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Postherpetic Neuralgia

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  • steroid injections for shingles pain

    The first day my rash appeared I saw my dermatologist who diagnosed shingles and gave me an anti-viral medicine. The rash went through the typical stages of blisters, scabs, and eventally fading in color. But , as many here have described, the pain was unbearable on my left shoulder blade, left …

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  • Phn 100% Gone For Months... Can The Pain Come Back???

    My mother was hit with a horrifying case of shingles on her face from Sep 2017 and suffered until March 2018. The pain has been gradually healing and then since late March, she has been pain free (praise God). She is intensely worried about PHN pain returning.  Does PHN pain come back? Do any …

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  • Trial EMA401 for PHN

    Is anyone participating? Just heard about a new Novartis trial. If anyone is taking part can I plz ask where you are participating, what it involves and is it working? Thanks so much hope your having a bearable pain day.

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  • Ice, ice, baby!

    I have tried all pharmaceuticals (nortriptyline, amytripyline, keppra, tramadol, Lyrica, patches, ointments, etc.) as well as procedures (multiple nerve blocks and stellate ganglion injection), acupuncture, physical therapy, massage, even medicinal cannibus -- nothing has provided relief. The only …

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  • PHN problems

    Hello PHN friends Does anyone have problems when they are outside w/the sun humidity ?  Also does anyone have canker sores or mouth pain from PHN ?

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  • PHN on face

    I've had shingles 2-months ago now I have PHN on 1-side of face                                    I've …

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  • PHN and Migraines

    I have PHN on my trigeminal nerve on the left side of my face/head. Most of the time I experience pain in my face and eye but occasionally, and seemingly more frequently, I also get migraines.  Has anyone else had any experience of both PHN and migraines? And if so, are there any effective …

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  • Cognitive Behavior Therapy [CBT] for PHN people

    On the "Depression with PHN?" forum, I've talked about CBT as probably the most effective and quickest route to decreasing depression.  On this forum, I hope to offer some more detailed guidance toward using CBT.  I'm thinking of offering maybe a weekly suggestion for …

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  • Depression with PHN?

    Anyone have depression with PHN?  I'm a retired psychologist with 26 years of PHN in right eye, forehead and scalp.  I have nothing to gain .  I have learned very helpful ways to manage depression and PHN, and have worked with many patients with chronic pain and depression.  …

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  • PHN odd pain

    Hi all I am 49 and have suffere repeat shingles for the last 7 years or so. It now tends to affect the outer aspect of my left thigh- sort of mid thigh. Never very big  perhaps the size of 2 large coins. Lots of blisters in each attack - too many to count. My last attack was end of March/ …

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  • PHN-life and death

    Recently read that PHN is the leading cause for suicide among seniors. Having suffered with PHN since 2012 and being over 60 myself I can understand how that can be. Since the shingles virus has been around for decades my question is how was this horrendous affliction dealt with 75/100yrs ago? No …

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  • PHN and new shingles vaccine

    As you might know, FDA has approved a new and improved shingles vaccine.  Under CDC guidelines, it is recommended for people over 50, EXCEPT those with an active case such as rash .  I had shingles over 1 1/2 years ago and have PHN.  I do not have a rash like initial outbreak but  …

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  • PHN frustrations

    Hi.  Well I am like a lot of you...been trying multiple things to help the pain through a pain management specialist to no avail.  I had shingles about 3-4 years ago.  It was a really bad summer for mosquitoes.  I started having pain around my spine to the my lower left side. …

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  • Weight loss

    Has anyone else experienced considerable constantly decreasing weight loss even though still eating normally?  My husband weighs only 7 stone now and all of his clothes are much too big. He's always been of slim build, but never weighed less than 10 stone. Our G.P. has shrugged it off …

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  • Nerve ablation

    In a few days I'm going back to see the anesthesiologist to discuss whether I'm going to have nerve ablation, a procedure where they burn out the nerve with an electrical spark. I have PHN on the right side of the head, it means permanent headaches. I've had it nearly two years and it …

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  • Shingles Diagnosis, now everything hurts

    I was diagnosed with shingles 4 weeks ago, on my torso, I was given two weeks of a pill I took several times a day and given pain pills. I never had the burning pain that I read others get but it was mostly general pain and itching. I did get blisters but they have mostly gone away now, although …

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  • Can PHN pain move from the original site ?

    Hi everybody .. I am recovering from shingles for 5 months now, it affected my right had side , it started with back pain . Which I though was a kidney infection .. The rash appeared around my waist down around my tummy .. I have had PHN in that are which is bareable , …

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  • Dilema: More pain or brain fog? Which is worse

    I've had PHN for almost a year now in my back/chest. I've been able to "manage" it with Gab, Aspercreme 4% Lidocaine, Tylenol and a prescription NSAID and Charlie's CBT "it will get better, I won't always feel like this". As I've slowly had improvement I' …

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  • Mental outlook on life be a cause

    I would love to hear somepersonality traits from all uou fellow phn suffers.  Brief backround. Second time around dealing woth this ailment. First time in neck took a few years for the pain to subside. Not 100 percent but more a miner nuisance. So have faith the pain can lesson. Now dealing …

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  • Experiences with gabapentin ?

    Hi fellow sufferers can anyone give me theyre experiences with gabapentin? Am reluctant but deperate. Figured you guys would have the best and most honest experiences. I feel like there is a belt tied so tight around my waist. Pretty much being strangles alive for 16 months. Thanks guys. I did have …

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  • Shingrix

    Some of you may get 2 separate posts from me. I was typing and somehow lost my update. Ugh how I hate computers at times. Anyway my pain (year 3) is my right trunk, shoulder and numbness and tingling in the right side of my face.  Don’t want to retype right now what I just lost. Any type of …

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  • Belt of pain around waist

    Anyone else experiencing the pain around waste and back like your constantly wearing a tight belt?  Havent heard anyone with this would love to hear anyone suffering with this same area. Blisters came on buttocks top area. Three blisters but a world of pain came week after all around stomach …

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  • Experiences with gabapentin ?

    Hi fellow sufferers can anyone give me theyre experiences with gabapentin? Am reluctant but deperate. Figured you guys would have the best and most honest experiences. I feel like there is a belt tied so tight around my waist. Pretty much being strangles alive for 16 months. Thanks guys. I did have …

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  • Shingles blisters one spot pain in another

    Anyone else experience pain in areas that didnt have the blisters??  I had three little blisters right above buttocks. The pain around blisters is non existent but is all over  abs chest and stomach. Digestion was effected. Grumbly unsettled tumy after eating ir drinking lower back pain …

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  • Pain level over time

    Hi guys just trying to learn more about this wretched stuff. Ive had phn twice first time on my neck and it took prob two to three years for the pain to almost fully subside. Ten years later its about a one to two outta ten and i can still feel it if i apply firm pressure. Totally can live with …

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  • Chronic pain, phn and brain activity

    So I’ve had phn now for 7 years, in the last 6 months I have had chronic pain and back in spasm on my right side of my back. I’ve had trigger point injections that have not helped and I’ve just seen a neurologist. He’s refering me to a brain psychologist as he believes where I’ve been in pain …

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  • New to the group could use some advise

    I'm 43 and got, what I thought was a mild case of shingles..the rash was on my back by my left shoulder blade, and the pain at the bottom of my rib cage again on the left. This was about 4/5 months ago. Now I'm finding the pain in my rib cage flares up daily, sometimes a continuous pain, …

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  • My Humerous Story of Pain, Depression, Fatigue, & Isolation

    I sure don't want to bring anybody down. I also want you to know that I laugh at myself many times a day for how pathetic I have become since I got ShIngles and subsequently PHN. Yes I said pathetic. Just stating the facts as I smile as I am writing. My journey with PHN as been very tough. I …

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