Skip to content
Ad

Postherpetic Neuralgia

All discussions in this group

Next
  • Depression with PHN?

    Anyone have depression with PHN?  I'm a retired psychologist with 26 years of PHN in right eye, forehead and scalp.  I have nothing to gain .  I have learned very helpful ways to manage depression and PHN, and have worked with many patients with chronic pain and depression.  If...

    Last reply
  • PHN on eyes resulting in an unrelenting headache

    I have been suffering for 18 months with a debilitating headache after a shingles outbreak on my eye. I have tried every injection possible and even have a neurotransmitter implanted. (Which is of no help at all and am scheduled to have it removed. ) due to the location of the outbreak I cannot use any...

    Last reply
  • 19 months and still struggling

    hi all ,I've had this dreaded PHN for 19 months ,I take 8 pain killers a day prescribed by my oncoligests,my sleep patten is terrible,I'm in pain 24/7 feels like I'm being clamped in a vice,the pain is around my torso front and back mainly the right side ,it even hurts when I walk,there just...

    Last reply
  • Is what I have PHN?

    I got the shingles about 2.5 months ago under my left arm, and while the pain when the rash was there was not so bad (caught it early), I have not felt like myself since then. I first started feeling severe back pain - I’ve had slipped discs before so I thought it was another episode - but the symptoms...

    Last reply
  • PNH and Orgasm

    Anyone experience muted orgasm after shingles ? Have has MRI that shows nothing untoward   Could it be connected to scar tissue pressing on nerves ? I had a outbreak on left rear and now orgasm is muted  Any comments / advice welcome  Thanks  James  James 

    Last reply
  • What does PHN pain feel like

    I had shingles around the right side of my back and stomach over 2 years ago, since then I quite often get a dull ache around my thoracic spine area and into my rib cage beneath my breast, then other times my entire back aches. I also often get itchy in the area where the shingles rash was. I've...

    Last reply
  • Cognitive Behavior Therapy [CBT] for PHN people

    On the "Depression with PHN?" forum, I've talked about CBT as probably the most effective and quickest route to decreasing depression.  On this forum, I hope to offer some more detailed guidance toward using CBT.  I'm thinking of offering maybe a weekly suggestion for thought...

    Last reply
  • PHN 9 years this month

    Hi, I'm in my mid 40s.... Had a wicked bout of Shingles down my right arm in sept 2008 (I'm also right handed, if that ain't part of the joke.). I had the pain about a month before any rash appeared. I swore I had a pinched nerve, so I was seeing a chiropractor... Man I had this guy stumped......

    Last reply
  • PHN+Injury=OW!!

    I have PHN in my chest and back after shingles in October 2016. I'm getting better, slowly, but yesterday I fell. Yes, directly onto my hand, elbow, should, and of course my front left rib area, where the PHN is. I got the wind knocked out of me too. I had tripped over a raised sidewalk, in our neighborhood,...

    Last reply
  • Trigeminal Neuralgia

    I believe there was a patient who had this but I can't remember who it was. I would like to discus it with him/her. Roberta

    Last reply
  • Excruciating Pain After Shingles

    I'm experiencing excruciating pain like nothing I've previously known. The shingles rash is almost entirely gone, but now I have hypersensitivity in the areas where the rash was. My rash was also in one of the worst places - on the left side of my genital area up to my tailbone. I have a tingling,...

    Last reply
  • Ice, ice, baby!

    I have tried all pharmaceuticals (nortriptyline, amytripyline, keppra, tramadol, Lyrica, patches, ointments, etc.) as well as procedures (multiple nerve blocks and stellate ganglion injection), acupuncture, physical therapy, massage, even medicinal cannibus -- nothing has provided relief. The only thing...

    Last reply
  • PHN

    I seem to have a unique problem with my PHN after shingles.  My shingles rash was on my right buttock and into my vaginal and rectal area.  It is pure torture sitting and going to the bathroom.  I can't stand wearing underwear.  Can someone help me?  Has anyone else had shingles...

    Last reply
  • PHN at 6 months post shingles

    Looking for encouragement and advice for 87 year old father who is at the 6 month mark for PHN in area of left scalp, above left brow and in left eye.  He also has generalized myasthenia gravis which was very much under control until docs added immunosuppressive drugs to his regimen and in spite...

    Last reply
  • Periods of remission, feel hopeful, then hopes dashed

    I am approaching the six-month mark since this all started, and am adjusting to the probability that I am going to be stuck with this for quite some time.  Mercifully, the pain has not been constant.  Hours can go by when I don't notice any pain at all. I haven't had a pain-free day...

    Last reply
  • Information needed

    Hi new to group, joined this group on behalf of my mom who has suffered chronic pain for years. She suffered with shingles before I was born im now nearly 25 and still haven't found a treatment that helps the severity of the pain. Not sure on exactlys etc. But know she's already had injections,...

    Last reply
  • PHN for 13 years+ - Genetic issues fighting VSV

    New to the group. Had shingles initially when I was 22 years old. Since then I have had chronic pain and tried literally every treatment out there from homeopathic to injections to creams to pills to...everything. I have several doctors that specialize both in pain management but also virology, specifically...

    Last reply
  • Postherpetic Neuralgia

    many people after having Shingles; and having the shot; seem to have Postherpetic neuralgia in quadrants.  I have read , where many have tried different options.  I am asking if anyone has had the procedure done called: "DRG".....Dorsal Root Ganglion Stimulation?  Any input or...

    Last reply
  • PHN in hand

    I am 38 year old women and Had shingles on my left arm Last year. I have excruciating pain in my hand, thumb & 1st finger. I have tried gabapetin (max dose)with tramadol and paracetamol for 3 months but still no relief. I am now taking tramadol & paracetamol & ibruprofen with pregabalin &...

    Last reply
  • Clothing solutions

    Hi I've been suffering with PHN for over 6 months now and one of the most difficult aspects for me is being able to get clothing that allows me to go out. I have pain in my back and side and have been unable to keep cream in place without the patch moving and causing me pain.  I can't wear...

    Last reply
  • Botox

    i have suffered from PHN FOR OVER 2 YEARS in my head/eye I received a second round of Botox but doesn't seem to have worked this time i have tried all different types of treatment without success i am a very optimistic person but this condition is wearing me out,

    Last reply
  • Pain with activity?

    Hello all- I'm 25 and was told today that I have PHN, but I'm skeptical. I'm reading through signs and symptoms, and while many fit me the main factor that brings along my pain is activity. My pain affects my on my left chest- does anyone else here notice that activity (standing for 15 minutes,...

    Last reply
  • New to group hoping for support. As well as to give support.

    I've suffered post therpetic neuralgia for over 5 years. I've gotten Shingles's on my face 5 different times which has obviously contributed to the severity of my pain. Does anyone else here have severe pain flare ups? By that I mean my pain through out the day with medication is about a...

    Last reply
  • Cryotherapy or Cryoanalgesia

    Has anyone tried or heard about Cryotherapy or Cryoanalgesia. I read one report about very effective use of freezing on the affected nerve pathways, but can't find anyone in the UK who offers it for PHN.

    Last reply
  • A few new studies

    Afternoon everyone, I'm a 36 year old male who had shingles over 13 years ago and have had chronic PHN ever since. I've tried/tested just about everything out there for the pain management. I've found (my wife found) a research Doctor that has been studying the VSV virus at length and has...

    Last reply
  • Nerve ablation

    In a few days I'm going back to see the anesthesiologist to discuss whether I'm going to have nerve ablation, a procedure where they burn out the nerve with an electrical spark. I have PHN on the right side of the head, it means permanent headaches. I've had it nearly two years and it could...

    Last reply
  • PHN Pain Triggers

    I have been trying to keep track of possible triggers for my pain attacks. This might be a good forum to share and for others to share anything they might have noticed caused their pain to flare up.  The pain for me is on the upper left side of my face, forehead and scalp - so a pretty exposed...

    Last reply
  • New to group

    Good morning everyone. I am a new member and have pain fron my shingles in my head since 2009. Some days are better than others. I have had a rough two weeks. 

    Last reply
  • Help please, now - it's the middle of the night.

    I live in Western Australia, it's about 4.30am in the morning and I am having the worst attack of PHN from Shingles.  I also have Fibromyalgia.  The pain behind my eyes is excrutiating, I can barely open my eyelids, it is all over my head rather than one area, normally left sided T5 aggravated....

    Last reply
  • Low grade fever that doesn't go away!

    I've had 5 outbreaks of shingles in same area in last 21 months and think I'm on the verge of another outbreak. I'm almost constantly dealing with low grade fever, fatigue and just not feeling good. Typically it occurs a week or 10 days before an outbreak and will last one month after the...

    Last reply
Next


We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.