331
Posted
but the doctors feel that they will sort all this out after they find the right meds which I could take and be pain free. that is why I am looking for other ways to go back to my "normal" way of living, it scares me that at 62 this month I will be living on my own for ever, because lets face it no one wants to meet a person who has our type of pain. and agree to be love them. Please keep in contact on how you are coping, I do hope people on this site for medical reasons do stay in contact as, lets face it every one feels they are alone until they find this wonderful site and forums.
ron96331 jocelyne44618
Posted
Sorry to hear about the cat on the keyboard, never mind there ae all kinds of things that you just have include in a day. I worry about medications too, like when is it going to level off? When is it going to stop, I'm on your 900 mg Gabapentin x4 per day and more - I have no system developed just take one when I feel like it, they're addictive. I don't have these patches but I've been scratching the side of my head for months. I don't know if I said it last time I've had PHN on the right side of my head and neck sice Sepetember last year and the whole picture is just beginning tio hit me thanks to this website. I came across another that tells about people trying to stop Gabapentin and that's a real horror story, so I'm hoping that I can find a reasonable dose and stay with it. I'm 69 this year, I juat want to have an easy life. Jocelyne I don't have these patches because there are no lesions now and that oxycoden I don't have, various things to help me sleep like lyrica and I went to a psychiiatrist a couple of times because things were getting too much and he gave me a yellow pill that calms me down and also something help me sleep. So, as long as they give me the meds I'm okay, dependency is what it is. Anyway thank you Jocelyne and others for being in touch, it pleases me to know there are fellow sufferers of PHN and I get support just knowing that.
ron
jim66082 jocelyne44618
Posted
jocelyne44618 ron96331
Posted
I will be 62 in a week and well before my partner passed away 3 years ago, we had planned to retire then, and enjoy life But now that he is no longer with me, I am very scared of retiring I think I have to make two important desions now that Chas has gone its hard to talk to his photo (now you run to the hills) I know but I wish he could reply and tell me to get on with things. firstly call it a day and retire, but I am afraid of being alone and the second one is to attend the pain clinic and meet with the surgeon who wants to operate on my right shoulder, scared of the pain I will have, may be they can sort out my PHN as its all on the same side.. What does our futures hold, I mean well I cant go out for a meal, because im to scared that my PHN goes mad and then I will have to come home..
Ron how does your partner/wife act when you have one of your bad sessions? Ok I need to wash my hair now and shower before I settle down for the night.
Hope to speak soon take care Jocelyne
david72151 jocelyne44618
Posted
I posted on another PHN discussion some while ago and it is still having posts to-day. I am in the UK and developed shingles in my right eye and head in December 2012. The full story is on the other posting.
I still continue to see a cranial osteopath who I feel has benefited me greatly and my symptoms are soreness/sunburn feeling around my eye centred on my eyebrow with only the occasional bad pain. The good thing is I am getting better.To answer your question the cranial osteopath did mention acupuncture and said it may be of help. I did not get around to pursuing an appointment so I am unable to tell you if it works. I don't think anything is guaranteed to clear PHN. However she also recommended Tai Chi as she found my whole body was still tense and this may help the body to relax. Fortunately my U3A group formed a group I have been to 3 sessions now and although my head is still sore I feel better with my body afterwards which makes it easier to cope. I hope I have been of some help at this terrible time.
David
jocelyne44618 david72151
Posted
david72151 jocelyne44618
Posted
I wish you every success at the pain clinic. I was recommended to go to a pain specialist by Moorfields which I did at a Spire Hospital privately. After some expensive tests which failed to find the cause he prescribed gabapentin. Rightly or wrongly I decided not to take it as he said there were side effects and I did not want more trouble. I researched what else was there about as I was in agony and was at my wit's end knowing what to do. The more you look for help you find the health service does not have a cure. Have you been told that HPN can take months or years to go. You have to try and find something that gives some form of relief to the nerves. Although difficult try and remove the stresses and worries from your life and relax. My first visit to the cranial osteopath was a revelation to me. Although the PHN was in my right eye and head her initial reaction to my body shape was that I had been in a serious car crash.Over time she worked on my physique reducing the tenseness in my muscles and ligaments and working on the flesh where nerve endings are situated. It is a very gentle treatment, you don't feel a thing. I was determined to carry on as best I could. Cold also affects the nerves. I am retired so life can be easier but I found doing physical work like gardening etc took my mind off the pain. I don't know of any organisations that help sufferers, we suffer in isolation but others on this site may lead you to something. I hope my words can give you some support.
David
jim66082 jocelyne44618
Posted
What is important is you try every possible therapy - self advocate - only you can do this and only you are experiencing the terrible life disruption of PHN pain. I did try acupuncture, even acupuncture with bloodlettin(cupping) by an eastern/western licenced MD. I also did hypnosis and mindfullness training. Unfort for me the accu and associated treatements didn't help. The hypnosis and mindfullness - really is a meditation state that helps you focus to take your brain away from the pain. The true hypnosis again depends on the individual - although I could get into a relaxed state I dont beleive I ever got to that truly hypnotic level. So again it is very person specific. The MD (yes hypnosis is covered in Ontario Canada by our govt health care) believed her was very successful in some patients - told me of cases that were hard to believe. Nevertheless I would say try EVERYTHING. I have now for 7 years and today just posted my FIRST PAIN RELIEF find. A topical that actually allows me to wear clothes again and have sheets and matress touch me at night. Not a cure all but just having extra hours a day is a GODSEND. I am also trying some othe therapies like cryogenesis. Will also try a cold laser - but that one is at the bottom of my list - biolgical plausability is minimal. In all these treatments there has to be some biological rationale even if it is stretch. WIshing you well and please keep us informed - any glimmer of hope (ie less pain or fewer pain hours) is a plus. I should also note how psychological support is also necessary. One is cranky at times and it impacts our social relationships hugely and then crushes ones self worth and any posiitve ego that we might have had.. In particular it takes a heavy toll on our families who worry and also are impacted by our inabilities to do normal life functions so many times in a day or week. jim
jim66082 jocelyne44618
Posted
ramesh1936 jocelyne44618
Posted
I wasred my money.
It has not worked.
jim66082 jocelyne44618
Posted
jim