Skip to content

Postherpetic Neuralgia

All discussions in this group

Next
  • PHN frustrations

    Hi.  Well I am like a lot of you...been trying multiple things to help the pain through a pain management specialist to no avail.  I had shingles about 3-4 years ago.  It was a really bad summer for mosquitoes.  I started having pain around my spine to the my lower left side. ...

    Last reply
  • PHN-life and death

    Recently read that PHN is the leading cause for suicide among seniors. Having suffered with PHN since 2012 and being over 60 myself I can understand how that can be. Since the shingles virus has been around for decades my question is how was this horrendous affliction dealt with 75/100yrs ago? No cure...

    Last reply
  • Dilema: More pain or brain fog? Which is worse

    I've had PHN for almost a year now in my back/chest. I've been able to "manage" it with Gab, Aspercreme 4% Lidocaine, Tylenol and a prescription NSAID and Charlie's CBT "it will get better, I won't always feel like this". As I've slowly had improvement I've...

    Last reply
  • Can PHN pain move from the original site ?

    Hi everybody .. I am recovering from shingles for 5 months now, it affected my right had side , it started with back pain . Which I though was a kidney infection .. The rash appeared around my waist down around my tummy .. I have had PHN in that are which is bareable , burning...

    Last reply
  • Ice, ice, baby!

    I have tried all pharmaceuticals (nortriptyline, amytripyline, keppra, tramadol, Lyrica, patches, ointments, etc.) as well as procedures (multiple nerve blocks and stellate ganglion injection), acupuncture, physical therapy, massage, even medicinal cannibus -- nothing has provided relief. The only thing...

    Last reply
  • Cognitive Behavior Therapy [CBT] for PHN people

    On the "Depression with PHN?" forum, I've talked about CBT as probably the most effective and quickest route to decreasing depression.  On this forum, I hope to offer some more detailed guidance toward using CBT.  I'm thinking of offering maybe a weekly suggestion for thought...

    Last reply
  • Depression with PHN?

    Anyone have depression with PHN?  I'm a retired psychologist with 26 years of PHN in right eye, forehead and scalp.  I have nothing to gain .  I have learned very helpful ways to manage depression and PHN, and have worked with many patients with chronic pain and depression.  If...

    Last reply
  • Mental outlook on life be a cause

    I would love to hear somepersonality traits from all uou fellow phn suffers.  Brief backround. Second time around dealing woth this ailment. First time in neck took a few years for the pain to subside. Not 100 percent but more a miner nuisance. So have faith the pain can lesson. Now dealing with...

    Last reply
  • Experiences with gabapentin ?

    Hi fellow sufferers can anyone give me theyre experiences with gabapentin? Am reluctant but deperate. Figured you guys would have the best and most honest experiences. I feel like there is a belt tied so tight around my waist. Pretty much being strangles alive for 16 months. Thanks guys. I did have phn...

    Last reply
  • Shingrix

    Some of you may get 2 separate posts from me. I was typing and somehow lost my update. Ugh how I hate computers at times. Anyway my pain (year 3) is my right trunk, shoulder and numbness and tingling in the right side of my face.  Don’t want to retype right now what I just lost. Any type of repetitive...

    Last reply
  • Belt of pain around waist

    Anyone else experiencing the pain around waste and back like your constantly wearing a tight belt?  Havent heard anyone with this would love to hear anyone suffering with this same area. Blisters came on buttocks top area. Three blisters but a world of pain came week after all around stomach and...

    Last reply
  • Experiences with gabapentin ?

    Hi fellow sufferers can anyone give me theyre experiences with gabapentin? Am reluctant but deperate. Figured you guys would have the best and most honest experiences. I feel like there is a belt tied so tight around my waist. Pretty much being strangles alive for 16 months. Thanks guys. I did have phn...

    Last reply
  • Shingles blisters one spot pain in another

    Anyone else experience pain in areas that didnt have the blisters??  I had three little blisters right above buttocks. The pain around blisters is non existent but is all over  abs chest and stomach. Digestion was effected. Grumbly unsettled tumy after eating ir drinking lower back pain which...

    Last reply
  • Pain level over time

    Hi guys just trying to learn more about this wretched stuff. Ive had phn twice first time on my neck and it took prob two to three years for the pain to almost fully subside. Ten years later its about a one to two outta ten and i can still feel it if i apply firm pressure. Totally can live with that....

    Posted
  • Chronic pain, phn and brain activity

    So I’ve had phn now for 7 years, in the last 6 months I have had chronic pain and back in spasm on my right side of my back. I’ve had trigger point injections that have not helped and I’ve just seen a neurologist. He’s refering me to a brain psychologist as he believes where I’ve been in pain for...

    Last reply
  • New to the group could use some advise

    I'm 43 and got, what I thought was a mild case of shingles..the rash was on my back by my left shoulder blade, and the pain at the bottom of my rib cage again on the left. This was about 4/5 months ago. Now I'm finding the pain in my rib cage flares up daily, sometimes a continuous pain, other...

    Last reply
  • steroid injections for shingles pain

    The first day my rash appeared I saw my dermatologist who diagnosed shingles and gave me an anti-viral medicine. The rash went through the typical stages of blisters, scabs, and eventally fading in color. But , as many here have described, the pain was unbearable on my left shoulder blade, left underarm,...

    Last reply
  • My Humerous Story of Pain, Depression, Fatigue, & Isolation

    I sure don't want to bring anybody down. I also want you to know that I laugh at myself many times a day for how pathetic I have become since I got ShIngles and subsequently PHN. Yes I said pathetic. Just stating the facts as I smile as I am writing. My journey with PHN as been very tough. I assure...

    Last reply
  • PHN sufferers under 35?

    Hi all :-)   I'm new to the group and wanted to reach out to see if there are any others out there with PHN under 35? I'm 31 and have had PHN for 8 months. I have had a previous episode of shingles and PHN which lasted around a year and a half. I was devastated when I got shingles for the...

    Last reply
  • Periods of remission, feel hopeful, then hopes dashed

    I am approaching the six-month mark since this all started, and am adjusting to the probability that I am going to be stuck with this for quite some time.  Mercifully, the pain has not been constant.  Hours can go by when I don't notice any pain at all. I haven't had a pain-free day...

    Last reply
  • Interesting news, global clinical trials of EMA401 starting up!

    Hello For those not informed, there were research into a drug, codenamed EMA401 until 2015, which specifically targeted pain related to nerve-sprouting, which is the main cause of pain from PHN. The study was halted in 2015 after big pharma bought the patents from the Australian research group. You...

    Last reply
  • 2 years after shingles and still itching eye and forehead

    It is now over 2 years since I had shingles in my right eye, on my forehead and head, I still have the itching problem every day, and nothing seems to stop this, I have bought expensive creams/gels hoping that something would work but it doesn't, I always end up using  sudocrem and although...

    Last reply
  • Do I have PHN?

    Here’s my background, what do you think?  I was 25 when I had shingles on my lower back. Small rash, 3” in diameter. No pain, blistering, or discomfort. It went away no issues. Fast forward 6 months. No issues. Healthy, active, young. I’m laying in bed and twist my right leg over my left, and my...

    Last reply
  • Trying a grain free diet to curb PHN pain after 6 years

    Just when I say I'm accepting the inevitable, this pain is here to stay, just deal with it, my doctor kicks me in the butt but saying she can only prescribe 56 hydrocodone pills for a 90 days period.  Any more than that needed and she has to send me to pain management.  Well 56 is a long...

    Last reply
  • Injections in to muscle spasam

    Hi,  So I’ve been treated with phn for near on 6 years now but only get speradic bouts of uncontrollable pain. In the last 6 months I’ve been having issues with the muscles in the upper right hand side of my back from shoulder blade to mid back. I’ve tried Physio that refuse to touch me as my muscle...

    Last reply
  • Weird PHN symptoms

    I first got the shingles rash early February of this year, the rash went away mid March but I am experiencing pins and needles and mild burning sensation on the area where the rash was located left buttocks lower back and also on my legs, feet, upper back and arms. These sensations comes and goes. When...

    Last reply
  • has anyone received disability for PHN?

    I have been on LTD for almost one year due to my condition.  working 20 hours per week...I have to go back to work full time in 6 weeks and I am still in excruciating pain at night. How can I do this?  I barely sleep even with opiate drugs and take Lyrica all day.  I fall asleep spontaneously...

    Last reply
  • Drez procedure, has anyone tried it?

    I have been struggling with PHN for 10 years now. My pain in on the left side of my head. I went to see a new neurologist and we discussed a drez procedure. I was wondering if anyone on here has tried it? If so any luck? Thanks

    Last reply
  • Link between PHN & B12 deficiency?

    I'm 2+ years recovering from Post herpetic neuralgia right torso. I had a positive intense reaction to a b12 shot  about 6 months ago and felt my nerves come alive & huge return of energy and feeling like me again. Continuing to heal and it feels like that gave a boost (acupuncture >1...

    Last reply
Next

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.